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Interesting article about Crohn's and UC
- Thread starter kimmidwife
- Start date
DustyKat
Super Moderator
What greatly disappoints me in this article is that they perpetuate the myth that if you don’t have diarrhoea and/or blood as a presenting symptom then it isn’t IBD. :yfrown:
Counter-indicators: (Strongly counter-indicative)
Having hard stools or having normal stool texture
(Very/tendency to) infrequent stools
Dusty.
Counter-indicators: (Strongly counter-indicative)
Having hard stools or having normal stool texture
(Very/tendency to) infrequent stools
Dusty.
You know Dusty you are right! I am going to see if I can find a place to write them and get them to change that!
I just thought it was a good breakdown for those newer to Crohn's especially.
I just thought it was a good breakdown for those newer to Crohn's especially.
Thanks. I always enjoy seeing links to stuff I missed.
I have my file of "medical articles to prove my child does not have Crohn's" from my denial days following his diagnosis. One of them is from a children's hospital and it an article written for primary care providers/pediatricians who are evaluating kids for IBD. To paraphrase (from memory..might have some facts wrong), it pretty much said, IBD is very unlikely if the child doesn't wake at night for bowel movements, hasn't had significant weight loss and doesn't have diarrhea. Of course, even when flaring, my child never woke for bowel movements (even after miralax prep!), had slowed weight gain but not loss and only had loose stools with antibiotics. Yet, he has Crohn's in multiple locations.
Maybe we should all write to authors kimmidwife is going to do. How many parents suspect a problem but don't' insist on a GI referral after reading info online that reassures them their child is just fine? How many of us have children who didn't have diarrhea? Didn't have significant weight loss? Didn't have mouth ulcers? Didn't wake to use the bathroom at night? From my own scanning of kids' histories here and elsewhere, the "atypical" presentations are more "typical" for kids. Even my peditrician was shocked my son had Crohn's because he didn't lose 10 per cent of his weight, didn't have bloody diarrhea and didn't have sever pain...so even those who should know kids don't have to present that way don't know...
I have my file of "medical articles to prove my child does not have Crohn's" from my denial days following his diagnosis. One of them is from a children's hospital and it an article written for primary care providers/pediatricians who are evaluating kids for IBD. To paraphrase (from memory..might have some facts wrong), it pretty much said, IBD is very unlikely if the child doesn't wake at night for bowel movements, hasn't had significant weight loss and doesn't have diarrhea. Of course, even when flaring, my child never woke for bowel movements (even after miralax prep!), had slowed weight gain but not loss and only had loose stools with antibiotics. Yet, he has Crohn's in multiple locations.
Maybe we should all write to authors kimmidwife is going to do. How many parents suspect a problem but don't' insist on a GI referral after reading info online that reassures them their child is just fine? How many of us have children who didn't have diarrhea? Didn't have significant weight loss? Didn't have mouth ulcers? Didn't wake to use the bathroom at night? From my own scanning of kids' histories here and elsewhere, the "atypical" presentations are more "typical" for kids. Even my peditrician was shocked my son had Crohn's because he didn't lose 10 per cent of his weight, didn't have bloody diarrhea and didn't have sever pain...so even those who should know kids don't have to present that way don't know...
^^^ yeah that .
Unfortunately - stomach issues /constipation are such a common occurrence in a regular ped office - they can't send them all to a GI .
Our ped told us DS was fine just going to be a skinny kid and none of his stuff was a "real " concern.
He had rectal prolapse that was chronic
Severe abdominal pain/constipation
No weight gain (+2 years ).
Plus lots of other stuff.
Thankfully we didn't need a referral to be able to visit a GI.
Even the Gi didn't suspect crohn's at first but knew something was definitely wrong.
It took eight month to finally get a scope scheduled ( only due to rectal bleeding ) and dx crohn's .
Even then Gi was perplexed by DS presentation .
Almost three years later our Gi now councils all his fellows on crohn's that starts as constipation and uses DS as an example .
Maybe if more gi did that the perception would change .
Unfortunately - stomach issues /constipation are such a common occurrence in a regular ped office - they can't send them all to a GI .
