Hi - I had a pill cam in January which failed to pass and retained in the small bowel.
I then had x-rays every couple of weeks along with loading dose if Infliximab and IV steroids in the hope that the drugs would reduce the inflammation and alow the pilcam to pass ?
It moved about a little bit - started right side, moved to the left and is now happy in the midde (kind of belly button area).
It wasnt really initially causing any problems but at Easter it caused a blockage and worsening of flaring so i am now on oral steroids as well. It keeps causing semi blockages and i get so much bloating and gurgling!!:stinks:
Anyway on Friday i went in for a colonoscopy to "try" and fish it out - the GI tried so so hard :rosette2:
No joy though :sign0085:
He had me lie on my side, then my back, then my side again - he tried balloon inflation to enable him to go further up - all to no avail:thumbdown:
Retention only occurs in 1% of Pill cams so there is not a lot of info out there on it.
My GI suggested trying a gastroscopy with an extended tube to try and fish it out from the other end but im not feeling terribly optomistic about that?
The only reason i managed to let them "try" for 1 hour was the entonox gas and air that i was sucking away on - with a gastroscopy thats not an option so i dont think i would be as compliant ? I had a gastroscopy last summer which although it only lasted 5 minutes i was gagging throughout and had to be held down!
So my question is firstly has anyone ever retained one of these ? and secondly any gut feelings (sorry couldnt resist) on what i should be asking them to do ?
:rosette2:
I then had x-rays every couple of weeks along with loading dose if Infliximab and IV steroids in the hope that the drugs would reduce the inflammation and alow the pilcam to pass ?
It moved about a little bit - started right side, moved to the left and is now happy in the midde (kind of belly button area).
It wasnt really initially causing any problems but at Easter it caused a blockage and worsening of flaring so i am now on oral steroids as well. It keeps causing semi blockages and i get so much bloating and gurgling!!:stinks:
Anyway on Friday i went in for a colonoscopy to "try" and fish it out - the GI tried so so hard :rosette2:
No joy though :sign0085:
He had me lie on my side, then my back, then my side again - he tried balloon inflation to enable him to go further up - all to no avail:thumbdown:
Retention only occurs in 1% of Pill cams so there is not a lot of info out there on it.
My GI suggested trying a gastroscopy with an extended tube to try and fish it out from the other end but im not feeling terribly optomistic about that?
The only reason i managed to let them "try" for 1 hour was the entonox gas and air that i was sucking away on - with a gastroscopy thats not an option so i dont think i would be as compliant ? I had a gastroscopy last summer which although it only lasted 5 minutes i was gagging throughout and had to be held down!
So my question is firstly has anyone ever retained one of these ? and secondly any gut feelings (sorry couldnt resist) on what i should be asking them to do ?
:rosette2: