I usually try, and succeed, in remaining positive throughout this horrible journey but today, well today I can't. When I finally thought I had this crohns colitis under control, it proves what a volatile bitch this disease is by flaring again.
I had a suspicion things weren't right, so had a calprotectin test and low-and-behold the inflammation is back. At least it explains the pain, cramps and frequent visits to the bathroom recently, so while I know I'm not crazy, it's not much comfort.
When first diagnosed I wanted to try a natural method of getting better, but ending up in hospital and a severe telling off from my doc cured me of that. But fickle fate intervened and turns out I'm allergic to mesalazine, so Pentasa and Octasa made me worse. Azathioprine gave me migraines and steroids are the only drug I can handle so far, but can't be on long term. They also didnt do much to bring my inflammation down.
So I tried EEN with ensure plus and in two months I'm in remission, feeling great for the first time since my hospital stay, introduced food again (carefully!) and felt positive about being able to work full time again then BOOM ...
"Hello pain my old friend, can't say I've missed you."
Back pain, which I didn't even correlate to the crohn's is back too. Whoppie.
So now I'm trapped in a whirlwind of negative emotion and I want to scream and cry and rage that the brief hope I had of normalcy was cruelly ripped away.
7 weeks of remission. What a bloody joke.
Tomorrow I will pick myself up, put on my big girl undies and deal with this, but for now I just need to vent and allow myself to wallow in how crappy IBD is (pun most definitely intended).
Turns out 2016 isn't great, but I have every hope for 2017.
I had a suspicion things weren't right, so had a calprotectin test and low-and-behold the inflammation is back. At least it explains the pain, cramps and frequent visits to the bathroom recently, so while I know I'm not crazy, it's not much comfort.
When first diagnosed I wanted to try a natural method of getting better, but ending up in hospital and a severe telling off from my doc cured me of that. But fickle fate intervened and turns out I'm allergic to mesalazine, so Pentasa and Octasa made me worse. Azathioprine gave me migraines and steroids are the only drug I can handle so far, but can't be on long term. They also didnt do much to bring my inflammation down.
So I tried EEN with ensure plus and in two months I'm in remission, feeling great for the first time since my hospital stay, introduced food again (carefully!) and felt positive about being able to work full time again then BOOM ...
"Hello pain my old friend, can't say I've missed you."
Back pain, which I didn't even correlate to the crohn's is back too. Whoppie.
So now I'm trapped in a whirlwind of negative emotion and I want to scream and cry and rage that the brief hope I had of normalcy was cruelly ripped away.
7 weeks of remission. What a bloody joke.
Tomorrow I will pick myself up, put on my big girl undies and deal with this, but for now I just need to vent and allow myself to wallow in how crappy IBD is (pun most definitely intended).
Turns out 2016 isn't great, but I have every hope for 2017.