- Location
- Penryn, Cornwall UK
Well I'm still in the same flare as I was 6 months ago, as usual I have no energy and many other symptoms that come with this disease, I'm struggling at home as my mum and nan are telling me to do a load of house chores which I don't mind doing but it's just finding and having the energy to do them my nan and mum and granddad all nag at me to go and do this and go and do that, so I do them but even doing a small job like making tea just exhausts me then my mum or my nan just have a go at me for nothing :ymad: they just don't understand I can't do it all in one go , my family should understand it by now only because my mum was the one that was by my side at age 3 when I was first diagnosed and throughout everything that happened and my nan pretty much saved my life when I was 14 I've died a few times throughout my life so surely they should understand by now??
I also owe some work to my boss which is hard when your in pain and have no energy, I have been doing it but in bits at a time my mum has a go at me for barely doing anything I can't cope anymore I do things around the house and also my work but I can't process it all in one go. I'm have currently been off work for about 8 weeks due to an operation I had on my elbow and now I'm having physiotherapy on it to get it to bend.
My doctors are just useless I did ring in telling my doctor about what is going on but to me he doesn't seem interested and just told me to "wait it out" I have tried to change to a different doctor but they just said that I couldn't, so now I'm stuck with him, I'm in pain and my doctor is stupid great that really doesn't go :ymad: I going to try again but after Christmas.
I'm also depressed and I have autism so it's even harder to get people to understand, my Crohn's really isn't doing good at the moment I think that Aza has stopped working but when I mentioned it to my doctor he did nothing about he just told me to "carry on taking it" like as if he doesn't care what happens, I'm constantly falling out with my family They just don't understand me Which is why I just want to give up :ybatty: :ack: :runaway:
And right now I don't even want to think or see Christmas it's just depressing
Sorry for such a depressing message
I also owe some work to my boss which is hard when your in pain and have no energy, I have been doing it but in bits at a time my mum has a go at me for barely doing anything I can't cope anymore I do things around the house and also my work but I can't process it all in one go. I'm have currently been off work for about 8 weeks due to an operation I had on my elbow and now I'm having physiotherapy on it to get it to bend.
My doctors are just useless I did ring in telling my doctor about what is going on but to me he doesn't seem interested and just told me to "wait it out" I have tried to change to a different doctor but they just said that I couldn't, so now I'm stuck with him, I'm in pain and my doctor is stupid great that really doesn't go :ymad: I going to try again but after Christmas.
I'm also depressed and I have autism so it's even harder to get people to understand, my Crohn's really isn't doing good at the moment I think that Aza has stopped working but when I mentioned it to my doctor he did nothing about he just told me to "carry on taking it" like as if he doesn't care what happens, I'm constantly falling out with my family They just don't understand me Which is why I just want to give up :ybatty: :ack: :runaway:
And right now I don't even want to think or see Christmas it's just depressing
Sorry for such a depressing message