Hi, I'm new here and I'm not a parent-I'm a teenager that was newly diagnosed in July, but I might have actually had it since middle school. (My period triggers my symptoms. My period is horrendous, like- I prefer my UC pain over my cramps, even when it felt like knives were cut into me and I would feel the symptoms for two weeks prior to it and a week AFTER. Then in July I ended up being forced not to eat because my period worsened it so bad even sprite wouldn't stay down long) I'm not in remission and I won't be for a long time since I have to get SSI for my Asacol HD. I do take prednisone, a probiotic and a heart burn medicine. Yet they give me problems. (I keep getting random pain everywhere. Its hard walking and grasping things too long hurts. It could be my jaw misaligned or something, but my jaw tenses really bad while eating. )
I'm terrified of school-its my last year of high school and I want to attend. I really do want to head to school like everyone else and go out, but my parents keep pushing me towards homeschooling. They are talking to the school to get them to accommodate for me, and I'm terrified that it won't work. I'm also terrified that I'd do something stupid in school. (Bathroom break very long, accidents, etc.) I have no idea what to do. I know you all have children with IBD and longer than me, so can you offer advice for me maybe?
Ps:How do I explain to my father that it wasn't my fault for my disease? He has this idea that UC is from diet and GMOs or something. Its offensive , he frustrates me due to his lack of understanding.
I'm terrified of school-its my last year of high school and I want to attend. I really do want to head to school like everyone else and go out, but my parents keep pushing me towards homeschooling. They are talking to the school to get them to accommodate for me, and I'm terrified that it won't work. I'm also terrified that I'd do something stupid in school. (Bathroom break very long, accidents, etc.) I have no idea what to do. I know you all have children with IBD and longer than me, so can you offer advice for me maybe?
Ps:How do I explain to my father that it wasn't my fault for my disease? He has this idea that UC is from diet and GMOs or something. Its offensive , he frustrates me due to his lack of understanding.