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10-24-2013, 08:04 PM   #1
33WIV
 
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Join Date: Oct 2013
Location: Tempe, Arizona

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Young Adult Support Group

About this Support Group

I noticed that there was a teen support group and even though I'm 19 I'm just about 20. I thought I would create a space that was for young adults around there 20's. I hope that it can be a place were people can converse about anything that they want to, and find the support that need, along with sharing advice on dealing with Crohns.

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10-24-2013, 08:55 PM   #2
rygon
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Damn, I'm still too old (just turned 30) .. Maybe I should start an old codger support group
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10-25-2013, 01:53 AM   #3
Cross-stitch gal
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I'm not in my 20's. But, let me see if I can get this group into the subforums to make it easier for you guys...
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Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
10-25-2013, 03:12 PM   #4
33WIV
 
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honestly if your early in your thirties I think it's cool. I wasn't sure how to define young adult other then not to young not to old lol besides what's the difference between 29 and 30?
10-26-2013, 09:08 AM   #5
jsesaic
 
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I'm 20, and it will be nice to talk to people my age who have gone through similar experiences!
10-26-2013, 10:18 PM   #6
SarahBear
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I'm 21, so sign me up.
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Sarah.
Diagnosed with Crohn's disease 12/6/08.
Have taken: Prednisone, 6mp, methotrexate, Pentasa.
Currently waiting for a new medication!

Check out the Crohn's forum chat!

10-27-2013, 12:18 AM   #7
Jpow
 
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I'm 19, but I will also be 20 in a few months
10-27-2013, 04:42 AM   #8
33WIV
 
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It's great to see post so soon. I really wanted to start this group when I discovered that crohns isn't just for old people and that there was a group for teens. I'll turn 20 in less then a month and I was diagnosed not that long ago. when I went in for the colonoscopy I remember wearing one of those open gowns for my first time. The nurse asked me if I had dentures or loose teeth and the men and women around me were old timers. I remember feelin so old and that my body was ageist faster then I was. After the sedative though I could care less. I'm not sure if it was the same or if you can relate but it's nice to know people your own age and still prim in there youth. So much less of an anomaly but part of a group feel free to share your own first time experence if your comfortable with it
10-27-2013, 04:51 AM   #9
Cross-stitch gal
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Believe it or not. My very first colonoscopy was after I got married. My husband always goes in with me to all my tests and appointments. Even though I'm 35 whenever I go in for a test I seem to be one of the youngest there. The others there always seem to give loving glances our way sort of like they think we're so cute! I think that until we get into our 50's most likely we will be younger than the other patients!
10-27-2013, 11:07 AM   #10
jsesaic
 
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Everytime i'm in hospital i'm always the youngest! When i was first diagnosed at 16 i was the youngest patient my specialist had, although i doubt i am now haha!
10-27-2013, 11:15 AM   #11
SarahBear
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I'm usually the youngest, as well. However, my first GI was a pediatric GI so it definitely didn't hit me then. I've seen young people in the waiting room a few times at my new GI, but it's always mostly older people. Actually, it cracked me up the other day when I went to my first rheumatologist appointment and saw that they keep walkers around their scales for people to support themselves. Maybe because I didn't deal with this when I first was diagnosed, it doesn't really bother me?
10-27-2013, 11:21 AM   #12
jsesaic
 
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I always get a lot of sympathy from other patients at hospitals because "i'm so young" It's sweet at first but can get a tad annoying haha! But i guess it's because a lot of the older people might have gone through all the same things
10-27-2013, 07:22 PM   #13
rygon
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I had the old guy next to me try and get into my bed twice as he thought it was his, not the best way to get woken up at 3am
10-27-2013, 10:30 PM   #14
Jpow
 
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I was 15 when I had my first colonoscopy. They aren't just for old people
10-27-2013, 10:52 PM   #15
afidz
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Join Date: Jun 2012
Location: Mckinney, Texas

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you gotta love when they say "your too young to have these health problems"
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Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Humira
Remicade
Asacol HD
Cimzia
Methotrexate
10-27-2013, 11:04 PM   #16
SarahBear
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Just to get some conversation started… Answer any (or all) of the following, or just use them for ideas.

