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Crohn's Disease Forum » Tests for IBD » Colonoscopy - with an audience


03-15-2017, 03:08 PM   #1
highlandsrock
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Colonoscopy - with an audience

I had an interesting experience last Saturday. I needed a repeat colonoscopy to try and resolve a conflict between an MRI scan and a previous scoping. In order to get a quick appointment I was asked if I minded having an audience...

I've found keeping a diary of these procedures really valuable for referring to at a later date and jog my memory of what we discussed. Here the entry - http://www.wrestlingtheoctopus.com/plan-for-the-worst/
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Wrestling The Octopus.com - the companion website to my, shortly to be published, book on 4 decades of Crohn's and other issues

Not taking Crohn's meds at present. In the past - pred, pentasa, aza, entocort, infliximab - with varying degrees of success

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03-15-2017, 03:11 PM   #2
ronroush7
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Thanks

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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
03-15-2017, 03:28 PM   #3
crohns4ever
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Sounds like the experience I am currently dealing with after my last colonscopy. Crohn 's is a wicked evil.
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Diagnosed: With crohns July 4th 1999
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Surgery: Had 3 1/2 feet of colon removed due to very active crohns on july 4th 2000:
03-15-2017, 04:16 PM   #4
Sophabulous
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Very interesting! I too only saw the biopsies being taken on my scope last week for the first time, you hit the nail on the head with the crocodile clip! As I was seeing it on the screen I think I could feel a slight tickle but nothing more. I was also very achy for 2 days afterwards, I'm not sure if this was because I was under less sedation than usual or if it was the 30 biopsies taken!
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Diagnosed severe Crohn's of the Duodenum, Terminal Ilium and Cecum.

Currently taking Azathioprine 100mg, Esomeprazole 40mg, B12 Injections and various supplements. Azathioprine failing so awaiting next steps
03-15-2017, 04:31 PM   #5
highlandsrock
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30 biopsies! I only had 4. I only ached for a day afterwards. Think it was the amount of gas they used to inflate the gut and the length of time the scope was in there
03-15-2017, 04:38 PM   #6
Sophabulous
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Yep, 30! I was shocked too!



They only took 6 last year when I was diagnosed, I would say I was more full of air after that one than this time so that's what makes me wonder if it's the biopsies. I had the scope last Thursday and it was only Monday really that my tummy wasn't achy and unsettled. Hey ho, luck of the draw I suppose!

I also became aware of a gathering crowd during my first scope when the sedation wore off towards the end and I was in pain. Very surreal! I swear there were only 3 people in the room when I was sedated and when I woke up it was about 12! Weird....
03-15-2017, 05:05 PM   #7
highlandsrock
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I lived with TI Crohn's for 30 years before I had to have it removed. Been on no Crohn's medication ever since. Hoping that the result of the biopsies will not change that
03-15-2017, 05:10 PM   #8
ronroush7
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I lived with TI Crohn's for 30 years before I had to have it removed. Been on no Crohn's medication ever since. Hoping that the result of the biopsies will not change that
I hope the best.

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