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Crohn's Disease Forum » Support Forum » New to crohns please help


06-30-2017, 03:33 PM   #1
Blazinj
 
Join Date: Jun 2017
Location: Rochester, New York
New to crohns please help

Hi all I'm new here and I was just diagnosed with crohns last week ..last year I had a colonscopy done and the found very small patch of colitis and now 4 days ago I go to emergency with stomach pain and diahrhia on the right and do ct scan with dye and the said right side of colon looks inflammed ...my gastrointestinal doctor says she believes its crohns and wants me to start taking lialda and prednisone ..

I'm only 41 and not a big fan at all of medicine and afraid of what meds can do after ready about them ....but in turn afraid of not taking anything either

What choices do I have is there and supplements or probiotics or anything more friendly I can take for this

Thank you
07-06-2017, 03:01 AM   #2
Guerrero
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Join Date: May 2017

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Hi all I'm new here and I was just diagnosed with crohns last week ..last year I had a colonscopy done and the found very small patch of colitis and now 4 days ago I go to emergency with stomach pain and diahrhia on the right and do ct scan with dye and the said right side of colon looks inflammed ...my gastrointestinal doctor says she believes its crohns and wants me to start taking lialda and prednisone ..

I'm only 41 and not a big fan at all of medicine and afraid of what meds can do after ready about them ....but in turn afraid of not taking anything either

What choices do I have is there and supplements or probiotics or anything more friendly I can take for this

Thank you
Hi Blazinj,
Probiotics may give some help in the long term, but as you have inflammation I'd recommend you to take prednisone for a short term period as your docs suggested
Take care
07-10-2017, 11:32 AM   #3
p4nth3r
 
Join Date: Jul 2017
Hey Blazin,

I've had Crohns for 17 years now and I'd say it's best to take the tablets the HP thinks is best for your condition. I have had 2 major surgeries to remove my bowels and with the correct medication this could have been prevented.

Absorbsion of vitamins and minerals becomes harder the worse Crohns gets so talk to your HP to see if you can take multi vitamins. Also a colonoscopy would be a good bet so they can actually determine what stage youre at or if you've got Crohns or Ulcerative colitis.

It's a debilitating disease and it steals your dreams, your life, everything. I totally hope you don't physically have it and I hope the HPs do right by you.

Let us know how you get on.
07-10-2017, 11:51 AM   #4
Guerrero
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Join Date: May 2017

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Hey Blazin,

I've had Crohns for 17 years now and I'd say it's best to take the tablets the HP thinks is best for your condition. I have had 2 major surgeries to remove my bowels and with the correct medication this could have been prevented.

Absorbsion of vitamins and minerals becomes harder the worse Crohns gets so talk to your HP to see if you can take multi vitamins. Also a colonoscopy would be a good bet so they can actually determine what stage youre at or if you've got Crohns or Ulcerative colitis.

It's a debilitating disease and it steals your dreams, your life, everything. I totally hope you don't physically have it and I hope the HPs do right by you.

Let us know how you get on.
With the new treatments, hopefully it wont take our dreams and life anymore

Its a very case by case disease, i been maybe more lucky, i have had it for 17 years too, and had very long periods of remission.
07-10-2017, 12:05 PM   #5
p4nth3r
 
Join Date: Jul 2017
With the new treatments, hopefully it wont take our dreams and life anymore

Its a very case by case disease, i been maybe more lucky, i have had it for 17 years too, and had very long periods of remission.
I consider myself lucky to be honest, I've had 7 years with hardly any problems, it's just started again March 2016 and hasn't called a ceasefire yet. I will get mine under control again and hopefully be in remission for a lengthy period with some luck.
07-24-2017, 10:34 AM   #6
susser2000
 
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Join Date: Feb 2016
Location: Reston, Virginia
I wouldn't recommend not taking the meds your doctor prescribed. I was diagnosed at 15 and am now 34; I stopped taking my meds while I was in college because I felt fine and ended up having a nice hospital stay. Prednisone isn't something you want to take a lot of, but it does help with any pain you might be having.
07-24-2017, 11:27 AM   #7
ronroush7
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Join Date: Oct 2013
Location: vienna, Virginia

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I wouldn't recommend not taking the meds your doctor prescribed. I was diagnosed at 15 and am now 34; I stopped taking my meds while I was in college because I felt fine and ended up having a nice hospital stay. Prednisone isn't something you want to take a lot of, but it does help with any pain you might be having.
I agree.
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