Our ped told us DS was fine just going to be a skinny kid and none of his stuff was a "real " concern.
He had rectal prolapse that was chronic
Severe abdominal pain/constipation
No weight gain (+2 years ).
Plus lots of other stuff.
Thankfully we didn't need a referral to be able to visit a GI.
Even the Gi didn't suspect crohn's at first but knew something was definitely wrong.
It took eight month to finally get a scope scheduled ( only due to rectal bleeding ) and dx crohn's .
Even then Gi was perplexed by DS presentation .
Almost three years later our Gi now councils all his fellows on crohn's that starts as constipation and uses DS as an example .
Maybe if more gi did that the perception would change .
mlp- how obvious was the rectal prolapse?Is that something a child can have and have it go unnoticed by a parent? (I see many references to rectal prolapse on this forum.)
Same here- we didn't need a referral and we self referred. The ped wasn't opposed as sshe is very reasonable, thorough dr but didn't think it was necessary. You're right- they can't refer/scope every kid with "minor" symptoms, but I wonder if fecal calprotectin tests would pick up more kids with ibd?
Same here- we didn't need a referral and we self referred. The ped wasn't opposed as sshe is very reasonable, thorough dr but didn't think it was necessary. You're right- they can't refer/scope every kid with "minor" symptoms, but I wonder if fecal calprotectin tests would pick up more kids with ibd?
We don't know how long DS had rectal prolapse prior to telling us that is hurt . But I assume not long .
It's not something you can "miss" if you see it.
Most retract on their own but when they don't there is a lot of blood and pain.
http://emedicine.medscape.com/article/931455-overview
It's not something you can "miss" if you see it.
Most retract on their own but when they don't there is a lot of blood and pain.
http://emedicine.medscape.com/article/931455-overview
Nope you didn't miss it .
Going into the scope gi was thinking colitis due to similar articles like above .
But DS has a few non caseating epitheloid granulomas in Ti and caecum so no denying crohn's
Going into the scope gi was thinking colitis due to similar articles like above .
But DS has a few non caseating epitheloid granulomas in Ti and caecum so no denying crohn's
I agree with that Dusty, I have never had blood other than from hemorrhoids and I've had Crohns for 20 years!!
What greatly disappoints me in this article is that they perpetuate the myth that if you don’t have diarrhoea and/or blood as a presenting symptom then it isn’t IBD. :yfrown:
Counter-indicators: (Strongly counter-indicative)
Having hard stools or having normal stool texture
(Very/tendency to) infrequent stools
Dusty.
Interesting article and I have those symptoms often so I will try to drink more water! Is seltzer water considered good for hydration? Anyone have thoughts...
The only way to "fix" rectal prolapse after the age of 4 is surgery.
So every time his rectum/ sigmoid colon becomes inflamed from a crohn's flare - prolapse comes back.
We have had mixed opinions on surgery so for now we are holding off.
So every time his rectum/ sigmoid colon becomes inflamed from a crohn's flare - prolapse comes back.
We have had mixed opinions on surgery so for now we are holding off.
Indianhart,
If you are not a water drinker and if the bubbles don't bother you, my doctor told me seltzer is fine.
If you are not a water drinker and if the bubbles don't bother you, my doctor told me seltzer is fine.
Momtotwo,
Are you referring to the link I posted? It is all about Crohn's as far as I see.
Are you referring to the link I posted? It is all about Crohn's as far as I see.
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Okay, no problem. I was confused for a minute.
Yes but carbonation is not good for your bones and joints
Actually Mish that is related to cola's not plain carbonated drinks. There is an ingredient in cola that weakens bone density. Here is an article discussing this,
http://www.askdoctork.com/do-carbonated-beverages-harm-your-bones-2011093096
http://www.askdoctork.com/do-carbonated-beverages-harm-your-bones-2011093096
My son's gi says this was debunked.
lenny my doc said the same thing.
I thought Aloe Vera was a no no now. This article says you should be taking it. Just one more thing to send out to the masses... confusion!
I thought Aloe Vera was a no no now. This article says you should be taking it. Just one more thing to send out to the masses... confusion!