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After taking azathioprine is pregnancy is possible?

i am shilpi saha 4m kolkata i was diagnosed in march 2011 as a small bowel crohns disease. but my symptoms shows from 2004.

From march 2011 i am on pentsa and steroids, and probiotics .but my problem is most of the time my hemoglobin level goes down to 6 to 6.8.now my doc said to me that i have to start imuran and also he said to me that after taking this medicine i cant be pregnent due to medicine side effect is it true????

Also i want to know how long pentasa can control those symptoms. i have stricturing and lots of ulcer in my intestine.what can i do now please suggest me should i start the medicine??

i have one more question any body give me any information about good gi(crohns specialist) located at kolkata,india.have you any idea about ayurveda or yoga treatment
 
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Angrybird

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Location
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Hello and welcome to the forum.

Just to confirm do you know whether the stricturing is down to inflammation or scar tissue? I myself was on Imuran's 'sister' drug 6-mp during my pregnancy and did not have any issues, my GI doc has experience treating women with both of these during pregnancy which I think is key. I would advise that the tum be completely settled for a while before trying to conceive as you are then much less likely to flare during the pregnancy.

AB
xx
 
hi shilpi:)

I feel your main question has been answered by AB and others.

I also searched for IBD specialist but there are none, especially so in India as there are very few patients here to start with. So you have to look for very good/famous gastroentelogists. I know a few names here in Mumbai and visit some of them, but I don't know the names in Kolkata. There was a very famous GI in CMC Vellore B.Ramkrishna whose main area of research was IBD, and I tried to get an appointment with him, only to be told that he has retired in Oct 2012. However, I am planning to visit CMC Vellore anyway as they have a large colorectal surgery group as well, so will meet their GI group also that time.

You can definitely try ayurveda or yoga, but in the last two years I met atleast 50 patients of IBD in hospitals and support groups, many tried, nobody told they gained by trying with homeopathy or ayurveda.

Cheers,

Dinesh
 
hi shilpi:)

I feel your main question has been answered by AB and others.

I also searched for IBD specialist but there are none, especially so in India as there are very few patients here to start with. So you have to look for very good/famous gastroentelogists. I know a few names here in Mumbai and visit some of them, but I don't know the names in Kolkata. There was a very famous GI in CMC Vellore B.Ramkrishna whose main area of research was IBD, and I tried to get an appointment with him, only to be told that he has retired in Oct 2012. However, I am planning to visit CMC Vellore anyway as they have a large colorectal surgery group as well, so will meet their GI group also that time.

You can definitely try ayurveda or yoga, but in the last two years I met atleast 50 patients of IBD in hospitals and support groups, many tried, nobody told they gained by trying with homeopathy or ayurveda.

Cheers,

Dinesh
with doc bs ramakrishna i have an apointmnt on 22/11/11 but aftter reaching cmc vellore they told me doc was out of india and i have to vsit jnr doc but am nt stisfied wth jrdoc advise ,at that time my treatment alredy going on at chennai apollo.if you got any information about doc bs ramakrishna thn kindly infrm me
 
Hi, shilpi saha!

Are you asking if you can be pregnant after taking Imuran, or while taking Imuran?

:hug:
doc told me to start imuran .but we r planning for our baby, now doc told me that i have to start imuran immediately and also said that after taking this medicine i cant concive due to med side effect
 
Hi Shilpi, much more dangerous to foetus for Mum to have a flare of Crohns while pregnant rather than any medication for Crohns (with the exception of thalidomide and methotrexate). If you aren't in remission when you conceive, then there is two thirds chance that you will stay active (ie. not in remission) during your pregnancy which is bad for baby.

Imuran takes about 3 months to start working, would suggest starting ASAP and holding off on getting pregnant until you are in remission. Imuran very safe in pregnancy, lots of recent evidence to back that up. Your doc is using old information.

Best wishes.
 
with doc bs ramakrishna i have an apointmnt on 22/11/11 but aftter reaching cmc vellore they told me doc was out of india and i have to vsit jnr doc but am nt stisfied wth jrdoc advise ,at that time my treatment alredy going on at chennai apollo.if you got any information about doc bs ramakrishna thn kindly infrm me

Hi

I have been taking treatment from cmc velore for the past one year. I was consulting Dr. Ramakrishna till sep 2012 before his retirement. I heard that he has plans to settle down in cheenai and practice in srm hospital. I will let u know if I get any more info.
 
with doc bs ramakrishna i have an apointmnt on 22/11/11 but aftter reaching cmc vellore they told me doc was out of india and i have to vsit jnr doc but am nt stisfied wth jrdoc advise ,at that time my treatment alredy going on at chennai apollo.if you got any information about doc bs ramakrishna thn kindly infrm me
Hi Shilpi:)

Do you remember which doctor you had met at CMC Vellore? Because I am planning to visit them this information will be helpful. How satisfied you were with Chennai Apollo treatment? I heard of GI Dr. Rajkumar there who it seems has left the hospital and started his own clinic in Chennai.
 
Hi

I have been taking treatment from cmc velore for the past one year. I was consulting Dr. Ramakrishna till sep 2012 before his retirement. I heard that he has plans to settle down in cheenai and practice in srm hospital. I will let u know if I get any more info.
Hi Shalinico:)

Could you tell us how satisfied you were with Dr. Ramkrishna? Also since you have visited CMC vellore so many times, whom else you can meet for Crohns'? How are Dr. A.J.Joseph/Dr. Ebby George Simon? What is your general impression about CMC - do they conduct too many tests etc. or refer to many other doctors - how many days you should keep in hand when you visit? Have you visited Dr. Rajkumar in Chennai or Dr. Palnivel in Coimbatore?
 
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Talk to you doctor before you get pregnent I am on azoram the doc before putting me on azoram strongly adviced me againt fathering any more children. and also please understand your child will have a higher risk of crohns so you will have to be mentally prepared for that. I have a daughter it scare me knowing that there is a crohns gene somewhere in her which may make her life misserable.
 
Hi Shilpi:)

Do you remember which doctor you had met at CMC Vellore? Because I am planning to visit them this information will be helpful. How satisfied you were with Chennai Apollo treatment? I heard of GI Dr. Rajkumar there who it seems has left the hospital and started his own clinic in Chennai.
i had an appointment with doc bs ramakrishna but after reaching there from gastro dpet they told me all senior doc going for conference so i have to visit jr doc they all r student and that jr doc told me they r not sure that i have crohns disease and tey want to done all the test wich already done in chennai apollo( ct scan, capsule endoscopy) and told me it takes more than 2 wk. but when i take appointment via creditcard they told me it needs only 1wk. and i take only 1wk leave frm my ofice.i think they only want to do experiment on me because bfore going at cmc vellore i visit more than five doc from kolata and bangalore(all r dm in gastro) they all confirmed me that i have crohns disease in small intestine.

in chennai apollo dr m hariharan diogonised my disease, but each n evry mnth i have to go 4r chkup which is not posible 4r me to continue.
bfr diogonised my disease i was admit in hospital more than seven times in very reputed hospital(kolkata apollo, kolkata fortis) but they dont diogonised any thng, all same test done in kolkata apollo .
 
