After reading this forum for almost 2 years, I finally committed to joining. When I was at my sickest I only had the strength to use my arrow keys. I have read so many stories, and checking new posts every day has become the norm. I feel like I know so many of you personally!
It is hard to make a long story short, and all of us seem to have had a long journey. We all hurt, we are all tired, we are all frustrated and lots of us are sad.
I am currently a full-time patient, reliant on my husband's income, and the household help of my 2 teenage daughters. I have a folder for each specialist, I carry a list of diagnoses, meds and contact details for all the doctors.
I just got referred to my 3rd Gastroenterologist who is going to try to go through the rigmarole of getting Humira approved. This includes me going off Methotrexate and starting Imuran (you need to fail Imuran (specifically, not MTX)) which he expects me to fail. Sigh. Wait to a few months for it to fail. Wait a few months for Humira approval. Wait a few months to see if it works. Looks like 2017 isn't going to be my year!
I have done a lot of self-diagnosing. Some were actually true. A few were ridiculous. I do have Crohn's disease, Coeliac disease, "Crohn's-related arthritis", Hypothyroidism, Chronic Migraines, Asthma, and I just asked for tests and had Gallstones confirmed.
I wanted to be short so I plan to expand my story if people are interested.
Jen
It is hard to make a long story short, and all of us seem to have had a long journey. We all hurt, we are all tired, we are all frustrated and lots of us are sad.
I am currently a full-time patient, reliant on my husband's income, and the household help of my 2 teenage daughters. I have a folder for each specialist, I carry a list of diagnoses, meds and contact details for all the doctors.
I just got referred to my 3rd Gastroenterologist who is going to try to go through the rigmarole of getting Humira approved. This includes me going off Methotrexate and starting Imuran (you need to fail Imuran (specifically, not MTX)) which he expects me to fail. Sigh. Wait to a few months for it to fail. Wait a few months for Humira approval. Wait a few months to see if it works. Looks like 2017 isn't going to be my year!
I have done a lot of self-diagnosing. Some were actually true. A few were ridiculous. I do have Crohn's disease, Coeliac disease, "Crohn's-related arthritis", Hypothyroidism, Chronic Migraines, Asthma, and I just asked for tests and had Gallstones confirmed.
I wanted to be short so I plan to expand my story if people are interested.
Jen