This week, I revisited the doctor who treated me 3-4 years ago, when I was first diagnosed. Back then, he insisted that Pentasa was like a band-aid, and that I needed 6mp, despite my case being pretty mild. Now that it's even more mild, 3 years later he says Pentasa could work. He said that I wouldn't even qualify to enter trials...so those studies that showed Pentasa is like a Placebo...were those of people like us, the 1% of really asymptomatic, mild Crohn's? Or is that referring to people with more severe (moderate) cases?
It's really strange that he says if I have trouble tapering off Entocort, then we'll add 6mp, when in the past including up to last month, all the doctors have jumped straight to 6mp...even though I'm mild!
#Confused. It's either I stick with this doctor in Miami (Crohn's and Colitis center) orrr go back to Mayo. 3 years ago I ran away from the Miami doctor because he said I needed Humira and 6mp and had me on 100 mg of 6mp. I went to Mayo, MN 3 months later for a second opinion and what do they find? NO INFLAMMATIO, elevated LFT, and said Humira is not necessary and that if symptoms return, restart 6mp or re-evaluate. Well, symptoms are not as bad as they were 4 years ago, but there is very very mild inflammation.
Up until 2 months ago, I've WANTED the least harmful approach! BUT it clicked that the ongoing inflammation is asking for trouble...which is why I'm afraid Pentasa is only....a band-aid?
It's a blessing to be in the mild/asymptomatic category, but also more difficult...
It's really strange that he says if I have trouble tapering off Entocort, then we'll add 6mp, when in the past including up to last month, all the doctors have jumped straight to 6mp...even though I'm mild!
#Confused. It's either I stick with this doctor in Miami (Crohn's and Colitis center) orrr go back to Mayo. 3 years ago I ran away from the Miami doctor because he said I needed Humira and 6mp and had me on 100 mg of 6mp. I went to Mayo, MN 3 months later for a second opinion and what do they find? NO INFLAMMATIO, elevated LFT, and said Humira is not necessary and that if symptoms return, restart 6mp or re-evaluate. Well, symptoms are not as bad as they were 4 years ago, but there is very very mild inflammation.
Up until 2 months ago, I've WANTED the least harmful approach! BUT it clicked that the ongoing inflammation is asking for trouble...which is why I'm afraid Pentasa is only....a band-aid?
It's a blessing to be in the mild/asymptomatic category, but also more difficult...