Hi Shalinico:)

Could you tell us how satisfied you were with Dr. Ramkrishna? Also since you have visited CMC vellore so many times, whom else you can meet for Crohns'? How are Dr. A.J.Joseph/Dr. Ebby George Simon? What is your general impression about CMC - do they conduct too many tests etc. or refer to many other doctors - how many days you should keep in hand when you visit? Have you visited Dr. Rajkumar in Chennai or Dr. Palnivel in Coimbatore?
After visiting many hospitals in chennai and coimbatore for the first time I felt am in safe hands when I consulted with Dr. Ramakrishna, he is very knowledgeable and a down to earth person, he answers all our queries with utmost patience.....After his retirement I am now consulting with Dr. Ebby who is also good, I know Dr. Joseph as well who is also equally good....there are currently more than 600 IBD patients taking treatment in CMC.....Also the surgical unit headed by Dr. Sukria Nayak have seen so many IBD cases and well experienced in this matter.....

For the first time, we have to book the appointment by phone, and from then on you can book it online....if you are going only for consultation one day is enuf and if you want to undergo any test then it may take a couple of days....You specifically ask for Dr. Ebby or Dr. Joseph, otherwise you will have to meet junior doctors. Dr. Unnikrishnan is a junior doctor who is also good...

For my surgeries, CMC took only few blood tests and an xray and they said all the test reports which I took from global hospital chennai (they referred me to CMC) would suffice.....

I have been to Gem hospital coimbatore and consulted with Dr. Khan who did a colonoscopy but was not able to diagnose my disease. Dr. Palanivel is an expert in laproscopic surgeries. I dont have much idea abt Dr. Rajkumar

Overall, I would recommend CMC Vellore storngly for anyone with IBD in India (both medical gastro and surgical gastro). It is very economical also.

Dr. Ramakrishna is available in SRM hospital, vadapalani, chennai.....I called up the reception and planning to meet him next week.....More after meeting him....

Let me know if you need any more details.
 
After visiting many hospitals in chennai and coimbatore for the first time I felt am in safe hands when I consulted with Dr. Ramakrishna, he is very knowledgeable and a down to earth person, he answers all our queries with utmost patience.....After his retirement I am now consulting with Dr. Ebby who is also good, I know Dr. Joseph as well who is also equally good....there are currently more than 600 IBD patients taking treatment in CMC.....Also the surgical unit headed by Dr. Sukria Nayak have seen so many IBD cases and well experienced in this matter.....

For the first time, we have to book the appointment by phone, and from then on you can book it online....if you are going only for consultation one day is enuf and if you want to undergo any test then it may take a couple of days....You specifically ask for Dr. Ebby or Dr. Joseph, otherwise you will have to meet junior doctors. Dr. Unnikrishnan is a junior doctor who is also good...

For my surgeries, CMC took only few blood tests and an xray and they said all the test reports which I took from global hospital chennai (they referred me to CMC) would suffice.....

I have been to Gem hospital coimbatore and consulted with Dr. Khan who did a colonoscopy but was not able to diagnose my disease. Dr. Palanivel is an expert in laproscopic surgeries. I dont have much idea abt Dr. Rajkumar

Overall, I would recommend CMC Vellore storngly for anyone with IBD in India (both medical gastro and surgical gastro). It is very economical also.

Dr. Ramakrishna is available in SRM hospital, vadapalani, chennai.....I called up the reception and planning to meet him next week.....More after meeting him....

Let me know if you need any more details.
hiiii
u r rite that bs ramakrishna one of the best ibd specialist in india . i read his all journal and paper which is written on crohns disease and thtswhy i want to visit him but my bad luck that at that time he was not present in india.kindly if u give me any phone no of srm hospital.suddenly my condition detoriate and i want to visit him in any cost:hug:
 
hiiii
u r rite that bs ramakrishna one of the best ibd specialist in india . i read his all journal and paper which is written on crohns disease and thtswhy i want to visit him but my bad luck that at that time he was not present in india.kindly if u give me any phone no of srm hospital.suddenly my condition detoriate and i want to visit him in any cost:hug:
Am sorry to hear abt ur condition, this is the number of SRM hospital(vadapalani), 044-49211455, call up the reception and bk an appt.......gud luck....
 
Am sorry to hear abt ur condition, this is the number of SRM hospital(vadapalani), 044-49211455, call up the reception and bk an appt.......gud luck....
many many many thanks from my heart , i have got appointment on 25th march. i stay in kolkata (westbengal) can u give me one more information that how to reach srm hospital from chennai airpot

please chek the aderess which one right adress?????
SRM HOSPITALS
68,Thambiah Road,
Westmambalam,
Chennai - 600 033.

Address: No.1, Jawaharlal Nehru Road, (100 feet Road, Near Vadapalani Signal), Vadapalani, Chennai – 600026 :hug:
 
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many many many thanks from my heart , i have got appointment on 25th march. i stay in kolkata (westbengal) can u give me one more information that how to reach srm hospital from chennai airpot

please chek the aderess which one right adress?????
SRM HOSPITALS
68,Thambiah Road,
Westmambalam,
Chennai - 600 033.

Address: No.1, Jawaharlal Nehru Road, (100 feet Road, Near Vadapalani Signal), Vadapalani, Chennai – 600026 :hug:
You are most welcome and happy to know that u r going to meet up with Dr. BRS soon....He is consulting in vadapalani office only, but he visits katankulathur SRM hospital frequently, u beter call up the number which I gave before two days of ur appt and confirm in which location Dr. Ramakrishna will be available on 25th march.....I tried to get Dr's direct number yesterday but cudnt. Wherever he is u bk a call taxi from chennai airport and reach his location...all the best....
 
Seeing all the enthusiasm I am also changing my travel plans. I was initially planning for a week at CMC in the 1st or 2nd week of April, now I think I will try mumbai to chennai, meet Dr. Ramakrishna, then to vellore (just 3 hr by bus) and meet doctors from both gastro and colorectal surgery groups, back to mumbai. If I get all three appointments in a single week shd not still take more than 6/7 days:dance:

So my request to both of you, keep posting the developments, especially the feedback after meeting him.
 
hi shalinico:)

thanks a ton for all the info, u seem to understand all the questions we might have. I just now saw your previous posts, our case is nearly similar, I just had an year of remission after detection which you did not get. I found that you tried homeopathy and ayurveda, did you make any serious effort finally with ayurveda? If yes how was the experience?
 
Also the surgical unit headed by Dr. Sukria Nayak have seen so many IBD cases and well experienced in this matter.....

You specifically ask for Dr. Ebby or Dr. Joseph

Let me know if you need any more details.
I am planning to take an app with Dr. Ebby then, he is also the only one who had replied to one of the many mails I had sent to their gastro and surgical groups.

About surgery I am in bit of doubt, basically what I understood from the net is they have so big a gastro surgery group that they have divided it in three parts - "upper GI surgery" group (stomach/liver/pancreas - none of our concern), "abdominal wall and intestine surgery" group, which is headed by your Dr. Sukria Nayak, and "colorectal surgery" headed by Dr. Benjamin Perakath. Ideally your operation should have been done by the colorectal surgery group, as they should remove colon, form J pouch etc.

Since you seem to have done your homework well let me ask, do you know about the skills of Dr. Benjamin Perakath or Dr. Mark Ranjan Jessudasan or any others name in the colorectal surgery group? Had Dr. BSR suggested Dr. Sukriya Nayak? Ofcourse I understand that there is no clear difference between the area of work of these two groups.
 
many many many thanks from my heart , i have got appointment on 25th march. i stay in kolkata (westbengal) can u give me one more information that how to reach srm hospital from chennai airpot

please chek the aderess which one right adress?????
SRM HOSPITALS
68,Thambiah Road,
Westmambalam,
Chennai - 600 033.

Address: No.1, Jawaharlal Nehru Road, (100 feet Road, Near Vadapalani Signal), Vadapalani, Chennai – 600026 :hug:
Hey shilpi, as u r coming only for consultation, u carry all ur test reports when u come for ur appt
 
I am planning to take an app with Dr. Ebby then, he is also the only one who had replied to one of the many mails I had sent to their gastro and surgical groups.

