So I have read where many of you have this test done. My son had never had the test until I took some of your advice and requested it to be done a week ago (his GI does not usually test for this).
I got the results back today. While I see abnormal is >120, my son's results say >1250 with an H for high I assume.
Where do I go from here? His last blood work from last week, the CRP showed 14 (11 last month) and his sed rate has been < .5 for the last three months.
His last injection of Methotrexate was 9/27/13. He is now off of it because he says it caused him lots of emotional stress, loss of hair and body aches to where he could hardly walk. So the only medicine he is on for his Crohn's is Remicade every weeks. He refuses to do EN.
He stayed home today, crying this morning after being on the toilet for thirty minutes, saying how his butthole was throbbing. The straining and prolapse hurt him very much.
Any recommendations of what I should take for my next step? I am a single mother with another child at home as well. Traveling far away with the expenses I don't think would be an option for me. I live in the middle of Kansas so I travel about an hour and fifteen minutes to his GI. We have also traveled to another one about three hours away for a second opinion. We chose to stay with the one that lives closer but I cant really say she is doing much. She feels like she is doing all she can. I think there are many other drugs others are trying but her clinic is not approved for them, unless we travel to the other GI.
My son has better days than others, and I know he is in pain more often than not. I am at my wits end on what to do. Maybe I should just travel to the bigger hospital farther away and they would have more options? I effing hate Crohn's!!
I got the results back today. While I see abnormal is >120, my son's results say >1250 with an H for high I assume.
Where do I go from here? His last blood work from last week, the CRP showed 14 (11 last month) and his sed rate has been < .5 for the last three months.
His last injection of Methotrexate was 9/27/13. He is now off of it because he says it caused him lots of emotional stress, loss of hair and body aches to where he could hardly walk. So the only medicine he is on for his Crohn's is Remicade every weeks. He refuses to do EN.
He stayed home today, crying this morning after being on the toilet for thirty minutes, saying how his butthole was throbbing. The straining and prolapse hurt him very much.
Any recommendations of what I should take for my next step? I am a single mother with another child at home as well. Traveling far away with the expenses I don't think would be an option for me. I live in the middle of Kansas so I travel about an hour and fifteen minutes to his GI. We have also traveled to another one about three hours away for a second opinion. We chose to stay with the one that lives closer but I cant really say she is doing much. She feels like she is doing all she can. I think there are many other drugs others are trying but her clinic is not approved for them, unless we travel to the other GI.
My son has better days than others, and I know he is in pain more often than not. I am at my wits end on what to do. Maybe I should just travel to the bigger hospital farther away and they would have more options? I effing hate Crohn's!!