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Anyone else trying mesalamine meds other than Delzicol

Snickerdoodle

Snickerdoodle

Location
New Jersey
Hi all!
I had a nice run with Asacol but my insurance wont cover Delzicol until I have tried Lialda and Apriso first. Lialda gave me such crazy joint pain that I couldn't walk so now I am waiting on a new script for hopefully Delzicol but possibly Apriso. Does the Apriso give anyone arthritis like the Lialda does? I only knew Lialda did that by seeing it posted here...my rheumy and my physical therapist both missed that when I asked them why my 37 year old knees felt more like 97 year old ones!
Thanks!
 
Sef0912

Sef0912

I was taken off of Delzicol today due to having horrible headaches when I took it. I am starting on Pentasa.
 
Snickerdoodle

Snickerdoodle

Location
New Jersey
I started Pentasa on Friday after failing Lialda. Hope it works for you...so far I'm not seeing much improvement but I might do better next week when I am on a full dose.
 
valleysangel92

valleysangel92

Moderator
Staff member
I am currently taking pentasa, along with prednisolone. I am taking 2g a day and unfortunately I don't think that it is making much of a difference for me. I did start to feel a little better, but as I started reducing my steroids things got progressively worse to the point I had to call my nurse and let them know. I'm back up to 20 mg of prednisolone now, and have to stay on that dose until I see my consultant next week (I was supposed to be on 5 mg by then). At the moment I have not been told if I will remain on pentasa, but I think that they might start me on azathioprine if I continue to relapse while reducing steroids.

Remember that these medications are pretty mild as far as IBD meds go, and they can take some time to have a noticeable effect, so don't discount it yet.
 
Snickerdoodle

Snickerdoodle

Location
New Jersey
I am not expecting miracles with any of the 5 ASA options...if my insurance ever takes away my Humira then I know I'm really in trouble. I'll update street next week how the full dose Pentasa goes.
 
Sef0912

Sef0912

valleysangel92 said:
I am currently taking pentasa, along with prednisolone. I am taking 2g a day and unfortunately I don't think that it is making much of a difference for me. I did start to feel a little better, but as I started reducing my steroids things got progressively worse to the point I had to call my nurse and let them know. I'm back up to 20 mg of prednisolone now, and have to stay on that dose until I see my consultant next week (I was supposed to be on 5 mg by then). At the moment I have not been told if I will remain on pentasa, but I think that they might start me on azathioprine if I continue to relapse while reducing steroids.

Remember that these medications are pretty mild as far as IBD meds go, and they can take some time to have a noticeable effect, so don't discount it yet.
Click to expand...

My GI also said today that if nothing really starts to work in the next 2-3 weeks that I would be started on steriod therapy, so I can possibly end the current flare. If Pentasa does not work, we are going to move to Imuran. I really just want to get to the point of remission, but I don't like adding a million meds.
 
LodgeLady

LodgeLady

I am 6 weeks on Pentasa. It has worked great for my Crohns. However I have had significant joint pain this week. I know it's from the Pentasa. Does anyone know if the joint pain will eventually subside? I don't want to stop the Pentasa as it is working great.
 
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