About surgery I am in bit of doubt, basically what I understood from the net is they have so big a gastro surgery group that they have divided it in three parts - "upper GI surgery" group (stomach/liver/pancreas - none of our concern), "abdominal wall and intestine surgery" group, which is headed by your Dr. Sukria Nayak, and "colorectal surgery" headed by Dr. Benjamin Perakath. Ideally your operation should have been done by the colorectal surgery group, as they should remove colon, form J pouch etc.

Since you seem to have done your homework well let me ask, do you know about the skills of Dr. Benjamin Perakath or Dr. Mark Ranjan Jessudasan or any others name in the colorectal surgery group? Had Dr. BSR suggested Dr. Sukriya Nayak? Ofcourse I understand that there is no clear difference between the area of work of these two groups.
Sounds like a good plan......And rgding the two surgical groups, I don't have much idea abt colorectal surgery doctors. .....Dr. BRS tried conservative method for thee days as I didn't show any improvement, surgery was planned, and I was shifted from gastro ward to surgical ward....and Dr. Sukria Nayak and team took over, as far as I know Dr. Nayak's team handles IBD surgical cases......you can double check with CMC when u bk an appt...

Monday afternoon and Thursday morning - Surgical gastro OPD
Tuesday morning and Friday morning (this will go till evening) - medical gastro OPD
Wednesday - theatre day
 
d p
hi shalinico:)

thanks a ton for all the info, u seem to understand all the questions we might have. I just now saw your previous posts, our case is nearly similar, I just had an year of remission after detection which you did not get. I found that you tried homeopathy and ayurveda, did you make any serious effort finally with ayurveda? If yes how was the experience?
Actually I tried ayurveda and even siddha even before I was diagnosed with crohn's disease with just some symptoms, I think it worsened my condition with no improvement. In gem hospital my first colonoscopy was done and khan diagnosed it as active colitis....as I didn't respond to those medicines, I tried homeopathy and failed again....in gem hospital reports only part of my descending colon had problems, but just within 8 monyths I underwent ileostomy as my colon was distended and even my transverse and ascending colon was out as I had psedupolyps
 
d p

Actually I tried ayurveda and even siddha even before I was diagnosed with crohn's disease with just some symptoms, I think it worsened my condition with no improvement. In gem hospital my first colonoscopy was done and khan diagnosed it as active colitis....as I didn't respond to those medicines, I tried homeopathy and failed again....in gem hospital reports only part of my descending colon had problems, but just within 8 monyths I underwent ileostomy as my colon was distended and even my transverse and ascending colon was out as I had psedupolyps
So do you have a J pouch now? If yes how is the experience? I am asking this because removing colon is one thing but J pouch needs better skill and the ones who have done it with a reputed surgeon have reported better results. For me both options are still open but doctors are saying maybe we should not go for the J pouch as it is better to avoid it for patients of fistulating CD. But then, my fistula is not the naturally formed perianal ones, it is enterocutaneous and it formed because there was already a defect in the abdominal wall because of a previous surgery. Therefore I want to consult the surgeons also at CMC.
 
So do you have a J pouch now? If yes how is the experience? I am asking this because removing colon is one thing but J pouch needs better skill and the ones who have done it with a reputed surgeon have reported better results. For me both options are still open but doctors are saying maybe we should not go for the J pouch as it is better to avoid it for patients of fistulating CD. But then, my fistula is not the naturally formed perianal ones, it is enterocutaneous and it formed because there was already a defect in the abdominal wall because of a previous surgery. Therefore I want to consult the surgeons also at CMC.
During my ileostomy surgery, doctors removed my ascending, transverse and part of my descending colon, i still have my sigmoid and part of descending colon, I was having a stoma for 3 months, got it reversed 5 months back. Better you book an appt with the CMC surgeons as well and discuss with them....they will be giving you the right directions....
 
hiii shalinico and DD2020
i thik both of u have crohns at large intestine but my case is difrnt, my crohns at small intestine(jejunal ).many days i have to intake only liquid food due to my stricturing in jejunal.living with crohns really horrible no one understand what i am feling each n evry day.
any one of u taking fish oil or omega 3 supliment .after visiting bs ramakrishna i want to visit patanjali (ramdev baba) bcause i start to take alovera juice in evry morning it realy help me to improve my digesion power
 
hiii shalinico and DD2020
i thik both of u have crohns at large intestine but my case is difrnt, my crohns at small intestine(jejunal ).many days i have to intake only liquid food due to my stricturing in jejunal.living with crohns really horrible no one understand what i am feling each n evry day.
any one of u taking fish oil or omega 3 supliment .after visiting bs ramakrishna i want to visit patanjali (ramdev baba) bcause i start to take alovera juice in evry morning it realy help me to improve my digesion power
Hmmmm......even I had strictures and I was throwing up even liquid, that is y I had back to back surgeries.......I was only on IV for more than a week as my albumin was too low thwt I was nt the right candidate for even surgery.....


Have soft foods like egg, rice and drink some protein drink like peptamin......even if u take spinach, cook it and blend nicely b4 consumption....

Yes I take seacod tablets daily along with probiotic yakhult....
 
So shalinico did u meet Dr. Ramakrishna and how did it go?
Hi DD2020 and Shilpi,

Yes.....I met Dr. BRS today and as always he answered all my queries with utmost patience ...our discussion went on for one hour...he reviewed my latest blood test report and asked me to continue the same medicines....I told him abt our crohns forum and informed him that u guys will b visiting him shortly.....

I asked him abt Dr. Benjamin, he said when I underwent my first emergency surgery Dr. Benjamin wud have been out of station and that's y Dr. Nayak took over, also he said Dr. Nayak acts very fast whichwas needed in my case
 
Hi DD2020 and Shilpi,

Yes.....I met Dr. BRS today and as always he answered all my queries with utmost patience ...our discussion went on for one hour...he reviewed my latest blood test report and asked me to continue the same medicines....I told him abt our crohns forum and informed him that u guys will b visiting him shortly.....

I asked him abt Dr. Benjamin, he said when I underwent my first emergency surgery Dr. Benjamin wud have been out of station and that's y Dr. Nayak took over, also he said Dr. Nayak acts very fast whichwas needed in my case
hiii shalinico
before join this forum most of the time i feel dpresed and frustrated. u bring a light of hope in my life.i think god send u at rigt time for helping me .once again lots of thanks & wish u gud luck .i am so excited to visit dr bsramakrishna in few days.:ghug:
 
Hi DD2020 and Shilpi,

Yes.....I met Dr. BRS today and as always he answered all my queries with utmost patience ...our discussion went on for one hour...he reviewed my latest blood test report and asked me to continue the same medicines....I told him abt our crohns forum and informed him that u guys will b visiting him shortly.....

I asked him abt Dr. Benjamin, he said when I underwent my first emergency surgery Dr. Benjamin wud have been out of station and that's y Dr. Nayak took over, also he said Dr. Nayak acts very fast which was needed in my case
Dr. BSR is seeing patients on which days of the week? Was it crowdy there in SRM? I tried calling at morning and evening, came to know only during 10:30-4:30 you can take an appointment. Mobile not allowed in office here, so can take that appointment tomorrow (Sat) maybe. Also, Dr. Ebby is a busy man it seems, April appointments are nearly full except 16/4, 19/4 and 26/4. I also have some engagements in April, so finding it slightly difficult to make a plan.

After search I found Dr. Benjamin/Dr. Jesudasson and Dr. Nayak all were in the same group colorectal surgery even in 2011, maybe it became so big they created a sub group out of it. So, you were in safe hands, he is basically a colorectal surgeon only.
 
