My Situation
Ok im new to this site but im going to skip most my backstory in hopes of keeping this as short possible so more people will read(though i hope understand this isnt something that can be summed up easily so please read).
I am confused and extremely frustrated at the moment and am in desperate need of help.
So I grew up in England and was completely fine and healthy as a child. 6 years ago i moved to New Zealand and about 2 years after that i was diagnosed with crohns disease so the last 4 years of my life have been a struggle to say the least. I was put on steriods and other drugs though they never seemed to help me very much at all if anything making things worse giving me terrible acne and the moon face.
A bit less than a year ago i managed to get myself onto a drug called humira and i feel very lucky for that as it has improved things for me quite a bit but i am still nowhere near where i would like to be especially having recently started university.
After recent bloodtests my doctor has told me there is barely any evidence of inflamation, yet i still get ridiculous amounts of bloating and gas and i can clearly see im not digesting my food properly. I sometimes feel pressure in my bowel usually in the upper left of my bowel just under my ribs which feels like i have an obstruction. Because of this i am always exhausted constantly, i almost physically cant get up in the morning for lectures its that bad, i cant concentrate and even have problems with memory.
I also have a constant cough, like i can always feel something in the back of my throat, (one doctor even had the nerve to try and tell me this was force of habit), aswell as having sinus congestion. I'd also like to note that i get nosebleeds ocaionally and get terrible hay-fever. I also never really got blood in my stools and i used to get joint pain in my lower back.
My Frustration
Ok so thats basically me at the moment, the real reason i am posting this though is because i am begging to doubt crohn's disease is the cause of my problems. It seems to me like crohn's is just the generic thing doctors use to label people with bowel problems when they cant/ are to lazy to figure out why.
I refuse to accept that my imune system is attacking my own body. Wouldn't it be a whole lot more lodgical that i actually have some sort of bacterial or viral infection that my body is trying to fight off. My original diagnosis was just one sidmoidoscopy and then apparently that was it i had crohn's disease. Is crohn's the only thing that can cause bowel ulcers? surely not. They didnt even seem to check for anything else. Do doctors even care about making sure they get the right diagnosis or do they just label you with the most likely thing, in this case crohn's which isn't even really a disease. Crohn's just means sorry we dont know whats causing ur problems ur just going to have to deal with it for the rest of ur life.
I hope ur still with me at this point, because heres the part where i need your help.
Like i said i am seriously doubting i have crohns now for a number of reasons and it seems like i am never going to get anywhere with any doctor so i would like know i anyone has any suggestions or has been misdiagnosed with crohns themselves, (if so what with). After seaching the internet one thing that really caught my eye was Candidiasis as it seemed to fit my symptomsso well, so whats ur opinion on this and are there any other bacterias or infections it could be.
Again i would like to know about any other possibilities.
I am in desperate need of answers. Telling me my imune system is attacking my own body all of a sudden for some unknown reason just doesnt cut it for me.
Possible Causes / About Me
Ok here some things i think may have been causes:
I can make a complete list of all the symptoms ive ever had if it helps.
Also not sure if this is the right section to post this in.
Thanks for listening any reply would be greatly appreciated.
Ok im new to this site but im going to skip most my backstory in hopes of keeping this as short possible so more people will read(though i hope understand this isnt something that can be summed up easily so please read).
I am confused and extremely frustrated at the moment and am in desperate need of help.
So I grew up in England and was completely fine and healthy as a child. 6 years ago i moved to New Zealand and about 2 years after that i was diagnosed with crohns disease so the last 4 years of my life have been a struggle to say the least. I was put on steriods and other drugs though they never seemed to help me very much at all if anything making things worse giving me terrible acne and the moon face.
A bit less than a year ago i managed to get myself onto a drug called humira and i feel very lucky for that as it has improved things for me quite a bit but i am still nowhere near where i would like to be especially having recently started university.
After recent bloodtests my doctor has told me there is barely any evidence of inflamation, yet i still get ridiculous amounts of bloating and gas and i can clearly see im not digesting my food properly. I sometimes feel pressure in my bowel usually in the upper left of my bowel just under my ribs which feels like i have an obstruction. Because of this i am always exhausted constantly, i almost physically cant get up in the morning for lectures its that bad, i cant concentrate and even have problems with memory.
I also have a constant cough, like i can always feel something in the back of my throat, (one doctor even had the nerve to try and tell me this was force of habit), aswell as having sinus congestion. I'd also like to note that i get nosebleeds ocaionally and get terrible hay-fever. I also never really got blood in my stools and i used to get joint pain in my lower back.
My Frustration
Ok so thats basically me at the moment, the real reason i am posting this though is because i am begging to doubt crohn's disease is the cause of my problems. It seems to me like crohn's is just the generic thing doctors use to label people with bowel problems when they cant/ are to lazy to figure out why.
I refuse to accept that my imune system is attacking my own body. Wouldn't it be a whole lot more lodgical that i actually have some sort of bacterial or viral infection that my body is trying to fight off. My original diagnosis was just one sidmoidoscopy and then apparently that was it i had crohn's disease. Is crohn's the only thing that can cause bowel ulcers? surely not. They didnt even seem to check for anything else. Do doctors even care about making sure they get the right diagnosis or do they just label you with the most likely thing, in this case crohn's which isn't even really a disease. Crohn's just means sorry we dont know whats causing ur problems ur just going to have to deal with it for the rest of ur life.
I hope ur still with me at this point, because heres the part where i need your help.
Like i said i am seriously doubting i have crohns now for a number of reasons and it seems like i am never going to get anywhere with any doctor so i would like know i anyone has any suggestions or has been misdiagnosed with crohns themselves, (if so what with). After seaching the internet one thing that really caught my eye was Candidiasis as it seemed to fit my symptomsso well, so whats ur opinion on this and are there any other bacterias or infections it could be.
Again i would like to know about any other possibilities.
I am in desperate need of answers. Telling me my imune system is attacking my own body all of a sudden for some unknown reason just doesnt cut it for me.
Possible Causes / About Me
Ok here some things i think may have been causes:
- I used to eat riduculous amounts of salt and heinz tomato ketchup
- We stopped in Hong Kong on our way to NZ where I was very sick the whole time we were there and never saw a doctor about it.
- Around the time i got diagnosed and before we used to eat raspberries that were going next to a field of cows and a river, without washing them.
- Just that i moved to the other side of the world.
- Before getting diarrea i remember being very constipated for a while getting wierd slime out my anus even when i didnt go to the toilet
- The house wall-mounted insect-repellent stuff
I can make a complete list of all the symptoms ive ever had if it helps.
Also not sure if this is the right section to post this in.
Thanks for listening any reply would be greatly appreciated.