- Location
- United States
It has been a little while since I last posted. I am not doing so well though. I had a colonoscopy about 3 months ago with biopsies and it was normal. I have been having issues with intestinal pain and cramping that can at times be very bad for the last 2 years now. I also have other health issues as well. I have had testing done in the last year which includes ( stool tests, blood work, ultrasounds, MRE of small bowel and recently the colonoscopy). None of the tests showed much. my gastro doc says it is IBS likely. I just am having a hard time accepting the IBS diagnosis because my symptoms are not typical of IBS. I mean I have not had the alternating constipation and diarrhea. My main symptoms are Bad cramping pains in the lower intestines and having that " feeling" like I always gotta go( but I usually go once a day). I always feel WAY worse after I have a BM too, where with IBS I always thought most felt better afterwards. Well I don't. I also have the pain ALL the time to varying degrees, not just after I eat. And PAIN is my worst symptom. I have the cramping and sore feelings inside all the time. Heating pad helps a little, it is the only thing that helps a little without giving me all kinds of side effects. I had a 2 month period where I felt better, like pretty good. Well just yesterday out of nowhere I am bad again just like that.
I saw my gastro doc a couple weeks ago and he said there is really not much else to do. I mean he thinks doing more testing would be a waste and would likely just add to my other health issues.( I have also been battling with chronic BV and vaginal yeast issues ever since I had the colonsoscopy)so the gastro thinks I should not have anymore tests right now, my body is just too sensitive he said and cannot handle it. He then said they likely would not find anything anyhow.
But I am in pain and am scared. I mean I know lots and lots of people on here are diagnosed or should I say mis-diagnosed as having IBS later to only find out they have had crohns all along. I mean how accurate are these tests ( colonoscopies, MRE's etc..)?? I mean if they can miss the disease, then what is the point of all these expensive tests?? I am just so bummed out. I feel awful and no one has any answers for me. I mean I have many other issues as well over the last almost 10 years that I have been dealing with too. It is al getting so frustrating and it is hard to live when you are in constant pain and do not feel well 95% of the time.
I saw my gastro doc a couple weeks ago and he said there is really not much else to do. I mean he thinks doing more testing would be a waste and would likely just add to my other health issues.( I have also been battling with chronic BV and vaginal yeast issues ever since I had the colonsoscopy)so the gastro thinks I should not have anymore tests right now, my body is just too sensitive he said and cannot handle it. He then said they likely would not find anything anyhow.
But I am in pain and am scared. I mean I know lots and lots of people on here are diagnosed or should I say mis-diagnosed as having IBS later to only find out they have had crohns all along. I mean how accurate are these tests ( colonoscopies, MRE's etc..)?? I mean if they can miss the disease, then what is the point of all these expensive tests?? I am just so bummed out. I feel awful and no one has any answers for me. I mean I have many other issues as well over the last almost 10 years that I have been dealing with too. It is al getting so frustrating and it is hard to live when you are in constant pain and do not feel well 95% of the time.