Dr. BSR is seeing patients on which days of the week? Was it crowdy there in SRM? I tried calling at morning and evening, came to know only during 10:30-4:30 you can take an appointment. Mobile not allowed in office here, so can take that appointment tomorrow (Sat) maybe. Also, Dr. Ebby is a busy man it seems, April appointments are nearly full except 16/4, 19/4 and 26/4. I also have some engagements in April, so finding it slightly difficult to make a plan.

After search I found Dr. Benjamin/Dr. Jesudasson and Dr. Nayak all were in the same group colorectal surgery even in 2011, maybe it became so big they created a sub group out of it. So, you were in safe hands, he is basically a colorectal surgeon only.
Hi Dinesh
I think he will be available on all weekdays in vadapalani, if at al he visits katankulathur srm, he said he will b available in the afternoon in vadapalani srm....anywayz better chk out the reception....if u tell me when u want 2 meet him, I can bk an appt for u...

Btw Srm is not at all crowdy, just opposite to cmc, he started doing consultation only frm march 1st, so many r yet to know....one question 4 u.....if u r consulting with Dr.BRS, y u want to meet Dr.Ebby as well.....y am asking bcoz it was Dr. Ebby who told me that Dr. BRS is planning to settle down in chennai and we can meet him instead of coming all the way 2 vellore...but if u want to meet the surgeons u have to goto cmc...
 
hiii shalinico
before join this forum most of the time i feel dpresed and frustrated. u bring a light of hope in my life.i think god send u at rigt time for helping me .once again lots of thanks & wish u gud luck .i am so excited to visit dr bsramakrishna in few days.:ghug:
Hey come on.....I can understand what u r going thru.....acceptance is the key.....once u accept it u will find a way to live with this disease....anywayz am glad that u r going 2 meet up Dr. BRS soon, let me know how it goes...


Cheers
Shalini
 
Hi Dinesh
I think he will be available on all weekdays in vadapalani, if at al he visits katankulathur srm, he said he will b available in the afternoon in vadapalani srm....anywayz better chk out the reception....if u tell me when u want 2 meet him, I can bk an appt for u...

Btw Srm is not at all crowdy, just opposite to cmc, he started doing consultation only frm march 1st, so many r yet to know....one question 4 u.....if u r consulting with Dr.BRS, y u want to meet Dr.Ebby as well.....y am asking bcoz it was Dr. Ebby who told me that Dr. BRS is planning to settle down in chennai and we can meet him instead of coming all the way 2 vellore...but if u want to meet the surgeons u have to goto cmc...
Very right, I want to meet the surgeons at CMC to take their opinion and mainly to explore the possibility of doing the next phase of the surgery there, therefore I only gain if I meet Dr. BSR and Dr. Ebby also, as it will just take 1 more day and 20% more budget for this medical tour:). Previously I found that if two or more doctors say the same thing, you become more confident. And sometimes a new doctor, however junior he is, tells something that works. Assuming I don't have to make much extra effort, I prefer meeting more.

I was able to talk to SRM staff, basically they told you can come on any weekdays 10am-3pm, but we should call 2-3 days before and confirm whether he will be available as you have rightly suggested.
 
Very right, I want to meet the surgeons at CMC to take their opinion and mainly to explore the possibility of doing the next phase of the surgery there, therefore I only gain if I meet Dr. BSR and Dr. Ebby also, as it will just take 1 more day and 20% more budget for this medical tour:). Previously I found that if two or more doctors say the same thing, you become more confident. And sometimes a new doctor, however junior he is, tells something that works. Assuming I don't have to make much extra effort, I prefer meeting more.

I was able to talk to SRM staff, basically they told you can come on any weekdays 10am-3pm, but we should call 2-3 days before and confirm whether he will be available as you have rightly suggested.
Medical tour!!! :ylol: if they say the same thing u will b more confident, but if they say two different things u will b more confused, but as far as i know both these doctors follow a conservative approach, out of 600 IBD patients in CMC for only two remicade has been administered so far, whereas diet is concerned, Dr. Ebby advises low fibre diet, even bananas is a complete no no, whereas Dr. BRS says u can eat anything but don't skip medicines even once...

Anywayz keep us updated on ur medical tour......good luck...:)
 
hiii shalinico
before join this forum most of the time i feel dpresed and frustrated. u bring a light of hope in my life.i think god send u at rigt time for helping me .once again lots of thanks & wish u gud luck .i am so excited to visit dr bsramakrishna in few days.:ghug:
Hey shilpi, how was ur meeting with Dr. BRS?
 
Yes shilpi tell us how did it go. Do you want to add anything to your review of the doctor you posted before meeting him?:smile:
 
Yes shilpi tell us how did it go. Do you want to add anything to your review of the doctor you posted before meeting him?:smile:
hii shalini and dd20
yesterday i came 4m chennai,finally i meet with dr bs ramakrishna.he give answ ofall my quiresand we talk more than one hour,now he prescribed me azathioprine i fel vry nervous bcause this med have lots of side effcect and doc told me that this med cause leaucomia (blood cancer) can be formed in my blood but i have to take this med. he also told me abt remicade but it vry costly i cant afford.any one of u know abt any medical insurance who gives any coverage in remicade.
 
hii shalini and dd20
yesterday i came 4m chennai,finally i meet with dr bs ramakrishna.he give answ ofall my quiresand we talk more than one hour,now he prescribed me azathioprine i fel vry nervous bcause this med have lots of side effcect and doc told me that this med cause leaucomia (blood cancer) can be formed in my blood but i have to take this med. he also told me abt remicade but it vry costly i cant afford.any one of u know abt any medical insurance who gives any coverage in remicade.
No idea about medical insurance. Yes before we had this disease, if we had made a comprehensive medical insurance, it would have benefited us. Now, after knowing that we will be needing 1 infusion of remicade every 8 weeks, will any company agree to insure us - I am not sure. Probably you should start a new thread in the 'general ibd discussion' or 'remicade' forum asking others about it.
 
hii shalini and dd20
yesterday i came 4m chennai,finally i meet with dr bs ramakrishna.he give answ ofall my quiresand we talk more than one hour,now he prescribed me azathioprine i fel vry nervous bcause this med have lots of side effcect and doc told me that this med cause leaucomia (blood cancer) can be formed in my blood but i have to take this med. he also told me abt remicade but it vry costly i cant afford.any one of u know abt any medical insurance who gives any coverage in remicade.
Glad to know that u met Dr. BRS...what is the dosage of azathioprine he had advised for u? As its an immunosuppressant, we are prone to such diseases, so we have to eat food that builds our immunity....am surprised to hear that Dr. BRS recommended remicade for u....as far as I know him....he is so conservative in his approach...As dinesh pointed out its not easy to get a medical insurance with our current health issues, anywayz try ur luck.....


Btw did u mention to Dr. BRS abt this crohn's forum? I read ur review on Dr. BRS...gud one....
 
Glad to know that u met Dr. BRS...what is the dosage of azathioprine he had advised for u? As its an immunosuppressant, we are prone to such diseases, so we have to eat food that builds our immunity....am surprised to hear that Dr. BRS recommended remicade for u....as far as I know him....he is so conservative in his approach...As dinesh pointed out its not easy to get a medical insurance with our current health issues, anywayz try ur luck.....


