Hi, after years and years avoiding Remicade, it is time to give Michael a new medication, in the past 10 years he did good with 6mp, asacol, Flagyl, cipro, prednisone, a lastly Uceris.. For the past 8mobths is being ups and downs, until he got c diff in March.. So the only way to keep him stable is with Remicade, after reading, and reading, and having family and friends telling us he need it a treatment finally my husband accept the reality Andre are doing Remicade. The risk of not treating is worst than the side effects of it..some one told me in this forum. . After finally convince Michael who is 17 that that will help and he will be fine,, in the next 2 weeks I'm guessing will start. He had his last iron infusion today, they will stop it until he takes the 1at dose. He had the tb test drawn today. So I'm guessing 3days for results. His dr is on vacation, but he told his nurses Micahel need it Remicade and sooner or later we where going to call dr office at Childrens hospital in Detroit. Have some questions.
Micahel will be 18 May 31 2017. Are we going to need an adult dr after he turns 18, or should I look for and adult dr now?
I read here some kids take Benadryl before the infusion, is that normal, do I have to request for it.?
How long are the infusions? I read 3hrs is that right?
They said Remicade helps for fistulas, and he has a fistula in ano, superficial, and anal abscesses too. Wich they drain.. I raid Remicade can cause anal abscesses,
Once he is in Remicade he immune system is down, people say there life is back, I want that for Michael because at age 17 he is 85 lb 39 kilos and 5 ft 3 inches and half tall.. I'm not tall I'm 5 and my husband 5.5. , is he going to be able to travel out of the country. ?
So many questions I have ..
Does Humira work also on fistulas and abscesses?
Anybody with only anal problems that uses Remicade.. Does it help.?
Thank you for reading..
Lizette
Micahel dx 6 age 17 just Pentasa and florastor. Now.
Micahel will be 18 May 31 2017. Are we going to need an adult dr after he turns 18, or should I look for and adult dr now?
I read here some kids take Benadryl before the infusion, is that normal, do I have to request for it.?
How long are the infusions? I read 3hrs is that right?
They said Remicade helps for fistulas, and he has a fistula in ano, superficial, and anal abscesses too. Wich they drain.. I raid Remicade can cause anal abscesses,
Once he is in Remicade he immune system is down, people say there life is back, I want that for Michael because at age 17 he is 85 lb 39 kilos and 5 ft 3 inches and half tall.. I'm not tall I'm 5 and my husband 5.5. , is he going to be able to travel out of the country. ?
So many questions I have ..
Does Humira work also on fistulas and abscesses?
Anybody with only anal problems that uses Remicade.. Does it help.?
Thank you for reading..
Lizette
Micahel dx 6 age 17 just Pentasa and florastor. Now.