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11-28-2016, 09:00 PM   #1
MizzSarah
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Join Date: Oct 2016

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I've failed

Today I was reminded how very different I am compared to young adults my age. While people my age are just finishing university I've held a job for nearly 3 years in fear of my unpredictable health. After graduating highschool I went straight to UNI to get education fast so that I have a cushion to land on. I needed health insurance and I needed a union job quickly. Now I'm beginning to think this job I have wasn't the smartest decision. I love it but it's hard on my body. Now re-thinking my entire life.

My dad has Crohn's as well and hasn't been able to work since the onset of his disease. this was crucial in my thinking I just had to sort my life out fast. I needed to start accumulating hours.. settle in a position so if need to I could get a decent amount on long term disability.

I've always had to think ahead.

my body's age is deceiving.

What do you guys do for a living?
__________________
Crohns Disease
2014
Meds: Humira & Entocort
2nd Gen affected
11-28-2016, 09:06 PM   #2
ronroush7
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Join Date: Oct 2013
Location: vienna, Virginia

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I am retired but used to do administrative work. Advancement is being made all the time. Be encouraged.

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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
11-29-2016, 05:19 AM   #3
greenjericho
 
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Join Date: Jun 2015
Location: Vancouver, British Columbia
I am a student right now, getting through school is a hell of a struggle and it scares me that "real life" is going to be even harder.

However, I think that your plan on getting an education was one of the most important things you can do for yourself because it opens up so many job opportunities for yourself. Education is something that can never be taken away from you, and with it you can find a job or a career where your needs are supported.
11-29-2016, 07:46 AM   #4
eleanor_rigby
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Join Date: Aug 2012
Location: Cheshire, England, United Kingdom

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I'm a PhD student as well. Before my perforation I was a healthcare assistant working a 24 hours shift pattern. That was hell and led to me having all sorts of partial bowel obstructions and then ultimately my perforation.
__________________


History:
2nd Generation affected

Symptoms since 08/2006 (age 17)

Emergency open bowel resection after perforation in 12/2011 (age 22) (wrongly diagnosed as burst appendix ). Three years remission following this unmonitored

Diagnosis:
Perforating small bowel Crohn's Disease 01/2016 (terminal ileum, duodenum)
Coeliac disease (age 26)

Meds:
50mg azathioprine (down from 75mg after my WBC dropped)
Gluten-free diet
11-29-2016, 10:36 AM   #5
ronroush7
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Location: vienna, Virginia

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I am a student right now, getting through school is a hell of a struggle and it scares me that "real life" is going to be even harder.

However, I think that your plan on getting an education was one of the most important things you can do for yourself because it opens up so many job opportunities for yourself. Education is something that can never be taken away from you, and with it you can find a job or a career where your needs are supported.
Agree

11-29-2016, 11:43 AM   #6
Cat-a-Tonic
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Join Date: May 2010
Location: Madison, Wisconsin

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MizzSarah, you haven't failed. You have an education, and as you said, you have a job you love. That sounds pretty good to me! And just because your father isn't able to work, that doesn't mean that will be true for you as well. We're all different, the illness affects us all differently. I have one family member who had IBD - my great-grandfather had UC, and he also had tuberculosis and cancer. I certainly don't expect that I'll end up with his various ailments just because of the family link. You are your own person, your father's story is not your own.

As for work, I also work an administrative office job. It's stressful sometimes but overall it's fairly easy on me. If I were healthier, I'd ideally love to get certified as a personal trainer and work with people with chronic illness to improve their fitness. I love fitness but I've been flaring since July and my body just can't handle workouts right now. That doesn't mean I'm giving up on that dream, it's just on the backburner for now. I'm going to get back into remission and work on getting my fitness level back up to where I'd like it to be. You've got to have goals, even with chronic illness. Maybe it'll never happen for me, but that doesn't mean I'm not going to try. Stay positive!
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