I'll try to make a long story short. I've had crohns for 8 years, had one right hemi colectomy in 2010 and now have developed perianal issues, fistulas and absesses, recto-vaginal fistula. I'm currently taking cypro and flagyl, weaning off prednisone and in a trial for vedolizumab. I have already been through remicade and humira. I had setons put in a couple of weeks ago and was examined while I was out.
The doctor basically told me things are as bad as we want them to get and to let him know when I'm ready to have ileostomy surgery.
I have a follow up appointment with the surgeon tomorrow and I assume we will discuss when to schedule surgery.
I'm in a very dark place right now. I'm in pain every day. every bowel movement is almost too painful to take.
is there really a light at the end of this tunnel?
will I ever feel normal again?
I need some encouraging words right now from the people who have gone before me.
I feel like doctors keep promising me things will make me feel better and so far it just hasn't happened for me.
Can I feel normal with an ostomy? I know there are so many people on here who make it sound so do-able but I'm so afraid I'm just not tough enough.
right now I hardly leave my house. Partly because of pain and partly because I am obsessed with what I eat and when it will come out and how much it will hurt and how hard it is to clean up.
will I ever enjoy food with out thinking about these things again??
I really don't feel like I will, even with an ostomy. seems there are constant concerns with those too.
I'm trying really hard to find my positive attitude, but I just can't seem to right now.
I really need to get it together. I have a husband and son I really want to be a good wife and mother to.
The doctor basically told me things are as bad as we want them to get and to let him know when I'm ready to have ileostomy surgery.
I have a follow up appointment with the surgeon tomorrow and I assume we will discuss when to schedule surgery.
I'm in a very dark place right now. I'm in pain every day. every bowel movement is almost too painful to take.
is there really a light at the end of this tunnel?
will I ever feel normal again?
I need some encouraging words right now from the people who have gone before me.
I feel like doctors keep promising me things will make me feel better and so far it just hasn't happened for me.
Can I feel normal with an ostomy? I know there are so many people on here who make it sound so do-able but I'm so afraid I'm just not tough enough.
right now I hardly leave my house. Partly because of pain and partly because I am obsessed with what I eat and when it will come out and how much it will hurt and how hard it is to clean up.
will I ever enjoy food with out thinking about these things again??
I really don't feel like I will, even with an ostomy. seems there are constant concerns with those too.
I'm trying really hard to find my positive attitude, but I just can't seem to right now.
I really need to get it together. I have a husband and son I really want to be a good wife and mother to.