Hi everyone,
I'm new to the forum and new to the disease - and took a long time getting to a diagnosis because my symptoms weren't entirely traditional and I was wondering if anyone has some insight into them because they consistently make me wonder if I really do have crohns or if I do but also with something else along for the ride.
Twitching is the main one, just in the arms, hands and legs - worse at night but at its worst you can physically see muscles just under your skin spasming back and forth.
Tingling and numbness across the body but again worse in the hands and legs.
Nausea, especially when moving the head
Absolutely absent memory and concentration, with a general fatigue
Cloudy, off-smelling urine and frequent need to go/ strong thirst
I had some of the typical symptoms occasionally, like bleeding and just prior to being on budesonide: abdominal pain after eating. I also lost about 20kg over year. Many things eased off with treatment but then when i started feeling well enough to exercise again I began drinking oat shakes (i had been avoiding gluten) and the twitching, nausea and bleeding returned.
So does, or did, anyone here suffer with the same sort of things? It would mean a hell of a lot to get some understanding of this all.
I'm new to the forum and new to the disease - and took a long time getting to a diagnosis because my symptoms weren't entirely traditional and I was wondering if anyone has some insight into them because they consistently make me wonder if I really do have crohns or if I do but also with something else along for the ride.
Twitching is the main one, just in the arms, hands and legs - worse at night but at its worst you can physically see muscles just under your skin spasming back and forth.
Tingling and numbness across the body but again worse in the hands and legs.
Nausea, especially when moving the head
Absolutely absent memory and concentration, with a general fatigue
Cloudy, off-smelling urine and frequent need to go/ strong thirst
I had some of the typical symptoms occasionally, like bleeding and just prior to being on budesonide: abdominal pain after eating. I also lost about 20kg over year. Many things eased off with treatment but then when i started feeling well enough to exercise again I began drinking oat shakes (i had been avoiding gluten) and the twitching, nausea and bleeding returned.
So does, or did, anyone here suffer with the same sort of things? It would mean a hell of a lot to get some understanding of this all.