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Crohn's Disease Forum » Ulcerative Colitis Forum » Ulcerative Proctitis Support Group


 
07-20-2017, 02:13 PM   #181
Grant
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I saw my Specialist today & he scoped me with the small scope that just goes up & round the corner. It hurt like hell tbh, I actually shouted out which is unlike me. He said I have mild proctitis in the rectum & I said well it may look mild but it hurts like hell. He understood, one of the better Gastroenterololgists I've come across.
Unlike a Colonoscopy no sedation & painkillers intravenously, no gas & air. IMO a far worse experience than an actual colonoscopy.
Rgds
Grant
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1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection
2012 Laproscopic Laperotomy & Resection
2013 diagnosed with a Fistula
Been on Azathioprine Pred & Methotrexate
Currently on:
Inflectra
Questran
Loperamide
Calcichew
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3mthly B12 Jabs
07-20-2017, 02:48 PM   #182
Cross-stitch gal
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I'm sorry you're still flaring Grant. But, at least you have a doctor that understands. Yeah, I think I may have gone through that before too a few years ago. Not the most fun...
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Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

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UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
07-21-2017, 09:26 AM   #183
scottsma
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A sigmoidoscopy I think ? That's how I was first dx'd 11years ago.I see you've been through the list of meds and surgery.What are you taking/using now and are you still suffering from proctitis ? I only ask because I was dx'd with crohns colitis 2 yrs ago,meaning the inflammation had move up into the colon.I no longer use Asacol supps.nor do I use any other meds except tramadol and amitriptilyne for arthritis and back pain.
07-21-2017, 04:32 PM   #184
Grant
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Scottsma, I'm on:

Pentasa
Questran
Calceous
Loperamide
Sanatogen
Magnesium Hydroxide as required
Hydrocortisone 2.5mg muco-adhesive buccal tablets sugar free for mouth ulcers.
Inflectra 6 weekly.
12 weekly B12 jabs.

My Specialist informs me that my Crohns Disease is very aggressive & it seems that way, I dont seem to get much peace with it tbh.
Rgds
Grant
07-22-2017, 03:23 AM   #185
scottsma
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Goodness me Grant.I thought the list of meds on your Avatar were those that you've tried and have failed,not those that you were taking.I hope your doing OK today.
07-22-2017, 03:38 AM   #186
Cross-stitch gal
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Scottsma, I'm on:

Pentasa
Questran
Calceous
Loperamide
Sanatogen
Magnesium Hydroxide as required
Hydrocortisone 2.5mg muco-adhesive buccal tablets sugar free for mouth ulcers.
Inflectra 6 weekly.
12 weekly B12 jabs.

My Specialist informs me that my Crohns Disease is very aggressive & it seems that way, I dont seem to get much peace with it tbh.
Rgds
Grant
All I can say is: WOW guy!!! I too hope you're doing alright...
08-08-2017, 07:44 AM   #187
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How are you doing Grant? Are you any better than when we talked last?
08-08-2017, 09:50 AM   #188
scottsma
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How are you doing Grant? Are you any better than when we talked last?
I hope you are keeping well too C.s.g......all's well here fingers x'd.
08-08-2017, 03:38 PM   #189
Cross-stitch gal
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Doing as well as I can thank you!

Husband is into week 4 of 4 doing training at his work. It's been quite a challenge being on different schedules for us. He's been having to get up at 5:30am to go to school and I've been working until 11pm getting home around 11:15. So, neither of us have had much sleep on top of us having split days off. I've been on my days off while he's been at work and I've been working while he's been off. We're just thankful for this to be over!

We're also battling missing money from our account from the thief starting on my birthday. So, will be heading to the bank this afternoon to talk about that. And the excitement at work too. Needless to say, my plate is full!

But, on the 20th husband and I are off work for 5 days. We haven't decided what to do yet, but would like to go somewhere for a night or two. We'll see what happens...
08-09-2017, 03:02 AM   #190
scottsma
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Not much fun for you just now then.Make sure you do something nice on your 5day break but make sure it's restful not stressful.
08-09-2017, 03:17 PM   #191
Cross-stitch gal
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The eclipse is supposed to happen on the first day 8/20. So, if we can get up early enough we'll probably be able to see that from our house. We wanted to go to Crater Lake, but with it being so dry lately we're not sure if we'll be able to go. So, that's up in the air. But, we are planning to get away for a night or two!!! Here's the link so you can see what I mean about Crater Lake.

https://www.nps.gov/crla/index.htm
08-10-2017, 03:22 AM   #192
scottsma
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I hadn't heard about the eclipse,I wonder if we'll get to see it over here.
08-10-2017, 07:44 AM   #193
Cross-stitch gal
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I'm not sure. But, it's such a big deal that I guess everyone is flying into the states for it and the hotels are all completely booked. Looks like the last time we had a total one was in 1918. Which is why it's such an ordeal. Here's the info on it.

https://en.wikipedia.org/wiki/Solar_...ugust_21,_2017
08-28-2017, 01:49 PM   #194
Cross-stitch gal
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The 5 days off were nice and very needed!!! We decided with all the craziness not to try to spend the night anywhere, just to do a couple of day trips where we could sleep at home.

