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Crohn's Disease Forum » Support Forum » Vent Away » Not feeling good


 
10-11-2016, 11:24 AM   #1
ronroush7
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Not feeling good

I have an appointment with the specialist tomorrow and I wish I could talk to him today.
10-11-2016, 12:26 PM   #2
Lizzie
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Are you in pain at the moment or is it anxiety about your illness making you feel impatient?
10-11-2016, 03:15 PM   #3
ronroush7
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I was just spending a lot of time in the bathroom and still didn't feel good after I got out.
10-11-2016, 03:47 PM   #4
Arthur Oliveira
 
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What is it thst you have? Crohns? I got crohns and have an exam this week, and consult next week. The anxiety is tough. And kinda messes up. Do something to "meditate" and relax about it. Been trying to control my self by drawing and painting.

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10-11-2016, 04:44 PM   #5
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Its awful when your not feling good and have to wait to see your specialist..im not familiar with how your healthcare works, if it get too bad are you able to go to an accident and emergency department? Hope your felling better soon .
10-11-2016, 04:57 PM   #6
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Feeling better for the most part. I have Crohns. Thanks.
10-11-2016, 06:02 PM   #7
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Glad you're feeling bettet. Crohn is a mess. Mine is recent i still learning how to deal with it. Hope everything goes well with you specialist. Get well!

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10-11-2016, 06:05 PM   #8
ronroush7
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Can I ask what the bottom portion means?
10-11-2016, 07:13 PM   #9
Trysha
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Sorry you are feeling poorly Ron and hope you will soon feel better......this crohns is a lousy
Thing to endure...it's so unpredictable and who needs it....hoping for a cure in the near future.
Feel better soon
Hugs and best wishes
Trysha
10-11-2016, 07:14 PM   #10
ronroush7
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Sorry you are feeling poorly Ron and hope you will soon feel better......this crohns is a lousy
Thing to endure...it's so unpredictable and who needs it....hoping for a cure in the near future.
Feel better soon
Hugs and best wishes
Trysha
Thanks

10-12-2016, 02:09 AM   #11
Arthur Oliveira
 
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Sorry about that. Its a stupid signature my phone puts in portuguese that i forgot to turn. Let us know how it went with the specialist after. Hope you doing better! Good luck! And get well soon!

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10-12-2016, 07:12 AM   #12
ronroush7
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Thanks

10-13-2016, 12:04 AM   #13
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How did the appointment go? Did you get any results from it? I hope they were able to give you some ideas to help...
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10-13-2016, 06:26 AM   #14
ronroush7
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They thought the pain I was feeling was due to gastritis and should go back on Prevacid. If that doesn't help in a month, they want me to call so they can do an endoscopy. They also want me to call my dermatologist to see about a bump on my scalp. I had a place on my scalp a few years ago that was a reaction to Remicade.
10-13-2016, 03:47 PM   #15
Cross-stitch gal
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Oh boy. Hopefully they can get things under control for you soon...
10-13-2016, 05:34 PM   #16
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Hi Ron,
sorry you are not so well again. I hope all goes well for your treatment and you feel better soon. You give a lot to others in this forum, thank you. Let me know how you are doing. Best wishes, get well soon.
10-13-2016, 05:43 PM   #17
ronroush7
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Thank you, Honey and Cross Stitch. I went to the hospital twice for the Prometheus but no results.

10-14-2016, 03:49 PM   #18
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I got the results of the Prometheus test and everything came back normal.
10-14-2016, 04:09 PM   #19
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Hi there, glad to hear that. I hope your pain has eased off and you are starting to feel better. Get well, best wishes.
10-14-2016, 04:11 PM   #20
ronroush7
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Thanks. Hope you are well. The pain is random.

10-14-2016, 04:22 PM   #21
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Aw, ronroush7, that sucks that you are feeling poorly. I hope the meds help soon and the follow-up helps with a long-term plan.
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10-14-2016, 04:31 PM   #22
ronroush7
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It is not that bad. Just once or twice a week, I am in the bathroom a lot.
10-14-2016, 04:58 PM   #23
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Hi there, sorry you are not that well. I hope they find meds to help you soon. I, as you know, am seeing my Consultant on Tuesday to discuss treatment.
It is not an easy illness , is it? Best wishes.
10-14-2016, 05:10 PM   #24
ronroush7
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No . It isn't . Hope the consultant has some good answers for you.

10-14-2016, 09:19 PM   #25
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Hoping you feel better over the weekend.
10-15-2016, 03:18 PM   #26
Arthur Oliveira
 
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Hey ron, glad to hear it came back normal! How long you have crohns? Mine appeared in 2014 still trying to find the meds.for.it, havnt started with anything too strong, but my fistula sucks. The pain of crohns is so random its annoying. Hope you get well soon. You.give so much to thw community of this forum! You helped me alot already and you dont even know! Best of wishes!
10-15-2016, 03:27 PM   #27
ronroush7
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Thank you very much. You made my day. I was diagnosed in 1990 but I suspect that I had a mild form of it before then . I was feeling really bad the morning when i posted this. Just some pressure right now.

10-15-2016, 07:43 PM   #28
Arthur Oliveira
 
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Thank you very much. You made my day. I was diagnosed in 1990 but I suspect that I had a mild form of it before then . I was feeling really bad the morning when i posted this. Just some pressure right now.

With all due respect mr ron!
You got diagnosed the year i was born. Thats crazy. You basicly live with it as i lived, i canr imagine the struggle. Specially back then. When the info was low. You must've been through so much. But, hey, if you lived all the way through here with it, and you can still do it. And help so much and so many. Man, i take my hat off for you, much respect. And now even more. You really just gave me alot of strenght. Been feeling like shit this last 2 years, for the first time on this third flare, i feel that my spirits broken, felt weak, had a nervous breakdown, for the first time in my life, and i've endured alot, had a shit childhood. And nothing like this ever happened. Everyone always said i'm the happiest person they ever met. And for the first
time crohn really got me confused. The day i broke i stumbled on this forum looking for help, and you have no idea of how much you and everyone helped.me and my family deal with this. I was enterily lost. And you sir. I dont know where you from, but you reached.portugal somehow, and now. Knowing you did endure this and you took it with you for as long as i lived! Thats strong, and you share all you can, you listen to everyone on the forum, even if you cant help you say you're sorry for not being able to do it. You're really a true inspiration when it comes to it. Thanks for the kind words. But you the one who made my day, and sometimes. You made it by some info i stumbled uppon or something you said to help someone. Sorry if my english is not the best, its 1:40 here. The fatigue is hitting me and im writting this in tears. Cant really explain why.
With much respect and the best regards. I trully wish you to get well soon. And keep going, dont let crohn hit you with the pressure, you already endured a life of crohn. More than some friends of mine have lived(may god be with them). So, you're strong to live many more years with it easy! Dont let yourself down, and we reap what we sow, and you help so much, the world wont let you down.
Best of wishes,
Your fellow crohnic youngster
All the way from portugal
Arthur!
10-15-2016, 07:46 PM   #29
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Best to you

10-15-2016, 07:53 PM   #30
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Feeling fine. I was just feeling bad the other day and I needed to vent.

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