- What "young adult" type situations has IBD affected for you?

- Has IBD affected your educational opportunities and choices?

- Has IBD affected your independence from your family?

- Has IBD affected your social relationships, dating, or your body image?

- Do you feel as if IBD has matured you beyond your age or for kept you from maturing in any way?

- How do you think dealing with IBD as a young adult is different from dealing with it as a child or an adult?

Last edited by SarahBear; 11-07-2013 at 04:36 PM.
10-28-2013, 10:51 PM   #17
afidz
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I was dx shortly after I moved out of my parents house for the first time. I wasn't given a very fair chance at making it in the real world, but it took me over 2 years to give in and move back home, and even then I only stayed for 6 months. Really the only troubles I face as being a young adult with Crohn's is being able to keep a job and have money.
10-29-2013, 03:24 AM   #18
Cross-stitch gal
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I was diagnosed at 18 just after moving into the dorms at college. It was very shocking and embarrassing digesting the new diagnosis and having to use enemas with a room mate whom I didn't know. Plus, even more so since I grew up without having to share a room anyway.

Through the years it's gotten more expensive between medication and medical appointments. I'm sure that there are quite a few things my husband and I could better spend our money on other than my medical stuff. Other than this, I guess there's really no other big troubles so far.
10-29-2013, 03:56 AM   #19
lsgs
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Do I count? I'm 26 and as of yet only have 'IBD' they can't diagnose exactly what?
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Sjogren's syndrome - 2009

Presumed IBD - 2012

Cholecystectomy, liver biopsy and lymph node excision - 2015

Primary Biliary Cholangitis - 2016

Bile Reflux Gastritis - 2016
10-29-2013, 06:27 AM   #20
jsesaic
 
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My main trouble is confidence i think. I worry about doing anything in case i get ill! I'm lucky my job is very understanding although i can't work many hours at the moment. But i do think i'm lucky i got ill after i finished school because i can't imagine being at school and dealing with it!
It's definitely affected my body image, especially when i had the ileostomy. Luckily i've had that reversed now but i'm still extremely self conscious, which does effect dating etc.
But on the plus side it's definitely matured me too. I guess because we all have such to deal with that we do grow up quicker than we want? I do feel i missed out on a lot of my late teens because i was just ill for most of it! Does anyone else feel this way?
10-29-2013, 08:30 AM   #21
alisonwilkinson
 
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Hi i am 30 years old. I was diagnosed in 1999 at age 15. Hope i'm not to old for this support group.
10-29-2013, 01:34 PM   #22
Jhall713
 
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Im 24, diagnosed at 18. sign me up
10-29-2013, 06:08 PM   #23
rygon
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I think its all the allowances you have to make due to this disease. Not being bale to just go out and do anything without 1st checking where all the toilets are, wondering what in case you have to go in the middle of nowhere, and actually feeling good enough to make arrangements in advance.

I especially like being outdoors and my active sports, but I do feel like I cannot do as much as I want because of this disease. Even when I do feel better theres always a little doubt in the back of my mind saying what if.
10-29-2013, 07:02 PM   #24
AdamJC
 
Join Date: Nov 2011
Location: Weymouth, Dorset, United Kingdom

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I'm 24 - Diagnosed when I was 19. I'll take a stab at answering these questions!

- What "young adult" type situations has IBD affected for you?
--> While most of my mates were out clubbing/partying - I was trying to keep up. Trying being the operative word! At the time it was hard, but they were understanding once I was diagnosed and still stay as active socially as I can. It does affect my social life in-that I don't go out on the p**s hardly at all.