Btw did u mention to Dr. BRS abt this crohn's forum? I read ur review on Dr. BRS...gud one....
yes itold him about crohnsforum and also i add his srm adress in this forum .i informed him .i asked him that in mywhole life any time i havestart remicade then he told me yes but he also said that it is so costly that he will try other medicine,in kolkata doc recomend me to start remicade,my condn more critical bcause i hve crohns at small inestine now he told me strictly follow diet now icant eat any green vegitable and fruits what med u r taking now???
 
yes itold him about crohnsforum and also i add his srm adress in this forum .i informed him .i asked him that in mywhole life any time i havestart remicade then he told me yes but he also said that it is so costly that he will try other medicine,in kolkata doc recomend me to start remicade,my condn more critical bcause i hve crohns at small inestine now he told me strictly follow diet now icant eat any green vegitable and fruits what med u r taking now???
At some stage you have to start the medicines you have not tried yet, basically there are five categories:

1) masacol/pentasa: the bread and butter medicine for IBD, less side effects. You might already be taking this.

2) azoran/imuran/6mp: it has moderate side effects but works for many.

3) steroids/prednisolone: max side effects, but used during frare-ups/critical conditions, used also as a maintenance dose of 5mg/10mg max

4) biologics/infliximab/remicade/adalimumab/humira: moderate side effects, costly

5) less tried ones/LDN: doctors hesitate to prescribe, but has worked for many

If you don't try a medicine even though you are in a flare, later on sometimes you wonder you hesitated for too long. For example, even though I was in a severe flare for five long months and doctors had strongly suggested to try remicade, I hesitated for too long and a time came when surgery was the only option. Sometimes I wonder if I had tried remicade whether that could have been avoided. Some of the damages to your intestine is irreversible.

When many doctors are prescribing you azoran, you should consider trying out that first. But if they have suggested 100mg, start with 50mg, be on it for atleast 15 days and then increase it to 100mg. It takes 15 days for it to start working to some extent and 2 months to fully show its effect, so don't be impatient if first few weeks don't produce results.
 
In fact over the net I am exploring LDN or low dose Naltrexone a bit - I will ask my doctors here/CMC/Dr.BSR - what they think about it - problem is, it is not an approved medicine yet and therefore not many doctors are prescribing.
 
yes itold him about crohnsforum and also i add his srm adress in this forum .i informed him .i asked him that in mywhole life any time i havestart remicade then he told me yes but he also said that it is so costly that he will try other medicine,in kolkata doc recomend me to start remicade,my condn more critical bcause i hve crohns at small inestine now he told me strictly follow diet now icant eat any green vegitable and fruits what med u r taking now???
Yes, give a second thought abt remicade as it is very expensive and with equal side effects, but if nothing else works for u, u can take it as the last weapon,

For me, after trying high dosage of azathioprine and pentasa my condition didn't improve, and since I had a distended bowel I underwent emergency surgery....we discussed with my global hospital doctors and cmc doctors abt remicade but they said for my case surgery is the only option.

Currently am on pentasa and azathioprine 50 mg
 
In fact over the net I am exploring LDN or low dose Naltrexone a bit - I will ask my doctors here/CMC/Dr.BSR - what they think about it - problem is, it is not an approved medicine yet and therefore not many doctors are prescribing.
During my last check up, I discussed with Dr. Nayak and Dr. Ebby abt all these, both of them smiled and advised me the same 'too much info. is bad' , ( not sure y they didnt comment on these more)and said those medicines have more side effects and since I underwent surgery already they asked me to just continue with the maintenance dosage of pentasa and azathioprine...
 
During my last check up, I discussed with Dr. Nayak and Dr. Ebby abt all these, both of them smiled and advised me the same 'too much info. is bad' , ( not sure y they didnt comment on these more)and said those medicines have more side effects and since I underwent surgery already they asked me to just continue with the maintenance dosage of pentasa and azathioprine...
hiii shalini and dd20
dr brs told me that if i start remicade it cant be stoped ,also he told me i have lots of blockage and ulcer in my small intestine in future i need surgery but that would be complicated bcause small inestine is the main part of our body where nutrition absorb.he told me azoran can be used maxm 5yrs .now i started with minm dose 50mg if my body can take then he will increased dose.ech n evry wk i have to do my blood test .i told him that u give me his new address .my age now 26 i dont know wht hapn after 5 yrs .
 
hiii shalini and dd20
dr brs told me that if i start remicade it cant be stoped ,also he told me i have lots of blockage and ulcer in my small intestine in future i need surgery but that would be complicated bcause small inestine is the main part of our body where nutrition absorb.he told me azoran can be used maxm 5yrs .now i started with minm dose 50mg if my body can take then he will increased dose.ech n evry wk i have to do my blood test .i told him that u give me his new address .my age now 26 i dont know wht hapn after 5 yrs .
I can understand ur situation.....did u discuss ayurveda with Dr. BRS? I discussed with him and he said it may cure but he is not sure......many of our forum friends like vnag have tried ayurveda,I discussed recently with coimbatore ayurveda pharmacy doctor and he said if they haven't tried remicade they can cure crohns in ayurveda, am nt sure of the success rate but even Dr. BRS said ayurveda has no side effects...u can explore this as well....
 
During my last check up, I discussed with Dr. Nayak and Dr. Ebby abt all these, both of them smiled and advised me the same 'too much info. is bad' , ( not sure y they didnt comment on these more)and said those medicines have more side effects and since I underwent surgery already they asked me to just continue with the maintenance dosage of pentasa and azathioprine...
LDN seems to have less side effects than aza and remi, in this forum itself there is an LDN subforum. I will ask the cmc doctors definitely about it, just to see whether they reply the same again or they are now aware of it. What I found is that the senior doctors are hesitant to try out new things, while the junior doctors (not the RMOs) are more aggressive.
 
I can understand ur situation.....did u discuss ayurveda with Dr. BRS? I discussed with him and he said it may cure but he is not sure......many of our forum friends like vnag have tried ayurveda,I discussed recently with coimbatore ayurveda pharmacy doctor and he said if they haven't tried remicade they can cure crohns in ayurveda, am nt sure of the success rate but even Dr. BRS said ayurveda has no side effects...u can explore this as well....
hii shalini
i hear that in kerala there is a vry good aurveda treatment centre and they doing reserch on crohns
 
hii shalini
i hear that in kerala there is a vry good aurveda treatment centre and they doing reserch on crohns
Basically am from palakkad, kerala but settled in chennai. I contacted an ayurvedic doctor by name james vaidyan from cochin. He said crohns is 100% curable, google, find out his email id and send him an email.

I tried homeopathy, kotakkal ayurveda and even siddha before I was diagnosed with crohns, I mean with just my symptoms they prescribed me some medicines and I failed. With 3 back to back surgeries I don't want to try anything new and complicate more. But with ur condition, if I were you, I wud explore other possibilities b4 trying remicade...
 
LDN seems to have less side effects than aza and remi, in this forum itself there is an LDN subforum. I will ask the cmc doctors definitely about it, just to see whether they reply the same again or they are now aware of it. What I found is that the senior doctors are hesitant to try out new things, while the junior doctors (not the RMOs) are more aggressive.
Yes u r right, plz ask them about these and let us know their say...
 
hiiii
shalini
how r u. last 3 days i was living in a hell. so pain in abdomain no medicine can stop my pain .now it stable.
Oh....sorry to hear ....it happens sometimes, did u eat something new? Maintain a food diary which will b useful for u.....for me heat pad was providing some relief from abdominal pain...
 
