Donna said:
Then, by the 2nd day after, I get flu-like symptoms that go away in a week or so. I get severe headaches, body aches, sore/scratchy throat, and major sinus problems. *sigh. Wish they could come up with something easier.
Donna
Same here Donna, I get the treatment at 1pm every 2 months, and leave by 3pm. they don't give me anything before, or after, the Remicade (not even benedryl).... During the treatment, I feel completely normal, but as soon as I get up from that chair, I feel weak, dizzy, almost had to be wheeled out in a wheelchair the last time, ended up making it anyway though, but my face was all red they said and I felt hot afterwards, but normal otherwise.
then by 8pm (same time everytime) I start getting all that you described, severe headaches, body aches, sore throat, sinus problems, then a fever comes on that reaches around 99-100 or so, not real severe, and lasts the entire night, then gives me the same affect that prednizone does by keeping me awake the entire night hungry as heck, if a person can feel hungry and sick at the same time. hehe..
then the next morning, the fever goes away, but still have the headaches, body aches, soar throat and sinus problems get worse, but by 9am-10am all of that goes away and I feel normal again, but for the next 2 weeks or so I will gain about 10-15 lbs and feel hungry as all get out, just like if I took pred or something, but then after that 2 weeks that feeling wears off, and I start loosing weight and feeling bad again, by the time my next treatment is scheduled I feel like its been a year since my last treatment, its awful waiting so long between treatments, and I've only been on this since December....crazy isn't it. GI won't give me a darn thing for any of it, he says I have to "tough it out" were his own words, like geez thanks alot! hehe
my sister sees the same doctor I do, he visits her in the hospital personally, holding her hand and everything, gives her any prescrp she askes for even for a little cold, yet when I ask the man for something to ease my Remicade symtoms, he says "tough noogies, tough it out" and gets mad if he has to see me for longer then 10 mins to perform a colonoscopy on me, keeping me awake thru the whole procedure calling me a wuss and accusing me of not doing what I'm supposed to be doing if he finds anything in my scope at all during the procedure, every 20 mins if I feel even the slightest bit of pain, like geez, playing favorites are we? hehehe, just irritates me sometimes how self centered and perverted my GI is... but according to my family doctor/primary physician, there is nobody else in the city and surrounding cities I live in