Hi. New here. This is my first post here actually, the reason behind me posting is because I'm desperate, I'm at the brink of giving up. Here's my story.
At the end of last summer (2016) I went to the ER because of abdominal pain, having been a bit "sluggish" all summer. They sent me home, twice, despite me barely being able to walk due to pain. The third time I went to the ER a specialist checked me out and decided to rush me into surgery because of my appendix bursting. It then went on to infect my intestines and some part of them had to be removed. Ever since then I've gone to a lot of tests, mirroring, countless blood tests, and only a slight amount of inflammation was found. I've been given 3 types of medication and none of them work (some make it worse). My doctor was supposed to follow up on me monthly until I was 18 but ended up "neglecting me" and not checking on me except every 4-5 months. Even then, I told her I was feeling VERY sick, I had to drop out of college and am having a hard time even working 15-20% jobs because I constantly have abdominal pain, nausea, I'm sluggish, trouble with sleep, I am severely depressed, my stool is majority of the time painful and or runny. I am undiagnosed. Nothing can be done for me they said. My parents barely support me and wanna throw me out.
The only doctor that has listened and understood me is my personal doctor, we talked about applying for disability, but first she wants me to check out some other treatments, like a rehabilitation center(I think is the word?) where they help you get on your feet and back into work. Which makes no sense to me since they cant do anything to help with my illness(or whatever it is) i'm just a complete mess. The wait for a response from the center is 8-16 weeks and disability pension is 16-20 weeks wait. I'm broke and tired.
I feel like the system has failed me. I was sent home twice with a burst appendix, last time I had to do a test where they are supposed to sedate me, they screwed that up and I wasn't sedated even though I was screaming out of pain and being held down by 3 nurses... My own GI doctor "neglects" me (she's the only one in my area that takes in minors)
Any thoughts on my situation? Any advice? I am in desperate need for help and I can't get any.
More info:
17 years old turning 18 on July 1st
At the end of last summer (2016) I went to the ER because of abdominal pain, having been a bit "sluggish" all summer. They sent me home, twice, despite me barely being able to walk due to pain. The third time I went to the ER a specialist checked me out and decided to rush me into surgery because of my appendix bursting. It then went on to infect my intestines and some part of them had to be removed. Ever since then I've gone to a lot of tests, mirroring, countless blood tests, and only a slight amount of inflammation was found. I've been given 3 types of medication and none of them work (some make it worse). My doctor was supposed to follow up on me monthly until I was 18 but ended up "neglecting me" and not checking on me except every 4-5 months. Even then, I told her I was feeling VERY sick, I had to drop out of college and am having a hard time even working 15-20% jobs because I constantly have abdominal pain, nausea, I'm sluggish, trouble with sleep, I am severely depressed, my stool is majority of the time painful and or runny. I am undiagnosed. Nothing can be done for me they said. My parents barely support me and wanna throw me out.
The only doctor that has listened and understood me is my personal doctor, we talked about applying for disability, but first she wants me to check out some other treatments, like a rehabilitation center(I think is the word?) where they help you get on your feet and back into work. Which makes no sense to me since they cant do anything to help with my illness(or whatever it is) i'm just a complete mess. The wait for a response from the center is 8-16 weeks and disability pension is 16-20 weeks wait. I'm broke and tired.
I feel like the system has failed me. I was sent home twice with a burst appendix, last time I had to do a test where they are supposed to sedate me, they screwed that up and I wasn't sedated even though I was screaming out of pain and being held down by 3 nurses... My own GI doctor "neglects" me (she's the only one in my area that takes in minors)
Any thoughts on my situation? Any advice? I am in desperate need for help and I can't get any.
More info:
17 years old turning 18 on July 1st