Share Facebook
Crohn's Disease Forum » Support Forum » Migraine And Crohn's Disease Support Group


 
06-13-2014, 08:06 AM   #1
Crohn2357
Senior Member
 
Crohn2357's Avatar
 
Join Date: Aug 2013

My Support Groups:
Migraine And Crohn's Disease Support Group

About this Support Group

Migraine And IBD Support Forum

Members

Agodbold's Avatar Agodbold, Almondmilk's Avatar Almondmilk, apopolizio's Avatar apopolizio, chuckmya's Avatar chuckmya, Cosmojo's Avatar Cosmojo, Crohn2357's Avatar Crohn2357, Daisy123, Elektrikhd, Essieluv's Avatar Essieluv, gotumtum's Avatar gotumtum, Grumbletum's Avatar Grumbletum, HorseLover!!'s Avatar HorseLover!!, Jabee's Avatar Jabee, JackG's Avatar JackG, jonique's Avatar jonique, juggys69's Avatar juggys69, Karen M's Avatar Karen M, lccmorris, Marie23's Avatar Marie23, Medwards30, MelKat, MissBG's Avatar MissBG, Moriati's Avatar Moriati, Peacelovelace, polgara59's Avatar polgara59, POTTYTIME!'s Avatar POTTYTIME!, rollinstone's Avatar rollinstone, scooby2651's Avatar scooby2651, Sophabulous's Avatar Sophabulous, Stardust_Fiddle's Avatar Stardust_Fiddle, Tamera's Avatar Tamera, theOcean's Avatar theOcean, whereisthenearestbathroom's Avatar whereisthenearestbathroom
06-13-2014, 08:08 AM   #2
Crohn2357
Senior Member
 
Crohn2357's Avatar
 
Join Date: Aug 2013

My Support Groups:
Interesting connections:
Prevalence of migraine in patients with celiac disease and inflammatory bowel disease.
http://www.ncbi.nlm.nih.gov/pubmed/23126519
CONCLUSIONS:Migraine was more prevalent in celiac disease and IBD subjects than in controls

Mucosal histamine content and histamine secretion in Crohn's disease, ulcerative colitis and allergic enteropathy.
http://www.ncbi.nlm.nih.gov/pubmed/7549499
In inflammatory bowel disease histamine content and secretion were found to be significantly increased particularly in affected mucosa of Crohn's disease and ulcerative colitis than in unaffected tissue or in healthy controls.

Histamine in migraine and brain.
http://www.ncbi.nlm.nih.gov/pubmed/24433203

Migraine Attacks Shortened by Diamine Oxidase Supplements.
http://www.medscape.com/viewarticle/811920
06-13-2014, 08:17 AM   #3
gotumtum
Senior Member
 
gotumtum's Avatar
 
Join Date: Jun 2014
Location: West Coast, New Zealand

My Support Groups:
Hey that Histamine link is really interesting. My preventative - Sandomigran / pizitofen is also an antihistamine...The plot thickens!
07-15-2014, 04:51 PM   #4
Crohn2357
Senior Member
 
Crohn2357's Avatar
 
Join Date: Aug 2013

My Support Groups:
Role of magnesium in the pathogenesis and treatment of migraines.
http://www.ncbi.nlm.nih.gov/pubmed/9523054
07-15-2014, 05:01 PM   #5
Daisy123
Senior Member
Since my GP put up my dose of amitryptline to 100mg, my migraines have been so much better. Although for some reason I have been smelling gasoline for a few days so think one is brewing. Now when my head starts throbbing I immediately take 50 mg of amitryptline and it staves it off.
07-15-2014, 08:38 PM   #6
Essieluv
Senior Member
 
Essieluv's Avatar
I've suffered from migraines for years. Ironically, it was drug-induced lupus from Humira that triggered my migraines to start up. Fun stuff. I am now on 20mg Amitryptiline and 50mg Zonisamide daily; that helps a lot, but I do still get migraines quit frequently.
__________________
Meds that failed me: Remicade, Humira, Cimzia, Entocort.

