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08-14-2017, 08:11 AM   #1
Ladybug12
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Folic acid question

Is there anyone here whose child take 5mg of folic once a week? If you have done this, has there been any side effects?
08-14-2017, 08:21 AM   #2
Lisa
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I used to be on folic acid DAILY - 5mg once a week seems like a very low dose.....
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30 plus years and counting with UC/Crohn's!
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While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
08-14-2017, 11:22 AM   #3
my little penguin
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Flick acid daily here
2 mg a day every day so total of 14 mg a week
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08-14-2017, 01:42 PM   #4
Maya142
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We do daily too - 2 mg daily, including the day of the shot. We found 1 mg daily was not enough - my girls got mouth sores.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
08-15-2017, 07:18 PM   #5
Farmwife
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Grace did 1mg of folic acid every day.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
08-17-2017, 04:16 PM   #6
Jenn
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Thought it odd too, everyone seems to be daily, but my son's doc gave him 5mg weekly too, the day after MTX. We just started 2 weeks ago. Doc said he could do 1mg daily instead, but he chose to do it weekly (he's 15). No issues so far.
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Jennifer ~ son dx at age 8, Sep 2010
currently on Humira, Feb 2012+, MTX (15mg) Aug 2017+, folic acid
past use: 6mp for Sep 2010-Apr 2011 (not effective enough), then Remicade April 2011-Dec 2011 (built antibodies); additional 6MP Aug 2012-Sep 2013; Periactin for appetite Sep 2010-Sep 2013
other: Centrum chewable multi; calcium-vitD;
Derma-Smoothe for psoriasis rashes; Alrex, Zaditor eye drops for vernal conjunctivitis; history of asthma, ear infections
08-19-2017, 01:11 AM   #7
Ladybug12
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Thanks for the replies you all.
08-19-2017, 07:11 PM   #8
Lucky One
 
Join Date: Apr 2016
Location: Burlngton, Ontario
When I took it as prescribed (5mg weekly) to go along with methotrexate, I suffered a lot of nausea and headaches. Discussed w my GI and now take 1 mg daily except on needle day. Side effects are much better now
08-19-2017, 09:27 PM   #9
Ladybug12
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When I took it as prescribed (5mg weekly) to go along with methotrexate, I suffered a lot of nausea and headaches. Discussed w my GI and now take 1 mg daily except on needle day. Side effects are much better now
I may have to go back to 1mg a day. She is complaining about headaches again. Thanks for your reply.
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