Oh....sorry to hear ....it happens sometimes, did u eat something new? Maintain a food diary which will b useful for u.....for me heat pad was providing some relief from abdominal pain...
i think home made curd which i make evry day that day curd was not formed and it look like milk no like curd by mistaking that one pain started. after starting azoron 1st blood test done to day all values shows normal excpt wbc(vry high) is it normal have u fce same problem
 
i think home made curd which i make evry day that day curd was not formed and it look like milk no like curd by mistaking that one pain started. after starting azoron 1st blood test done to day all values shows normal excpt wbc(vry high) is it normal have u fce same problem
Hmmm.....ok.....even I had raised wbc count before my surgery.....send ur test report to Dr. BRS and get his opinion...
 
Hmmm.....ok.....even I had raised wbc count before my surgery.....send ur test report to Dr. BRS and get his opinion...
hiiii shalini
i send him all reports and present symptoms he told me immediate stop azoran and budez cr he suspect that:i have jaundice today i have done my lft test tomorrow i will send him lft report when u going to meet dr brs??? cry:
 
hiiii shalini
i send him all reports and present symptoms he told me immediate stop azoran and budez cr he suspect that:i have jaundice today i have done my lft test tomorrow i will send him lft report when u going to meet dr brs??? cry:
Oh god, what made Dr. BRS to suspect that u might have jaundice....I just hope ur lft test report to be fine....keep us posted....don't worry...

I have bked my cmc appt with both gastro and surgeons on june 3rd and 4th, but that coincides with my kid's school reopening day, so am planning to prepone the appt...

Dinesh, do u have any idea on how to prepone the appt?
 
Oh god, what made Dr. BRS to suspect that u might have jaundice....I just hope ur lft test report to be fine....keep us posted....don't worry...

I have bked my cmc appt with both gastro and surgeons on june 3rd and 4th, but that coincides with my kid's school reopening day, so am planning to prepone the appt...

Dinesh, do u have any idea on how to prepone the appt?
hii shalini after startig azoran my urine color deep yellow and red rashes all over the body thas why dr brs suspect
 
LDN seems to have less side effects than aza and remi, in this forum itself there is an LDN subforum. I will ask the cmc doctors definitely about it, just to see whether they reply the same again or they are now aware of it. What I found is that the senior doctors are hesitant to try out new things, while the junior doctors (not the RMOs) are more aggressive.
Hey dinesh,

Hope all is well with u, long time no see..
 
Oh god, what made Dr. BRS to suspect that u might have jaundice....I just hope ur lft test report to be fine....keep us posted....don't worry...

I have bked my cmc appt with both gastro and surgeons on june 3rd and 4th, but that coincides with my kid's school reopening day, so am planning to prepone the appt...

Dinesh, do u have any idea on how to prepone the appt?
Must be possible but no idea about charges you have to contact at the call centre no. between 7am - 9pm. For cancellation charges are 50%.
 
Hey dinesh,

Hope all is well with u, long time no see..
Well, it was not due to something like I tried to experiment with LDN myself:lol2: or something related to Crohn's'

Lot of things coincided at home and office, like daughters health/pressure at work etc. all coming together. Most irritating was my MoBo has gone bad, so took a bit of time to get it tested and also to decide new config/what all to buy, and this time the choice of shop turned out to be a bad one. Had to replace the HDD the same day, now since yesterday huge bursting sound from the pc, maybe the SMPS also needs replacement, can't find any burnt capacitors anywhere, no smell, pc running properly most of the time tho' blah blah :angry-banghead:
 
hiii shalini
yesterday my lft report send him and dr brs told me v ican start azoran bcause my bilurubin lvel normal but other all report abnormal values he tod me that it ma be due to crohns disease
hmm.. so BSR is available for these after visit communications:beerchug:, good to know because from here it might not be possible to visit regularly. You sent the reports by post or scanned and mailed?
 
hiii shalini
yesterday my lft report send him and dr brs told me v ican start azoran bcause my bilurubin lvel normal but other all report abnormal values he tod me that it ma be due to crohns disease
Hi Shilpi:ybiggrin:

good to know that you are doing well now. Did you find any improvements after you have started azoran? ofcourse sometime it takes a while for the azoran to fully start working, something like 2 months.
 
itching is a very common side effect of aza (just google about it), first time i did not experience any, this time it was really itching (read a thread started by me about it) altho' I don't have rashes. Now the itching has come down considerably.

http://www.crohnsforum.com/showthread.php?t=48966
hi dinesh
with azoran iam also taking steroids ,i send him all report and my condition via mail,dr brs is very serious with his patient bcuse after sendig him any mail he always reply within a that day
 
Sp
hi dinesh
with azoran iam also taking steroids ,i send him all report and my condition via mail,dr brs is very serious with his patient bcuse after sendig him any mail he always reply within a that day
Not only email, when in cmc I used to call his direct number and was consulting with him over the phone also, once I was admitted in PSG hospital coimbatore and he guided his juniors over there thru phone for my treatment....

This time in SRM I forgot to ask his direct number, but last time I asked Dr. Ebby and he said he is fine with emails only.


Dr. BRS is sincere and very straight forward also, once I had bked an OPD appt, but my bowel was distended and I was screaming in pain....we asked him if we can meet him immdly eventhough our appt was in the afternoon, but he said if u can't wait goto the casualty but here it is only FCFS........eventhough I felt very disappted with that later on I felt that he has done the rigut thing...
 
hi dinesh
with azoran iam also taking steroids ,i send him all report and my condition via mail,dr brs is very serious with his patient bcuse after sendig him any mail he always reply within a that day
Good to know:luigi:, because we will be needing it.

Are you on 5mg or 10mg steroids?
 
Sp

Not only email, when in cmc I used to call his direct number and was consulting with him over the phone also, once I was admitted in PSG hospital coimbatore and he guided his juniors over there thru phone for my treatment....

This time in SRM I forgot to ask his direct number, but last time I asked Dr. Ebby and he said he is fine with emails only.


Dr. BRS is sincere and very straight forward also, once I had bked an OPD appt, but my bowel was distended and I was screaming in pain....we asked him if we can meet him immdly eventhough our appt was in the afternoon, but he said if u can't wait goto the casualty but here it is only FCFS........eventhough I felt very disappted with that later on I felt that he has done the rigut thing...
Glad to hear, will collect their ids and phone no.s:emot-dance:
 
My 2 cents (based on my experience) on some of the topics I read in this thread:

Azathioprine:
Is an immune-suppresant. It has a lot of side effects. Hence I opted out of it when my doctor offered it to me.

LDN, Remicade, Humira:
Is a very good alternative for conventional drugs like Remicade and has fewer side effects and is less than 1/10th the cost of Remicade and/or Humira.

LDN is actually prescribed for drug addicts who are getting treated for their addiction. In the USA, LDN is not approved for Crohns and hence doctor's do not prescribe it even if a patient asks for it. (apparently there is less money in LDN compared to Remicade and hence no company wants to do a trial study to get LDN approved for crohns). Call it Capitalism!!


Per my gastroenterologist, Humira is a better alternative to Remicade as the molecules in this are more closer to human molecules. Remicade apparently uses rat molecules.

Depending on the person, the effects of Remicade may not last the full 90 days (the symptoms return 5 - 7 days before the next dose). Humira is taken once every 2 weeks and by missing this by a day or 2 the symptoms don't return that fast. However, they both are immuno-suppresants. Last time I checked, Remicade is available in India (costly roughly 1 lakh a month) and Humira is not available.

home made curd:
Curd might cause acidity. In my case it did and my ayurveda doctor suggested to avoid curd and take buttermilk instead with cumin seeds and curry leaf. It is good for healing the stomach.

Stomach pain (quick remedy):
I get flareups 3 - 4 times at night. I drink cold goat's milk and the pain subsides in 5 minutes flat!! (no other acidity tablet or medicine worked for me that fast). I have been doing this for 3 - 4 years now. Alternately, drink 'Ensure' which is a nutritional supplement. Doctor suggested buttermilk for the flareup but for me, milk has been more effective.