Waiting for a cure!
07-15-2014, 09:02 PM   #7
gotumtum
Senior Member
 
gotumtum's Avatar
 
Join Date: Jun 2014
Location: West Coast, New Zealand

My Support Groups:
I can't take amitryptyline as it is too close to nortryptyline which gave me tachycardia and poss periphal neuropathy after 7 years
07-16-2014, 09:15 AM   #8
Grumbletum
Senior Member
 
Grumbletum's Avatar
 
Join Date: Dec 2010
Location: Western Isles, United Kingdom

My Support Groups:
Subscribing. They've come back on almost on a daily basis. Guts are still behaving themselves though. The headache is mild compared to the ones I've had in the past, I just feel a bit nauseous with them. I guess I should get my eyes tested - it's been a while. And I'm on holiday from Friday so will see what happens. Work has been really intense and stressful and I'm feeling pretty burnt out, so I guess it might be that triggering them.
__________________
Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
07-16-2014, 10:39 AM   #9
scooby2651
 
scooby2651's Avatar
 
Join Date: Jul 2014
Location: Lancashire, United Kingdom

My Support Groups:
Hi,
I was diagnosed with Crohns on 1993, had bowel resection same year.Since 2009 suffered with migraine. Have to take Topirimate. The pain is always in the same place, over right eye and back of head. Most days I feel in a fog. Does this happen to anyone else?

Thanks
07-16-2014, 09:19 PM   #10
gotumtum
Senior Member
 
gotumtum's Avatar
 
Join Date: Jun 2014
Location: West Coast, New Zealand

My Support Groups:
Hi Scooby

They tried me on topirimate when I was diagnosed. I was on a really low dose, but had the fogginess. I was not interested in food, lost a heap of weight, and lost my mojo - and personality - it was like no-one was home. It was a bit scary! - You know something is wrong when I son't want chocolate! Thankfully the neurologist listened to me, and changed me to sandomigrin. I fully reccomend it, though I understand that the next normal thing they try is beta blockers, but this would have lowered my blood pressure too much.

The sandomigrin helped, but I was also told to take magnesium. The magnesium has helped the most, which is interesting, and I have also found that one of my triggers is gluten (leaning over is another one, so I use that as an excuse not to do housework sometimes!), also cold breezes or drafts indoors or out! - ! have you figured out what your triggers are? Some people find that artificial sweetners, sugar, chocolate, cocoa, coffee (and many other things) can cause them.

I would head back to the person that prescribed the topirimate to you. I think that there are other options you can try, and if they don't work you can always come back to it. I think from memory that it is noted as a side effect - some anti depressants can cause the same effect, and it is the same approach, you just try a different one ( though you might have to taper the topirimate)

Grumbletum - I have found that when my neck muscles are really tight I get migraines. I go to the chiropractor and for massages occasionally to get straightened out I think that this is part of why I get them when stressed, also I find that I need more magnesium when I am stressed for some reason! Best of luck with
07-17-2014, 01:51 PM   #11
Grumbletum
Senior Member
 
Grumbletum's Avatar
 
Join Date: Dec 2010
Location: Western Isles, United Kingdom

My Support Groups:
Thanks, Gotumtum. I will definitely try the magnesium and find the time to get yoga back into my daily routine.
07-18-2014, 04:49 PM   #12
scooby2651
 
scooby2651's Avatar
 
Join Date: Jul 2014
Location: Lancashire, United Kingdom

My Support Groups:
Hi,
Since starting on Topirimate, my memory has been terrible. I used to be so good remembering dates, names, faces. One time it took me half an hour to remember my Doctors name. I thought something was wrong until she explained it was the cocktail of tablets I am taking for my various problems. I think thats why I feel in a fog
07-21-2014, 01:08 PM   #13
Elektrikhd
Senior Member
 
Join Date: Nov 2012
Location: Washington, New Jersey

My Support Groups:
Oh, hey, this is a recent addition that applies to me. I had a history of bad sinus headaches, but after the Crohn's started, I got headaches from dehydration and then migraines, particularly after starting Humira it seems. But, the Humira has been doing a lot to control the Crohn's symptoms, and I'm not sure it's causing the migraines in the first place.

Mine always start on one side of my head toward the front, usually in the temple, and then spread to the other side. Sometimes it'll last as both sides for a long time, sometimes it will fade from the starting side. Occasionally it seems like it's my entire head, my neck gets sore. Over the first year, they got progressively worse and more frequent. Prescribed sumatriptan tablets to take in response, eventually had one that didn't respond to it and went to the ER about it. Got butabitol-caffeine-acetaminophen-codeine caps for what I call the "super migraines" and the overall frequency (normal and super) got to once a week, some migraines would also linger on for 3 days. GP put me on increasing doses of propranolol with only minor improvement, but I was feeling sluggish and vague. I went to see a neurologist, he switched me to topamax and got me sumatriptan injections, also recommended a better magnesium supplement as well. The topamax has reduced my frequency and some of the intensity. I'm not as sensitive to my triggers anymore, but I've still had a couple of super migraines in the 3 months since starting topamax, and one that didn't quite clear up for over 3 days.

