My list of the top three things I hate most about having Crohn's goes like this (next week or tomorrow even it might read differently):
1) The feeling that my life is over is the hardest to deal with from day to day. I am by nature a person who likes to be busy, to push myself and when I do that now the price may be days bedridden with exhaustion and/or pain or worse. I feel caught between a rock and a hard place. So many things I expected to accomplish will (most likely) never get done.
2) Having to disappoint others by changing plans at the last minute. My social
life has pretty much disappeared. My youngest son (38) has written me out of his life. How much that is about the Crohn's I'm not sure but he once told me that colitis was not a disease (that was before my diagnosis of Crohn's) as if I were just looking for sympathy. A close friend since high school has recently given up making plans with me or coming to visit.
3) Not knowing what tomorrow will bring. Will I be in the hospital? Will I be bleeding profusely? Will I vomit until I pass out when I'm alone? Will I have a reaction to the Remicade? Will I have to have my colon removed? Can I get a new GI DR if my current GI moves or becomes unavailable? Will I be out in public and have an accident? Will I lose my health insurance? I could go on and on about the things I needlessly worry about. :ybatty:
What heads up your list?
Suni
1) The feeling that my life is over is the hardest to deal with from day to day. I am by nature a person who likes to be busy, to push myself and when I do that now the price may be days bedridden with exhaustion and/or pain or worse. I feel caught between a rock and a hard place. So many things I expected to accomplish will (most likely) never get done.
2) Having to disappoint others by changing plans at the last minute. My social
life has pretty much disappeared. My youngest son (38) has written me out of his life. How much that is about the Crohn's I'm not sure but he once told me that colitis was not a disease (that was before my diagnosis of Crohn's) as if I were just looking for sympathy. A close friend since high school has recently given up making plans with me or coming to visit.
3) Not knowing what tomorrow will bring. Will I be in the hospital? Will I be bleeding profusely? Will I vomit until I pass out when I'm alone? Will I have a reaction to the Remicade? Will I have to have my colon removed? Can I get a new GI DR if my current GI moves or becomes unavailable? Will I be out in public and have an accident? Will I lose my health insurance? I could go on and on about the things I needlessly worry about. :ybatty:
What heads up your list?
Suni