Hi all - hoping you have answers for me. If you read my signature you will see it's been like a yoyo with this disease. I was diagnosed today with Crohns based on surgical labs. I did not have diarrhea, bleeding, weight loss or any of the classic symptoms. Ulcers were discovered with pill cam so I took Entacort 4 months ago and recently had a full blockage that required emergency resection. My strictures caused me pain and occasional bowel blockages that generally cleared up with hydration but no other symptoms. I have suffered with severe constipation which caused "hemmy" surgery. My absorption of minerals and vitamins is an issue.
My question - these blockages have been giving me issues for 25 years and just now, I have had my first surgery. This seems to be NOT the norm and in fact seems rather a slow progression (I'm not complaining). Has anyone else experienced these types of symptoms with their Crohns? In my eyes this seems mild especially now that the strictures are removed. Yet one of my former docs wanted to start me immediately on Humira. That seemed extreme to me and I don't want to go there unnecessarily. It has been implied by a respected professional that "there is a lot of money to be made with those infusion treatments" and he gently steered me in a different direction. I took a lesson from that.
Does anyone have any feedback that might be helpful? I have not met with my new gastro #3 yet. Just want to be informed when I go there.
Appreciate this forum!!!!:heart:
My question - these blockages have been giving me issues for 25 years and just now, I have had my first surgery. This seems to be NOT the norm and in fact seems rather a slow progression (I'm not complaining). Has anyone else experienced these types of symptoms with their Crohns? In my eyes this seems mild especially now that the strictures are removed. Yet one of my former docs wanted to start me immediately on Humira. That seemed extreme to me and I don't want to go there unnecessarily. It has been implied by a respected professional that "there is a lot of money to be made with those infusion treatments" and he gently steered me in a different direction. I took a lesson from that.
Does anyone have any feedback that might be helpful? I have not met with my new gastro #3 yet. Just want to be informed when I go there.
Appreciate this forum!!!!:heart: