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There's been discussion in other posts regarding EN so I thought I would start a new thread dedicated to that subject. Maybe get an update as to who has or is currently doing enteral nutrition so that anyone considering it for their child could ask questions, get more info, etc.
I'll start.....My 10yr old son started EN on 4/2 and did 4 weeks of Peptamen Jr. (via NG tube) and water only. We are slowly adding food back in as he continues with the nightly formula feeding.
EN did not put my son in remission but it allowed him to maintain his weight when he was really struggling and unable to eat. It has allowed some much needed bowel rest and eased his symptoms a lot. It has given me HUGE peace of mind knowing that he is getting the nutrition he needs.
Now that he is starting to eat food again, he is gaining some weight which is exciting to him and us. It's also what keeps him wanting to do the nightly feeds. In the beginning he chose to keep the NG tube in all the time but now he takes it out in the morning and my husband puts in a new one at night. Truly not a big deal at all.
I'm a big EN fan! Would love to continue doing this with our son until he's married :lol2:. I would encourage anyone to give it a go. At first, it seems really overwhelming. What helped me were the wonderful ladies on this forum who had experience with EN and were so willing to share and answer questions about it and then reading the book, Beat Crohn's! Getting to Remission with Enteral Nutrition by Margaret Oppenheimer.
Hope this will be a helpful thread to parents considering EN for their little crohnnie!
I'll start.....My 10yr old son started EN on 4/2 and did 4 weeks of Peptamen Jr. (via NG tube) and water only. We are slowly adding food back in as he continues with the nightly formula feeding.
EN did not put my son in remission but it allowed him to maintain his weight when he was really struggling and unable to eat. It has allowed some much needed bowel rest and eased his symptoms a lot. It has given me HUGE peace of mind knowing that he is getting the nutrition he needs.
Now that he is starting to eat food again, he is gaining some weight which is exciting to him and us. It's also what keeps him wanting to do the nightly feeds. In the beginning he chose to keep the NG tube in all the time but now he takes it out in the morning and my husband puts in a new one at night. Truly not a big deal at all.
I'm a big EN fan! Would love to continue doing this with our son until he's married :lol2:. I would encourage anyone to give it a go. At first, it seems really overwhelming. What helped me were the wonderful ladies on this forum who had experience with EN and were so willing to share and answer questions about it and then reading the book, Beat Crohn's! Getting to Remission with Enteral Nutrition by Margaret Oppenheimer.
Hope this will be a helpful thread to parents considering EN for their little crohnnie!