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Crohn's Disease Forum » Parents of Kids with IBD » Tater Tot and Remicade


 
09-21-2017, 04:28 PM   #331
Maya142
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I can't find our exact one but it is a foldable, tabletop IV pole similar to this: http://www.drivemedical.com/b2b/inde...poles-808.html

We have a bigger one with wheels at home that was supplied by our DME.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
09-21-2017, 04:31 PM   #332
Jmrogers4
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Lol, lol, lol
I have an IV pole at home.
Would your son like it? It has cut out of a paper castle at top and princess stickers stuck over the pole.
I'm sure i can find the fake ivy that used to wind around it.
It'll cute in his dorm.

Good grief. How did the poor nurse think this was going to happen?
Maybe we should get him to wear a tiara too. Did I mention his roommates are rugby and football players maybe we can get them all to be princesses in support (I'd have to post pictures of that)

A link would be great Maya since I guess we are looking at the next 4 years right. I would have assumed the home health would have one as well.

They did not do his normal rapid infusion but I think I'm okay with that judging on how it all happened I don't think throwing another kink in the system would be a good thing.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
09-21-2017, 04:42 PM   #333
Farmwife
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Maybe we should get him to wear a tiara too. Did I mention his roommates are rugby and football players maybe we can get them all to be princesses in support (I'd have to post pictures of that)
Lol. If you could guarantee a picture.
I go all out and give you the tierra that Grace got from Cinderella's castle.
It'll go viral .
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
09-21-2017, 05:08 PM   #334
Maya142
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Here is another link: https://www.vitalitymedical.com/ligh...-iv-poles.html

You can also just search on Amazon - they definitely have them, I just don't know if they have folding/portable ones. But they do have rolling ones that aren't huge.

Ours was made by a company called Little IVs but I can't seem to find it now.
09-26-2017, 09:37 AM   #335
Tesscorm
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Location: Ontario

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It is hard becoming an arms length PITA mom! There might be a couple stumbles here and there but, they do seem to take it in stride better than we!

Instead of going through the whole exercise of getting a pole, etc., could he make do with attaching a (strong) coat hook on the wall?? Given the small size of dorm rooms, he could use it for his coat or knapsack in between infusions and wouldn't need to store the pole anywhere in his room??

But, regardless, I think it's amazing that they go to him for the infusions!! And, way to go mom, for not jumping in the car right away!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
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