:sign0085: Hi all,
I've been newly diagnosed as of June 29th and been thinking about it and crying some days....so many emotions - figured out I reach out to you guys for some help
I've been having abnormal BMs since 2013 but until late last year, early this year, I've been experiencing the same thing along but with more abdominal discomfort (cramping, gas, etc.) - nothing too painful, just uncomfortable. So I finally went out to see a gastro and had the following done:
1. Feb 2015 - colonoscopy - minor narrowing in the transvere colon
2. Promethus Bloodwork - inconclusive
3. Stool sample - all good
4. MRI Enterography in June 2015
Saw my gastro last week and she told me I had aggressive UC with a real narrow colon stricture (she scared the HELL out of me!) and offered me three treatment options:
1. Humira or Remicade for 6 months (if no improvement, surgery)
2. MP6 or Imuran for 6 months (if no improvement, surgery)
3. Surgery
She gave me two weeks to think about it and research it...To be honest, I'm scared - I was not expecting this at all so I went to another gastro and surgeon. The surgeon calls me, and tells me its Crohns and I have fibrostenetic tissue, which eventually would need surgery. She said I can go ahead with the treatments, see how it goes. I see my gastro this Thursday.
I definitely want to avoid surgery until its definitely necessary. Does anybody have any thoughts on the type of treatment I should do - I was thinking Remicade but read that it won't alleviate the stenotic portion of my descending colon. Anybody in the same boat as me?
I've been newly diagnosed as of June 29th and been thinking about it and crying some days....so many emotions - figured out I reach out to you guys for some help
I've been having abnormal BMs since 2013 but until late last year, early this year, I've been experiencing the same thing along but with more abdominal discomfort (cramping, gas, etc.) - nothing too painful, just uncomfortable. So I finally went out to see a gastro and had the following done:
1. Feb 2015 - colonoscopy - minor narrowing in the transvere colon
2. Promethus Bloodwork - inconclusive
3. Stool sample - all good
4. MRI Enterography in June 2015
Saw my gastro last week and she told me I had aggressive UC with a real narrow colon stricture (she scared the HELL out of me!) and offered me three treatment options:
1. Humira or Remicade for 6 months (if no improvement, surgery)
2. MP6 or Imuran for 6 months (if no improvement, surgery)
3. Surgery
She gave me two weeks to think about it and research it...To be honest, I'm scared - I was not expecting this at all so I went to another gastro and surgeon. The surgeon calls me, and tells me its Crohns and I have fibrostenetic tissue, which eventually would need surgery. She said I can go ahead with the treatments, see how it goes. I see my gastro this Thursday.
I definitely want to avoid surgery until its definitely necessary. Does anybody have any thoughts on the type of treatment I should do - I was thinking Remicade but read that it won't alleviate the stenotic portion of my descending colon. Anybody in the same boat as me?