CMC:
I did hear about CMC doing a lot of study on Crohns but have not visited it firsthand.

My personal suggestion:
I would avoid surgery at all possible costs... 've been having this condition since 2008 but have not had a surgery so far (touch wood). In India, the knowledge about Crohns is limited. So, doctors opt for a colon surgery as an alternate way to keep things in check for another 1 or 2 years because there are no other options in conventional medical field. However, after that since you are really not healing anything (other than just removing the diseased portion of your colon), the inflammation will develop on other parts of the colon. Try Ayurveda if you can! Following the right diet can do wonders. Cheers.
 
My 2 cents (based on my experience) on some of the topics I read in this thread:

Azathioprine:
Is an immune-suppresant. It has a lot of side effects. Hence I opted out of it when my doctor offered it to me.

LDN, Remicade, Humira:
Is a very good alternative for conventional drugs like Remicade and has fewer side effects and is less than 1/10th the cost of Remicade and/or Humira.

LDN is actually prescribed for drug addicts who are getting treated for their addiction. In the USA, LDN is not approved for Crohns and hence doctor's do not prescribe it even if a patient asks for it. (apparently there is less money in LDN compared to Remicade and hence no company wants to do a trial study to get LDN approved for crohns). Call it Capitalism!!


Per my gastroenterologist, Humira is a better alternative to Remicade as the molecules in this are more closer to human molecules. Remicade apparently uses rat molecules.

Depending on the person, the effects of Remicade may not last the full 90 days (the symptoms return 5 - 7 days before the next dose). Humira is taken once every 2 weeks and by missing this by a day or 2 the symptoms don't return that fast. However, they both are immuno-suppresants. Last time I checked, Remicade is available in India (costly roughly 1 lakh a month) and Humira is not available.

home made curd:
Curd might cause acidity. In my case it did and my ayurveda doctor suggested to avoid curd and take buttermilk instead with cumin seeds and curry leaf. It is good for healing the stomach.

Stomach pain (quick remedy):
I get flareups 3 - 4 times at night. I drink cold goat's milk and the pain subsides in 5 minutes flat!! (no other acidity tablet or medicine worked for me that fast). I have been doing this for 3 - 4 years now. Alternately, drink 'Ensure' which is a nutritional supplement. Doctor suggested buttermilk for the flareup but for me, milk has been more effective.

CMC:
I did hear about CMC doing a lot of study on Crohns but have not visited it firsthand.

My personal suggestion:
I would avoid surgery at all possible costs... 've been having this condition since 2008 but have not had a surgery so far (touch wood). In India, the knowledge about Crohns is limited. So, doctors opt for a colon surgery as an alternate way to keep things in check for another 1 or 2 years because there are no other options in conventional medical field. However, after that since you are really not healing anything (other than just removing the diseased portion of your colon), the inflammation will develop on other parts of the colon. Try Ayurveda if you can! Following the right diet can do wonders. Cheers.
Welcome to the thread:ybiggrin: and thanks a ton for your patient advise :applause:

Tell us, could you try out LDN and what was your experience. Yesterday only I met my GI and said "it seems LDN has done wonders for many and it has fewer side effects" and she bluntly replied "not in my books". Could you courier some of those books so that I can show her:rof:

I think about ayurveda also from time to time, can you tell me your/others personal experience with it?
 
I do not have books. You might have to do your own research :).

Since I am in the US and LDN is not approved for treating Crohns (for the reasons I mentioned above), no doctor wants to be the bad one by prescribing it (irrespective of benefits/ end results are). the only option available are trial tests if at all anyone is even doing Crohns patient studies by treating them with LDN.

The way it works in the US - if there is no money involved in a drug, it does not get substantial interest from drug companies and hence there is no one to do sample study and get an FDA approval for the drug. LDN sadly fits in that category.

(Just to give a rough idea-> Humira: $2000+ per month, LDN: 50$/month)
 
I do not have books. You might have to do your own research :).

Since I am in the US and LDN is not approved for treating Crohns (for the reasons I mentioned above), no doctor wants to be the bad one by prescribing it (irrespective of benefits/ end results are). the only option available are trial tests if at all anyone is even doing Crohns patient studies by treating them with LDN.

The way it works in the US - if there is no money involved in a drug, it does not get substantial interest from drug companies and hence there is no one to do sample study and get an FDA approval for the drug. LDN sadly fits in that category.

(Just to give a rough idea-> Humira: $2000+ per month, LDN: 50$/month)
Infact Humira and Remicade prices are same, but LDN is even cheaper here comes to $3/month, because India is manufacturing and exporting naltrexone, the L of the LDN (you have to prepare yourself from naltrexone tablets).
 
Hey, good luck, I have also preponed my medical tour appt to may 27th and 28th with Dr. Nayak and Dr. Ebby:ysmile:
Came back yesterday, everything went smoothly, will give the tour report :rof: shortly, summary: I am wiser than before:lol2:
 
Came back yesterday, everything went smoothly, will give the tour report :rof: shortly, summary: I am wiser than before:lol2:
Welcome back....gud to know that ur medical tour went on smoothly...take ur time in preparing the report...:ybiggrin:


Hey shilpi, long time no see....hru doing? How is azathioprine treating u?
 
Welcome back....gud to know that ur medical tour went on smoothly...take ur time in preparing the report...:ybiggrin:


Hey shilpi, long time no see....hru doing? How is azathioprine treating u?
hiii shalini
due to azoran last 15 days to till now i was suffer from cold, cough, throt pain fel vry wk doc increase my dose 75mg.i dont knw whn my condn wil b stable .how r u. :worthy::worthy:
 
hiii shalini
due to azoran last 15 days to till now i was suffer from cold, cough, throt pain fel vry wk doc increase my dose 75mg.i dont knw whn my condn wil b stable .how r u. :worthy::worthy:
Oh ok....even I was facing all sorts of trouble whn I started with azoran....so don't worry...wait for 3 more mths to azoran to kick start......don't lose hope....

I was bit busy for the last few days, I have finally decided that I shud not get into IT industry again and was contemplating various career options. finally decided to take up a short course in technical writing....just started going to the classes..

Have a couple of questions for u and dinesh

Are/were u working? If yes, which field and what kind of work

Have u travelled outside india?

I feel my job stress and US travel are the ain factors for my crohns....can u think of anything else. Which trigerred our crohns....m
 
Oh ok....even I was facing all sorts of trouble whn I started with azoran....so don't worry...wait for 3 more mths to azoran to kick start......don't lose hope....

I was bit busy for the last few days, I have finally decided that I shud not get into IT industry again and was contemplating various career options. finally decided to take up a short course in technical writing....just started going to the classes..

Have a couple of questions for u and dinesh

Are/were u working? If yes, which field and what kind of work

Have u travelled outside india?

I feel my job stress and US travel are the ain factors for my crohns....can u think of anything else. Which trigerred our crohns....m
hiii shalini
i am working as a lecturer in an engineering colg at kolkatta (electrical dept) due to my disease i hae to stop my phd work
 
i think for me over work pressure,any type of stress,tension,always make me flare ,traveling(long duration) etc also from some kind of food
 
Came half day today and boss also on leave till tomorrow:lol2:, so have plenty of time to write to you Crohn's' buddies today. Just came back today morning from a trip to mount abu and udaipur. Wife and children should have their share of enjoyment, so I decided to take them on a 6 day trip. I should go for short/medium trips like while I can, make full use of the remission periods:banana:. Wife enjoyed the shopping, children enjoyed the ice cream, I enjoyed city palace and sunset. Rajasthani ladies also look lovely on a hot summer day:luigi:
 
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Welcome back....gud to know that ur medical tour went on smoothly...take ur time in preparing the report...:ybiggrin:


Hey shilpi, long time no see....hru doing? How is azathioprine treating u?
Dr. Ramakrishna is very patient and as both of you have said, extremely cooperative. They are setting up a hospital there, it a new branch of SRM, so right now they have only the consultants and other infrastructure will take time to come up.