Ok at the moment. I'm on a fairly low dose of the topamax still, so the side effects haven't been bad for me. Neuro is also working with me on weight loss (I'm one of the exceptions with Crohn's, I'm overweight) because fat cells produce estrogen and that in turn can increase the chance of migraines.
__________________
Crohn's dx in 2012, 19 days hospital
Winter 2015 Flare, 5 days hospital March, meds adjusted
(unDx flare 2009 caused by Zyrtec; suspect mild disease in 1990, age 6, followed by remission)

depression 2000, migraines 2012, glaucoma 2014

Humira (40mg/week)
Asacol (800mg 3x/day)
Prednisone when flaring
assorted supplements

Topamax (migraine)
Sumatriptan/Sumaval (as needed, migraine)
Latanaprost (glaucoma)
Viibryd (depression)
08-01-2014, 06:00 AM   #14
polgara59
 
polgara59's Avatar
 
Join Date: Jul 2014
Location: Red Deer, Alberta

My Support Groups:
I'm just going through the diagnosis process -- I've had the colonoscopy and blood work, and I'm waiting for a CT scan. Still have to do stool collection to rule out parasites and bacteria. I've had digestive issues forever but never saw a doc until I started bleeding in February. I've also had migraines forever. Most of my triggers have been smells, especially things that have petroleum-based products. I'm also sensitive to weather changes, and after my kids were born, I'd get pre-menstrual migraines. Fortunately, my GP sent me to a nuerologist about 10 years ago and he put me on naratryptan. Instead of taking enough decongestants and Tylenol/Motrin to choke a horse, I now just take 1 naratryptan and the skullcramp is usually gone within an hour.

Reading that there may be a connection between Crohn's and migraine is very interesting to me, so I will be watching this forum closely for any new information!
08-01-2014, 03:48 PM   #15
Elektrikhd
Senior Member
 
Join Date: Nov 2012
Location: Washington, New Jersey

My Support Groups:
I recall reading somewhere that there may be an inflammatory component or cause to migraines.

I sometimes had what I considered really bad sinus headaches, years before the migraines started, which would lead to me taking multiple decongestants and allergy medications, and a couple different pain relievers, sometimes just with the result of taking the edge off so I could get through what I needed to do or go take a nap. I don't think those were actually migraines, but they were approaching it in pain level.
08-01-2014, 07:25 PM   #16
If*
Senior Member
 
Join Date: Apr 2013
Are you getting enough fluids? Also, when the barometric pressure changes drastically for some it can cause migraines.
08-02-2014, 08:17 PM   #17
polgara59
 
polgara59's Avatar
 
Join Date: Jul 2014
Location: Red Deer, Alberta

My Support Groups:
I recall reading somewhere that there may be an inflammatory component or cause to migraines.

I sometimes had what I considered really bad sinus headaches, years before the migraines started, which would lead to me taking multiple decongestants and allergy medications, and a couple different pain relievers, sometimes just with the result of taking the edge off so I could get through what I needed to do or go take a nap. I don't think those were actually migraines, but they were approaching it in pain level.
My migraines often start with my head feeling all stuffed up, especially if I've been around trigger smells. Decongestants were part of my self-prescribed treatment for years but, like you said, got to the point of only taking the edge off. I still use decongestants on occasion if I've not caight it it early enough with the naratryptan. I've also started using the decongestants with antihistamines since most of my headaches seem to be related to an allergic reaction.

I know many people also use cold packs because one of the goals of migraine therapy is to constrict the blood vessels in the head to reduce the throbbing. However, because my sinuses are usually involved, I find heat works better for me. It's like the heat helps loosen things up to help relieve the pressure.