- Has IBD affected your educational opportunities and choices?
--> Thankfully I managed to get through all my GCSE's and college before being diagnosed with Crohns - I have thought of going to university but I can't afford it and couldn't guarantee I wouldn't miss out through a flare-up so given it a miss for now

- Has IBD affected your independence from your family?
--> Due to recent ongoings I unfortunately don't speak to my Mother - I don't have much other family so tend to keep my crohns and all associated problems to myself


- Has IBD affected your social relationships, dating, or your body image?
--> Yeah, absolutely! - As previously noted, if invited for 'nights out' I quite often end up turning them down due to not feeling like I could cope with it and/or not feeling 'well' enough to attend. My other half is extremely supportive and after having to call an ambulance for me several times she's pretty well trained ) - Body image was a fairly major thing that bothered me when I first became ill with crohns. I was an active, physically fit 18 year old. I had muscles in all the right places and went to the gym 4 days a week, played 5-a-side football and was very active. I was a healthy 11 stone when I first fell ill and at my worst I dropped to just under 9 stone which was horrible. I'm 24 now and only recently have I started to become happy with my body image! :-(

- Do you feel as if IBD has matured you beyond your age or for kept you from maturing in any way?
--> Once again, absolutely! - For me, I felt like crohns was a huge kick in the nuts - But at the same time, it was an extremely sobering realisation that this was something I'm stuck with and it needed dealing with. I'm a very positive, outgoing guy so I tried to look at in the best light I can which kinda forced me to keep my head together and as a result matured me in the process.

- How do you think dealing with IBD as a young adult is different from dealing with it as a child or an adult?
--> As an adult, I was able to understand exactly what was wrong with me thanks to some fairly amazing consultants. Although upsetting at first, being able to understand the gravitas of crohns and everything that goes with it along with being fairly level headed allowed me to deal with it and get on with my life. For young children I cannot possibly empathise with how they must interpret what was causing them to feel this way. Trying to explain it to a young one would be extremely difficult and I am greatful that I was able to take in all the information I was bombarded with upon being diagnosed.

Wow... there we go, essay! Apologies

I'm going to bed now! Night night all x
10-29-2013, 08:43 PM   #25
Luthien
 
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Location: Chandler, Arizona

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I'm 22 and was just diagnosed last month.
I just got married in June, moved out for the first time, and started my senior year of college. It's definitely affected my education, the past couple of semesters I was really sick but had no idea what was wrong. Thankfully I was already done with dating by the time I was diagnosed! My husband has been incredibly supportive as we go through this together.
Crohn's has definitely affected independence from my parents, they have been so generous to help out with my recent medical bills.
The past few months have matured me a LOT, especially with being diagnosed with crohns, everything in life has kinda hit me at this point. Hubby says it's my age combined with the diagnosis that makes it so hard.
10-29-2013, 10:07 PM   #26
Brenden
 
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Location: Vancouver, British Columbia

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Im 18, not sure if that's considered young adult as technically im still a teenager. I was just recently diagnosed with IBD and still learning the ropes. I prefer to take all my medical problems on myself as im not close with my family. I like to talk to the doctor without my parents in the room. I was just recently transferred over from a pediatrician to a gastroenterologist because since im almost an adult they would have to move me soon anyways! Made more sense to just see an doctor that treated adults and start a case with her then to just have to start all over again in a year or two.
10-29-2013, 11:04 PM   #27
SarahBear
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First off, I'd say "young adult" is more of a state of mind than a specific age group - we're definitely not going to kick anyone out for not being the right age!

Afidz, I see what you're saying about not getting a fair chance. At times I feel the same way - there's a lot of stress associated with moving out and supporting yourself, and I'm lucky that the burden doesn't rest solely on me. I couldn't do it.

Jsesaic, I understand how you feel about the maturity issue. IBD affected me both similarly and very differently. There were things I had to deal with at a young age that others didn't, so in a way, it matured me. However, due to my health I was often absent from school (symptoms started around age eight and weren't explained until just before I turned seventeen, so there was a lot of time in there) and wasn't able to form, build and maintain social relationships like others. I feel like I missed out on a key social learning experience. Emotionally, I'm mature, but socially I'm not - I just don't know how to interact with others. That causes me a lot of problems, so I feel that, overall, my Crohn's really had a negative impact on my maturity levels. In addition to that, spending nine years undiagnosed, with no one believing me, I really handled my diagnosis well. It was never upsetting to me; I had been sick for so long that being sick seemed normal. I was happy to know why, have people finally take me seriously, and have a chance at treatment and feeling better. Not sure how that relates to the maturity thing… when I started typing it, I thought it did, but now I don't know…

I think the main "young adult" issues in dealing with IBD are what I already laid out… problems achieving independence from family, completing educational goals, maintaining relationships, and the havoc it can wreck on one's body image (which is certainly a concern at any age, but is often stressed greatly for young adults).

