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Crohn's Disease Forum » Treatment » Iv IG infusions/ cellcept/ prograf


08-22-2017, 09:47 PM   #1
hredner
 
Join Date: Aug 2016
Location: Nashville, Tennessee
Iv IG infusions/ cellcept/ prograf

I have literally been on every single crohns med and was just wondering if anyone has tried any of the above treatments? My GI dr said these are the next options.
08-23-2017, 03:35 PM   #2
Farrah1
 
Join Date: Aug 2017
Location: Texas
I cannot understand why more people don't know about IVIG treatment for Crohn's given the success record. So you know if your insurance will cover the cost?
08-23-2017, 04:01 PM   #3
Maya142
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I'll tag my little penguin since she knows about IVIG.

There have been a few kids of on the Parents forum who have been on Prograf (tacromilus) and have done well with it. It's typically used for the short-term to get ready for surgery - it's not often used as a long-term option because it can damage the kidneys.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
08-23-2017, 06:09 PM   #4
my little penguin
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Join Date: Apr 2012

My Support Groups:
The plan was for ds to try IVIG
It does have success with Crohns
But could not get insurance approval
The infusion takes 8-10 hours to complete once every 4 weeks
It's plasmafrom close to 10,000 donors
Different brands "names" are the variable amount of plasma
How much igM and IgA is found in it
And whether the additives are glucose based or other based

Good luck hope something works


Ds was switched to Stelara instead
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DS - -Crohn's -Stelara
09-06-2017, 10:36 PM   #5
hredner
 
Join Date: Aug 2016
Location: Nashville, Tennessee
I cannot understand why more people don't know about IVIG treatment for Crohn's given the success record. So you know if your insurance will cover the cost?
Sounds like they will. So it's pretty successful?
09-06-2017, 10:37 PM   #6
hredner
 
Join Date: Aug 2016
Location: Nashville, Tennessee
I'll tag my little penguin since she knows about IVIG.

There have been a few kids of on the Parents forum who have been on Prograf (tacromilus) and have done well with it. It's typically used for the short-term to get ready for surgery - it's not often used as a long-term option because it can damage the kidneys.

Oh ok, didn't realize that.
09-06-2017, 10:41 PM   #7
hredner
 
Join Date: Aug 2016
Location: Nashville, Tennessee
The plan was for ds to try IVIG
It does have success with Crohns
But could not get insurance approval
The infusion takes 8-10 hours to complete once every 4 weeks
It's plasmafrom close to 10,000 donors
Different brands "names" are the variable amount of plasma
How much igM and IgA is found in it
And whether the additives are glucose based or other based

Good luck hope something works


Ds was switched to Stelara instead
Omg 8-10 hours? Every month? That's insane! I've been on Stelera for almost a year now and the crohns spread everywhere so got to try something new. Hopefully it works for you guys! Just be aware it makes you extremely tired for the first few days and a little foggy headed and sometimes even gives you a headache. Good luck!
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