Dr. Benjamin Perakath was also very patient and gives useful advise. Infact, when I asked Dr. BSR whom should I meet in CMC for surgery he said 'Dr. Benjamin is very experienced while Dr. Mark Ranjan Jesudasson is the skilled surgeon'. Fine, I will meet Dr. Bejamin for the advise sessions whenever I go to CMC and do the surgery under Dr. Mark when the time comes:rof:

Dr. Ebby looked like an extremely enthusiastic and yet knowledgeable kid.

Overall, all talked in the same direction that my current treatment is ok, postpone the next surgery as long as I can, avoid infliximab for the time being. In this disease nobody can do a miracle, so my expectations were not that high, but their opinions convinced me of what path I should take.

Also, all were asking again and again why come to me/why you have come so far. This is a typical CMC routine question or they wanted to hear 'in India you are THE last word' kind of answer:ylol2:
 
Oh ok....even I was facing all sorts of trouble whn I started with azoran....so don't worry...wait for 3 more mths to azoran to kick start......don't lose hope....

I was bit busy for the last few days, I have finally decided that I shud not get into IT industry again and was contemplating various career options. finally decided to take up a short course in technical writing....just started going to the classes..

Have a couple of questions for u and dinesh

Are/were u working? If yes, which field and what kind of work

Have u travelled outside india?

I feel my job stress and US travel are the ain factors for my crohns....can u think of anything else. Which trigerred our crohns....m
I am into research shalini, critical defence research so can't give more details on a public forum, but to answer what you are basically asking, my job does not involve a huge amount of stress, my wife keeps giving me more stress from time to time and then she becomes stressed when I go into a flare:rof:

They say whether stress triggers crons' or not is not well known, but stress definitely will make your condition worse once you have it, so in my opinion we should not join something which is likely to be stressful.

I started to see the brighter side of doing a govt. job after I had this disease, all expenses and leaves were taken care of, my boss also cooperated and for last two years he is adjusting my projects so that I don't have to travel etc. Also, I must continue with this job as I am the breadearner for my family. If both of you are equally earning, then you can think of an alternate career which is more suited to your physical condition. Not in my case, as my wife, even though working, is not the breadearner, she is the gemsearner, whatever she earns goes for buying gems (cadburys') for my children and buying gifts for her friends and relatives:rof:

In this forum itself I have seen long threads like 'what kind of career/jobs do you have' and you can always extensively search in the net before coming to a decision, but from what I have seen, you must have done that already.
 
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Oh ok....even I was facing all sorts of trouble whn I started with azoran....so don't worry...wait for 3 more mths to azoran to kick start......don't lose hope....

I was bit busy for the last few days, I have finally decided that I shud not get into IT industry again and was contemplating various career options. finally decided to take up a short course in technical writing....just started going to the classes..

Have a couple of questions for u and dinesh

Are/were u working? If yes, which field and what kind of work

Have u travelled outside india?

I feel my job stress and US travel are the ain factors for my crohns....can u think of anything else. Which trigerred our crohns....m
Also, there are long threads in this and other forums about 'what might have triggered crohns' for you' . In my case, if at all it might have been due to our actions, I will point to the fact that I have been an extremely spoiled man, hostel life/smoking/drinking/chess/card games/video games/late nights(early mornings on most of the days to be more honest). I am reduced to a disciplined family man kind of a person now due to Crohns'. I rarely ever stay awake after 2am these days.

But this might not help you much as you probably did not have these bad habits. But yes, in the threads 'what might have triggered crohns' for you', atleast half pointed to stress.
 
Dr. Ramakrishna is very patient and as both of you have said, extremely cooperative. They are setting up a hospital there, it a new branch of SRM, so right now they have only the consultants and other infrastructure will take time to come up.

Dr. Benjamin Perakath was also very patient and gives useful advise. Infact, when I asked Dr. BSR whom should I meet in CMC for surgery he said 'Dr. Benjamin is very experienced while Dr. Mark Ranjan Jesudasson is the skilled surgeon'. Fine, I will meet Dr. Bejamin for the advise sessions whenever I go to CMC and do the surgery under Dr. Mark when the time comes:rof:

Dr. Ebby looked like an extremely enthusiastic and yet knowledgeable kid.

Overall, all talked in the same direction that my current treatment is ok, postpone the next surgery as long as I can, avoid infliximab for the time being. In this disease nobody can do a miracle, so my expectations were not that high, but their opinions convinced me of what path I should take.

Also, all were asking again and again why come to me/why you have come so far. This is a typical CMC routine question or they wanted to hear 'in India you are THE last word' kind of answer:ylol2:
hiiiii dinesh and shalini
i think azoran does not start to work bcause last 2wk i cant sleep, eat due to my pain
 
hiiiii dinesh and shalini
i think azoran does not start to work bcause last 2wk i cant sleep, eat due to my pain
hi shilpi
sry to hear about your pain, have you tried taking food that contain more soluble fiber than insoluble fiber? soluble fiber containing food, it seems, forms a gel and protects the inner lining of your intestines. For CD/UC patients, insoluble fiber is bad and soluble fiber is good - this is the rule of thumb. But any food will contain both soluble and insoluble fiber both, you have to choose the ones that contain more of soluble fiber than insoluble fiber. You can search in the net about foods that contain more soluble fiber, for example, this: http://www.glucomannan.com/diet.htm#11

I have applied this myself with positive results. Everyday, I never fail to take some preparation of cauliflower and some preparation of plantain (kaccha kela/ kachkolar jhol in bengali:rof:). Other ones that are easily available are carrots/oatmeal/pears/oranges/grapes. I suggest you try these for one week, I am sure you will feel better.
 
hi shilpi
sry to hear about your pain, have you tried taking food that contain more soluble fiber than insoluble fiber? soluble fiber containing food, it seems, forms a gel and protects the inner lining of your intestines. For CD/UC patients, insoluble fiber is bad and soluble fiber is good - this is the rule of thumb. But any food will contain both soluble and insoluble fiber both, you have to choose the ones that contain more of soluble fiber than insoluble fiber. You can search in the net about foods that contain more soluble fiber, for example, this: http://www.glucomannan.com/diet.htm#11

I have applied this myself with positive results. Everyday, I never fail to take some preparation of cauliflower and some preparation of plantain (kaccha kela/ kachkolar jhol in bengali:rof:). Other ones that are easily available are carrots/oatmeal/pears/oranges/grapes. I suggest you try these for one week, I am sure you will feel better.
hii dinesh
thank you for tthose information
doc told me due to azroran i have started new problem pancreatitis and many other sideeffect now dr brs told me to admit hospital take some intervenus fluid i dont see any hope for me
 
request if some one can guide on the usage of azatheoprine which my doc is recommending after a current flare up. last 7 years was taking pentasa.
 
request if some one can guide on the usage of azatheoprine which my doc is recommending after a current flare up. last 7 years was taking pentasa.
hi arun iam shilpi saha from kolkata from 2011 iam on pentasa and steroid but 2013 march pentasa was not enough for controlled my condition so my doc advise me to start azoran now from 2013 march to till now iam on azathioprine and pentasa and free from symptom
 
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