I've read that NSAIDs are not good for IBD, so I don't know if I should be using Advil or Tylenol Cold & Sinus, because acetaminophen isn't all that wonderful either. More research required...
08-02-2014, 09:01 PM   #18
Elektrikhd
Senior Member
 
Join Date: Nov 2012
Location: Washington, New Jersey

My Support Groups:
I can't take Advil (ibuprofen) because when it wears off it will cause pain in my guts. Tylenol doesn't cause me any problems. It may depend on the individual, though.
08-02-2014, 11:42 PM   #19
theOcean
Moderator
 
theOcean's Avatar
 
Join Date: Jan 2014
Location: Toronto, ON, Canada

My Support Groups:
I get chronic migraines and get them at least 3/4 days a week minimum and advil is the only thing that works... most of the time, at least. I take it maximum two days a week because, well, Crohn's. I'm allergic to triptans so I have to be careful about trying preventative medication, but I'm considering looking into it again soon. My neurologist is too daunted by my multiple conditions to really try and help me anymore, though...
__________________
Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
08-03-2014, 04:55 AM   #20
gotumtum
Senior Member
 
gotumtum's Avatar
 
Join Date: Jun 2014
Location: West Coast, New Zealand

My Support Groups:
Hey The ocean - have you had your magnesium checked? I was getting migraines most days, but the magnesium has sorted it - I was really happy as it was an 'easy' fix!
08-03-2014, 11:18 AM   #21
theOcean
Moderator
 
theOcean's Avatar
 
Join Date: Jan 2014
Location: Toronto, ON, Canada

My Support Groups:
Yep! I get blood tests every month and my magnesium gets checked too -- it's totally normal. I've had migraines for as long as I can remember, even as a little kid.

Has anyone taken pregabalin for migraines? That's what my neurologist and sleep specialist were considering.
08-10-2014, 02:28 PM   #22
Crohn2357
Senior Member
 
Crohn2357's Avatar
 
Join Date: Aug 2013

My Support Groups:
Migraine may permanently change brain structure
http://www.sciencedaily.com/releases...0828172644.htm
Migraine and structural changes in the brain
http://www.neurology.org/content/81/14/1260
08-10-2014, 10:40 PM   #23
Elektrikhd
Senior Member
 
Join Date: Nov 2012
Location: Washington, New Jersey

My Support Groups:
I'll have MRI results on Wednesday...
08-11-2014, 12:03 AM   #24
rollinstone
Senior Member
 
rollinstone's Avatar
I get these suckers, but also get tension headaches which also suck, I'm sure there's a link because I never used to get them as frequently as since the cd dx
08-22-2014, 09:08 PM   #25
gotumtum
Senior Member
 
gotumtum's Avatar
 
Join Date: Jun 2014
Location: West Coast, New Zealand

My Support Groups:
I know that if I have too much sugar - especially before bed I get a migraine. Unfortunatley when I am unwell or stressed I tent toward sugar anyway, and sometimes I get into a permanant migraine when I am not eating right - not cool. Actually am in that situation at the mo- am trying to wean myself off the sugar again - can't do it cold turkey!
08-23-2014, 01:52 AM   #26
rollinstone
Senior Member
 
rollinstone's Avatar
I feel ya, I try eat scd paleo but sometimes I just can't help but make some toast w something sweet on it ha. It lifts the mood. Has anyone tried digesic for headaches? I find paracetamol to not do the job, and yeah Advil and codeine bad for the cd
08-30-2014, 03:33 PM   #27
Crohn2357
Senior Member
 
Crohn2357's Avatar
 
Join Date: Aug 2013

My Support Groups:
Role of magnesium, coenzyme Q10, riboflavin, and vitamin B12 in migraine prophylaxis.
http://www.ncbi.nlm.nih.gov/pubmed/15196887
http://www.google.com.tr/url?sa=t&rc...74115972,d.bGQ (Full text)
08-30-2014, 03:57 PM   #28
chuckmya
Senior Member
 
chuckmya's Avatar
How much magnesium do you take to help with migraines??
08-30-2014, 04:18 PM   #29
Crohn2357
Senior Member
 
Crohn2357's Avatar
 
Join Date: Aug 2013

My Support Groups:
200mg magnesium citrate.
09-25-2014, 01:07 AM   #30
Crohn2357
Senior Member
 
Crohn2357's Avatar
 
Join Date: Aug 2013

My Support Groups:
Do triptans make your IBD symptoms worse?
http://www.crohnsforum.com/showthread.php?t=67502
Reply

Crohn's Disease Forum » Support Forum » Migraine And Crohn's Disease Support Group
Thread Tools


All times are GMT -5. The time now is 05:22 PM.
Copyright 2006-2017 Crohnsforum.com