Had my 3rd infusion last Tuesday, each infusion seems to make the joint pain progressively worse. I ended up in the ER Tuesday night with so much pain I couldnt think and they gave me a few Dilaudid to tie me over. Since then I've been struggling with gettingout of bed, etc etc. And the Crohns pain is coming back, losing control of my bowels again. oo: WTF?!?!? The State and govt dont even want to interview me for disability. I cant work more than a few hours a day, and when I do that, I come home and cant move for HOURS until the pain gets better. I'm sorry if it sounds like I'm whining, :sorry: I'm just lost.
The ER did an X-ray to see if I have Akolysing Spondilitis (Sp?) and I just picked them up today from the hospital to overnight to my Hopkins doc for tomorrow. If I dont have this, idk where to turn... Should I see a rheumatologist, a pain management person, or just wait for the GI to help? My PCP doesnt want to interfere with the GI care so he doesnt want to talk to me. I've started taking Calcium and Vitamin D supplements incase that was the root of the pain but its not working and I'm running out of pain pills to keep me functioning. :confused2:
I'm sorry this is long, thanks for any advice on a direction to go in you may have.
The ER did an X-ray to see if I have Akolysing Spondilitis (Sp?) and I just picked them up today from the hospital to overnight to my Hopkins doc for tomorrow. If I dont have this, idk where to turn... Should I see a rheumatologist, a pain management person, or just wait for the GI to help? My PCP doesnt want to interfere with the GI care so he doesnt want to talk to me. I've started taking Calcium and Vitamin D supplements incase that was the root of the pain but its not working and I'm running out of pain pills to keep me functioning. :confused2:
I'm sorry this is long, thanks for any advice on a direction to go in you may have.