Well, the run turned out to be just a very slow walk but it was for 37 minutes and with my dog (it was harder for her since she has always been my marathon training partner and a walk just didn't do it for her...she will wait for me though...a good partner for certain!) and my sone who is almost 7. It was nice to hear my son recount watching me run and how he felt about my distance running and about my long illness. I was never a fast runner (5:18:00 PR) but he understood the meaning of the running and was telling me how it was the same as the struggle I am in now...kids can be so much smarter than their parents sometimes :rof:I'm glad you are able to give a run a try. Just remember to go slow and take it easy. I love working out. Fitness and health were a huge part of my life, and still are, so it was frustrating when those things were being taken from me. You will get better and get back to everything you want to do. It just takes time. Good luck! I hope the humara works. Are you taking Imuran or azamapthrine too? Sorry for not spelling meds right, I should really memorize how to spell the meds I take. Haha!
Oh, don't feel bad about sharing your success!!!! It is so good to hear that others are doing so well!Thanks. I honestly feel bad sometimes telling people that the meds are helping me so much, because I know others struggle to find something that helps. So I don't want them to get frustrated and feel mad about it. I hate putting all this crap in my body, but am glad it helps.
It seems that Imuran and Remicade success rates seem to be the best out there from the research I have read. I am a avid triathlete, well I race maybe 4/5 olympic distance events a year, so I understand wanting to get back at it. I haven't done any real miles yet, maybe 15 on the bike and 3 mile runs, but I have been able to get back to the gym four days a week and workout. It is winter in Chicago so it isn't killing me. Keep me updated with how things are. Do you have stomach cramps, lots of bathroom breaks, blood, or nighttime bathroom breaks (the worst)? I am still on pred, tapering at 25mg right now. I tried pred, Imuran, asacol after I left the hospital and was right back three weeks later. But like I said after I went on Remicade I have feeling good. I had terrible cramps, blood, nighttime breaks, 20-25 total trips a day for 7 or 8 weeks, and now 2 breaks a day (solid), no blood, no cramps, and eating normal. So it can get better. Keep me posted! Good luck!
Do you know if the time taken to work has anything to do with severity of disease or advancement of disease? I know mine is sever, advanced pancolonic CD...I am wondering if that is why I am not getting better?!?!?!BTW, if you do change to Remicade they say it takes 12 weeks or a few infusions, but mine worked in a week. I know a lot of people are the same as I was. Good luck!
Sounds similar to my experience...I was dx'd on Oct. 10, 2011 and was put on 40 mg Pred....Started Humira on Nov. 22nd...came off Pred totally, had to go back up to 20mg now waiting to see when doc wants to taper me back off...not sure he was very thrilled that I went back on to begin with but he was on vacation and I had to do something so my GP put me back on...:ywow:I'm just starting humira and I had to go straight back up to 40mg of pred because I was experiencing problems again... im slowly tapering off now.