Share Facebook
Crohn's Disease Forum » Your Story » Wanting to try something new


03-27-2017, 05:24 PM   #1
Shanda
 
Join Date: Mar 2017
Location: Kamloops, British Columbia
Wanting to try something new

My name is Shanda (37yrs old) and I live in Canada. I was diagnosed with
Crohn's in 2012. I have been using imuran to control my disease this whole time. A few days ago I began using CBD oil and some tea at night and I am hoping I can treat my disease with that instead of pharmaceuticals. I'm experimenting to see if it actually works! I'm looking forward to seeing what others write and learning more about this disease from everyone on here.
03-28-2017, 08:40 AM   #2
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Welcome. Sending my best and hoping you can find something to get you in remission. Keep us updated on how you are doing.
__________________
Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
03-28-2017, 09:27 AM   #3
Nate Ohlson
 
Join Date: Mar 2017
Location: Orlando, Florida
I'd be really interested to hear about how CBD oil effects you! Been thinking about trying that myself
03-30-2017, 10:28 PM   #4
Lady Organic
Forum Monitor
 
Lady Organic's Avatar
Hi Shanda,

i was very well in remission for 6 years with Imuran cousin drug purinethol and decided to stop it. I had no side effect with the drug and was perfectly healthy. I must say its the biggest regret in my life as I relapsed a year after cutting the meds and this lead to myriads of troubles since, including onset of chronic arthritis. If your CD was moderate to severe, go very carefully and especially very slowly cutting your medication. I tried CBD oil last year without success. Each patient is different, some cut medication and do well, but others dont. I know of two moderate-severe patients who stopped medication and have been still in remission for 4-5 years now, one with diet. Its truly a risk to stop a medication that is keeping well. Most importantly, discuss this with your Gi so he/she can monitor you more closely. When I stopped my medication, I hid this to my GI, that was another big mistake, I promised myself never to do this again. When we have been years in remission, we can come to forget how serious this disease can be...
I'd combine with a diet plan too along with oil. You may want to take a look at IBD-aid in my signature. wishing you well.
__________________
''UC-like Crohn's'' since 2001:
on: 25mg 6-MP (purinethol)+ B12 shots
minor hands/wrists chronic arthritis since 01/2013

Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only
suppl Curcuminoid extract, Inulin,psyllium, apple pectin, Vitamin D

past meds:
pred 50mg, 5-ASA, cortifoam, Imuran (failed) Purinethol (success) methotrexate (failed CD and arthritis).

Last edited by Lady Organic; 03-30-2017 at 11:00 PM.
03-31-2017, 10:36 AM   #5
Bufford
Senior Member
 
Join Date: Dec 2015
Location: Northwestern Ontario

My Support Groups:
I found many treatments made me feel worse than the Crohn's. Some people can tolerate them, but for my system they made me sick. I found that finding the right alternative is not easy. In my search Tumeric Curcuma powder works well. I take a teaspoon and mix it in a glass of water on an empty stomach between breakfast and lunch. Avoid taking it in the evening as it might interupt sleep. Managing stress helps a lot too. When I was younger I worried too much, now I don't sweat anything; that in itself takes a large load off of the body.
03-31-2017, 05:48 PM   #6
Scipio
Senior Member
 
Scipio's Avatar
 
Join Date: Oct 2015
Location: San Diego

My Support Groups:
I agree with Lady Organic. Be very cautious about a discontinuing a medication that is working for you.

"If it ain't broke don't fix it."
03-31-2017, 06:03 PM   #7
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I agree with Lady Organic. Be very cautious about a discontinuing a medication that is working for you.

"If it ain't broke don't fix it."
Agree
04-01-2017, 08:52 AM   #8
Atlantic
 
Join Date: Jan 2017
what is CBD oil?
Reply

Crohn's Disease Forum » Your Story » Wanting to try something new
Thread Tools


All times are GMT -5. The time now is 06:59 AM.
Copyright 2006-2017 Crohnsforum.com