On Sunday we went to Cedar Grist Mill which is an old flour mill a few miles away from us that originally was built in 1876. It is now run by volunteers that only show the place a couple hours a week. Which is why it's free except for asking for donations to keep it running. It was really cool and we got to bring home 2 lbs of free freshly ground flour.

http://www.cedarcreekgristmill.com

Tuesday we went to the beach for the day and it was beautiful!!! Even though there was still a bunch of crazy people there for the eclipse we were thankful we got away. It was extremely hard going back to work on Friday. But, at least we got to be off to enjoy ourselves for a bit.
09-29-2017, 07:30 PM   #195
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i am 26yrs old and i have a 3yr old daughter who has a genetic disorder called 15q11.2 microdeletion. shes missing a part of chromosome 15 and as a result of that she has a seizure disorder, severe anxiety, adhd, an arachanoid cyst in her brain, acid reflux, congenital ptosis of the eye(which shes had surgery on twice so far), an eating disorder that causes her to have chronic constipation, sensory processing disorder, sensory overload disorder, developmental delays, and ptsd when it comes to doctors and hospitals. about a year ago my fiance of 5 1/2 yrs was diagnosed with diverticulitis. he was hospitalized for a week because he had an abscess in his stomach that was extremely close to bursting open. he also has anxiety, depression, add, ocd and about 2weeks ago he was diagnosed with ulcerative colitis and has since been doing blood tests and getting no results from his doctor. i was diagnosed with ocd, severe anxiety, bipolar depression, rapid changing bipolar disorder, chronic headaches and migraines, chronic constipation, chronic urinary tract infections, muscle spasms that affect my back, knees and hips, cirrhosis of the liver, adhd, and ptsd. i have way way more on my plate than i can handle. i am extremely stressed out with everything thats going on. i have no family to help me and no friends either. my fiances family are all either way too busy or just cant afford to help us. he cant work because of his UC and my daughter gets disability but its nowhere near enough to cover our bills and necessities. im trying to find a job but nobody will hire me because of my bipolar disorder and my fiance needs me at home to help him and to take care of our daughter as he is not physically able to watch her. hes in constant pain and discomfort and can hardly make it to the bathroom let alone chase a 3yr old around all day. i just dont know what to do. his doctors just keep doing bloodwork on him and wont do any other tests. the meds they give him dont do anything and everytime he makes an appointment to see his doctor the office either doesnt put his appointment in their system or his doctor has some stupid excuse as to why he cant see him. the emergency rooms dont do anything for him except put him in more pain. its an endless cycle of nothingness. we are forced to do our own research online to try to find relief and more info on his conditions and all that does is worsen both of our anxieties and cause me extreme emotional distress to where im almost having panic attacks. we just need answers. i dont know how much more i can handle. im exhausted emotionally, physically and mentally. i wish we had some help.
09-29-2017, 09:40 PM   #196
Lady Organic
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Hi StruggllingMomnWife.
You are sure going through a lot and I can imagine this not being easy. Would your husband have the possibility to change his gastroenterologist? When we dont have good service with one doctor, it could be possible to change. If your husband is still experiencing symptoms of his UC, a short colonoscopy should be done. Blood test do not always reveal inflammation. If colonoscopy is not possible, fecal calprotectine is a cheaper test that can reveal inflammation and disease activity.
As for coping with the stress, if seeing a psychologist is not possible for you, I would suggest to go to a community center in your area, there may be a community worker to whom you could speak on occasions and find some support, for free. This would sure help releasing some stress and keeping hope.
Wishing you the best
__________________
''UC-like Crohn's'' since 2001:
on: 25mg 6-MP (purinethol)+ B12 shots
minor hands/wrists chronic arthritis since 01/2013

Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only
suppl Curcuminoid extract, Inulin,psyllium, apple pectin, Vitamin D

past meds:
pred 50mg, 5-ASA, cortifoam, Imuran (failed) Purinethol (success) methotrexate (failed CD and arthritis).
10-01-2017, 12:44 AM   #197
StrugglingMom&Wife
 
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Hi StruggllingMomnWife.
You are sure going through a lot and I can imagine this not being easy. Would your husband have the possibility to change his gastroenterologist? When we dont have good service with one doctor, it could be possible to change. If your husband is still experiencing symptoms of his UC, a short colonoscopy should be done. Blood test do not always reveal inflammation. If colonoscopy is not possible, fecal calprotectine is a cheaper test that can reveal inflammation and disease activity.
As for coping with the stress, if seeing a psychologist is not possible for you, I would suggest to go to a community center in your area, there may be a community worker to whom you could speak on occasions and find some support, for free. This would sure help releasing some stress and keeping hope.
Wishing you the best
yes i am going through alot right now. it wasnt my choice but its ok. he hasnt seen a gastroenterologist yet just his regular doctor. that doctor just ordered blood tests and wouldnt give him any kind of meds for his anxiety or his UC. he kept moving my husbands appointments around and canceling them for no reason so we recently got him switched to another doctor who after just one visit sent out a referral for my husband to see a psychologist and he ordered a colonoscopy and stool sample tests. he also gave my husband some medicine for nausea caused by his UC and something for anxiety until he can see a psychologist at oak lawn. this new doctor is helping my husband alot so far. as for myself i am seeing a counselor for numerous reasons other than just this but i feel like having friends or talking to people who actually know what we're dealing with right now might be more helpful.
10-01-2017, 01:37 AM   #198
Cross-stitch gal
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Welcome! We're glad to be here for you and I know that sometimes a little experience although not the same is kinda nice. Just let us know.
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