Both diet and stress are definite factors in disease.
Because I have a stricture, I have to make sure that anything I eat that is fibrous is cooked well. I also have to limit the amount of food that I eat. If I do not, I feel very bloated and cramped up all night long. I feel so good when my stomach is empty.
I use marijuana and alcohol for stress. I think that beer is really good for me in moderation of course. The carbonation helps me burp too. I definitely exercise more too.
I do not use any other meds.
For the past two years, I have been considering the surgical resection of a 15 cm long stricture that is proximal to my ileocecal valve. I was first diagnosed with Crohn’s 20 years ago after being treated surgically for a peri-anal abscess. As far as I can remember, my stomach problems began at age 7 when I was treated with high doses of penicillin for Lyme Disease.
I was even scheduled for surgery at Stanford, but changed my mind a week before. I am really concerned about losing the ileocecal valve. It seems important. I would like to talk with more people who have had the surgery. I would like to know their state before and after the surgery. Mostly, I am concerned about diarrhea. Currently, I have a bout once a month, usually when I am stressed out and not eating well.
I am worried that if I have the valve removed, I will have much more frequent diarrhea. The trade-off is that now, I am kept awake by cramping several nights per month. I also wonder if I would have a lot more energy if I go ahead and get the surgery. The problem is that there is no going back from the decision to have surgery, unless surgeons begin doing valve reconstructions.
Has anyone else agonized over this decision like me?
I would like to hear from anyone who has had a resection or is considering one?