I started another thread under the treatment section but was told people here may have some useful imput. I am very new to learning about stomas so please forgive me if some of my questions sound really obvious!
The background that I posted on the other thread was this: I've had another rectal prolapse. I saw my surgeon who is hoping he can repair this one and is booking me in for surgery to correct it.
The problem is it will just prolapse again - the surgeon was honest about this. It keeps happening (I have an underlying weakness somewhere). He said a stoma would be a last resort as it would avoid all the straining/diarrhoea putting pressure on the rectum and on the pelvic floor (I've had bladder and uterine prolapse too). He didn't want to do this yet though because I'm so young, but if this surgery isn't successful, it will be the only other option (I exhausted conserative measures years ago).
If you have a permanent stoma, is your rectum removed? Does that mean you never go to the toilet the "normal" way and so there's no pressure on your pelvic organs? If you have diarrhoea (I do) all the time from Crohn's, does it make an ostomy difficult because you have to empty it often or is it more prone to leaking and problems like that?
I've been told it will be an ileostomy rather than a colostomy - I'm not entirely sure why or if this makes a difference to how it functions. It will be permanent - again, I'm not sure why it has to be but that seems to be the case.
This won't be happening for a while: I will be having the prolapse repair surgery first and then it will depend on the outcome of that. But the impression I got from the surgeon is that the stoma will be the last resort, and it just depends how many interim repairs of the rectum and pelvic floor we decide to try before reaching that point. But my surgeon has changed his mind about what he recommends before when my condition has developed in ways that he wasn't expecting, so it all still feels quite tentative at the moment.
Also is it weird that I'm more put off by the idea of having surgery and having to be in hospital again (I know no one likes hospitals but I can't stand sitting on a ward all day!) than by actually having a stoma?
The background that I posted on the other thread was this: I've had another rectal prolapse. I saw my surgeon who is hoping he can repair this one and is booking me in for surgery to correct it.
The problem is it will just prolapse again - the surgeon was honest about this. It keeps happening (I have an underlying weakness somewhere). He said a stoma would be a last resort as it would avoid all the straining/diarrhoea putting pressure on the rectum and on the pelvic floor (I've had bladder and uterine prolapse too). He didn't want to do this yet though because I'm so young, but if this surgery isn't successful, it will be the only other option (I exhausted conserative measures years ago).
If you have a permanent stoma, is your rectum removed? Does that mean you never go to the toilet the "normal" way and so there's no pressure on your pelvic organs? If you have diarrhoea (I do) all the time from Crohn's, does it make an ostomy difficult because you have to empty it often or is it more prone to leaking and problems like that?
I've been told it will be an ileostomy rather than a colostomy - I'm not entirely sure why or if this makes a difference to how it functions. It will be permanent - again, I'm not sure why it has to be but that seems to be the case.
This won't be happening for a while: I will be having the prolapse repair surgery first and then it will depend on the outcome of that. But the impression I got from the surgeon is that the stoma will be the last resort, and it just depends how many interim repairs of the rectum and pelvic floor we decide to try before reaching that point. But my surgeon has changed his mind about what he recommends before when my condition has developed in ways that he wasn't expecting, so it all still feels quite tentative at the moment.
Also is it weird that I'm more put off by the idea of having surgery and having to be in hospital again (I know no one likes hospitals but I can't stand sitting on a ward all day!) than by actually having a stoma?