My 8yo daughter, dx 12/2011, doesn't show the normal symptoms but has crohn's. She doesn't BM everyday, no blood in stool right now, all tests are normal, nutrition levels normal. She takes Imuran and levels are therapeutic since May 2012. However, she doesn't eat enough. Her growth is down and her weight is down. She had an endoscopy and colonoscopy on 7.9.12 and swallowed the capsule with the camera that transmits pictures regularly as it moves through the small intestines (way cool). The results showed mild inflamation. The doc said things look so much better than they did in December when she was hospitalized for 12 days (severe case). However, we've been fighting the eating thing for months and the doc is suggesting a change in medication based only on weight loss.
We can do a lateral move to methotrexate (6 week trial) or we can escalate to remicade. I am at a loss. I'm going to ask about LDN, but I suspect the doc will not like that idea.
Does anyone have a child with similar non-traditional symptoms? Has your experience with Imuran reduced your child's appetite? Does Imuran make food taste funny?
Anyone think the mild inflamation could be left over from December?
Thanks for letting me join your community!
Nina's Mom
dx 12/11
Flinstones w/calcium no iron
Imuran .75 alternating .5
culterelle
epipen, because to top it off she's allergic to whey protein (milk)
We can do a lateral move to methotrexate (6 week trial) or we can escalate to remicade. I am at a loss. I'm going to ask about LDN, but I suspect the doc will not like that idea.
Does anyone have a child with similar non-traditional symptoms? Has your experience with Imuran reduced your child's appetite? Does Imuran make food taste funny?
Anyone think the mild inflamation could be left over from December?
Thanks for letting me join your community!
Nina's Mom
dx 12/11
Flinstones w/calcium no iron
Imuran .75 alternating .5
culterelle
epipen, because to top it off she's allergic to whey protein (milk)