Hi all,
Glad to have found this forum. So helpful!
Recently diagnosed with Crohns (within past 6 weeks) but confused because my symptoms are atypical. I don't have diarrhea or constipation and I don't throw up. I do have an "unhappy gut" with all the sounds it makes and bad bloating. The most disturbing symptom however, is unrelenting hunger pains. This has been going on for 2 years and I have found little relief. I have gained weight because I eat much more now but still I'm hungry--it keeps me up at night. I'm miserable. I've restricted my diet and have been gluten free, dairy free, and sugar free. No relief from hunger.
I am currently taking Pentasa 500mg 3x a day (down from 1g 3x a day). Dose was lowered because I felt I was getting very high anxiety. So it's been about 3 weeks on Pentasa but nothing has changed. Hunger may even be more intense! I also have joint pain that I didn't even know may be related to disease and have osteoporeini diagnosed from bone density test a year ago. I have an overall feeling of malaise and fatigue.
I've been reading forums all day and cannot find "hunger" as a major symptom of Crohns. So I question what is going on with me really? Crohn's was diagnosed after A capsule endoscopy showed ulcers in my small intestine and endoscopy in Oct showed signs of inflammation in same area. I have myriad blood tests, stool samples, scopes and scans. In spring I was on buesenide for 3 weeks but stopped abruptly because I got no relief (I had no idea about need to taper). I have learned a lot from reading posts so really grateful if anyone has insight to share!!
Thank you in advance!
Glad to have found this forum. So helpful!
Recently diagnosed with Crohns (within past 6 weeks) but confused because my symptoms are atypical. I don't have diarrhea or constipation and I don't throw up. I do have an "unhappy gut" with all the sounds it makes and bad bloating. The most disturbing symptom however, is unrelenting hunger pains. This has been going on for 2 years and I have found little relief. I have gained weight because I eat much more now but still I'm hungry--it keeps me up at night. I'm miserable. I've restricted my diet and have been gluten free, dairy free, and sugar free. No relief from hunger.
I am currently taking Pentasa 500mg 3x a day (down from 1g 3x a day). Dose was lowered because I felt I was getting very high anxiety. So it's been about 3 weeks on Pentasa but nothing has changed. Hunger may even be more intense! I also have joint pain that I didn't even know may be related to disease and have osteoporeini diagnosed from bone density test a year ago. I have an overall feeling of malaise and fatigue.
I've been reading forums all day and cannot find "hunger" as a major symptom of Crohns. So I question what is going on with me really? Crohn's was diagnosed after A capsule endoscopy showed ulcers in my small intestine and endoscopy in Oct showed signs of inflammation in same area. I have myriad blood tests, stool samples, scopes and scans. In spring I was on buesenide for 3 weeks but stopped abruptly because I got no relief (I had no idea about need to taper). I have learned a lot from reading posts so really grateful if anyone has insight to share!!
Thank you in advance!