IBD hasn't affected my independence from my family. If anything, it encouraged it. Living with my mother was incredibly stressful - I actually went into remission when I moved out, from the drastic decrease in my stress levels. Because of this, I know I cannot under any circumstances allow myself to live with her again. My Crohn's is fueling my independence from her, I suppose, but it still forces me to depend on my boyfriend.

I haven't had many body image issues. I do feel somewhat bad about myself physically when I lose weight, and I have been on the receiving end of comments regarding eating disorders, which did bother me. The whole, "real women have curves," nonsense and similar sayings get on my nerves, but not really on a personal level (it's obviously a jealousy-fueled statement - and you don't see us skinny girls saying that real women have protruding hip bones or some such nonsense, so it really just makes those who say it look silly). I've never had anyone actually take issue with my physical appearance.

I don't think dealing with IBD as a young adult is significantly different from dealing with it at any other age, really. It's all a very personal experience. The obvious statement would be that children rely on their parents to care for them and manage their disease, but that's not true of every child - it just depends on their nature. At all ages, IBD can interfere with life - education, work, friendships, marriages, child-rearing, etc. On an emotional, coping level, I don't think IBD interfering with my 4th grade education is much different than it interfering with my college education, because at either point, that's an important aspect of my life - it equals out to about the same thing. On top of that, people go through life milestones (college, career advancement, marriage, having children, etc.) at such different ages, that none of it relates solely to being a young adult. However, I do like the idea of a young adult group.

I'm tired and rambling and I'm not sure if I even make sense anymore.
11-05-2013, 04:21 AM   #28
Megan20
 
Join Date: Nov 2013
Location: Huntsville, Tennessee

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- What "young adult" type situations has IBD affected for you?
I have lymphoynic collis and I'm 21 (I think thts how u spell it I just got diagnosed 3months ago)
- Has IBD affected your educational opportunities and choices?
I was in cos n I lost all my money for class and was told by teacher n school I could never work anywhere cuz of my disorder
- Has IBD affected your independence from your family?
Yes
- Has IBD affected your social relationships, dating, or your body image?
Yes because people who I went to school with thought I was a liar
- Do you feel as if IBD has matured you beyond your age or for kept you from maturing in any way? In ways yes cuz I shouldn't have a camera stuck up my but till I got old is wht I felt like

- How do you think dealing with IBD as a young adult is different from dealing with it as a child or an adult? A child doesn't have to deal with people yet and adults they kinda are more easy with what they have
11-06-2013, 10:07 AM   #29
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Location: Peoria, Illinois

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I'm 24 years old, I was diagnosed with Crohn's my first semester of college and had 2 back to back surgeries to remove abscesses so I was dropped from all my classes and it was hard to get back in the swing on things. Everyone seem to think Crohn's Disease is just going to the bathroom too much so they can't understand how I that could possibly stop me from doing anything.

I'm currently on Pentasa, Remicade, Entocort, Ultrim (for arthritis pain), and Nexium (for heartburn)
11-06-2013, 12:01 PM   #30
JustAYoungLad
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I'm 24 with Crohn's. Diagnosed when I was 10/11 ish. I got into remission straight away and stayed into remission for 10 years.

I went through college and university symptom free. Unfortunately in my final year just around graduation I started flaring and I've been fighting since. I think the stress of my final masters year destroyed my insides.

Anyway, we have to keep positive! It's just a road bump on the very long road.
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Last edited by JustAYoungLad; 11-06-2013 at 12:39 PM.
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