I've been suffering from Crohn's symptoms for a bit over three years now. I pretty much have the full roster, excluding serious complications - you name it, I've probably either got it or have had it. Right now I'm in the middle of one of my worst flare-ups yet - I was in the ER a week ago and was sent home with T3, which helped at first but has already begun to lose effect. I'm spending most of my time curled into a ball and trying not to cry from the pain, or dashing to the toilet. I've been seeing a GI for two years, and he has been very reluctant to send me for any tests. I finally got a colonoscopy and gastroscopy in December, which he told me came back normal except for very minor hemorrhoids. I've been treated off and on for anaemia all year, but no doctor I've seen has pursued the cause of the anaemia (which seems wrong to me since my iron levels fluctuate wildly and can be very, very low at times). I asked for a referral to a different GI about a year ago and received it, but the referral was then rejected by the GI, no reason given. My GP is supportive but can't really help. My GI has announced that I have "sensitive nerves" and seems not to be interested in further testing.
Has anyone else ever experienced this? To me (unfortunately I am not a doctor at all) it seems like textbook Crohn's and I'm very frustrated to not have a diagnosis by now. Can anyone recommend a course of action? I'm desperate and ready to try just about anything to get answers.
Has anyone else ever experienced this? To me (unfortunately I am not a doctor at all) it seems like textbook Crohn's and I'm very frustrated to not have a diagnosis by now. Can anyone recommend a course of action? I'm desperate and ready to try just about anything to get answers.