Hi everyone.
Just joined and wanted to share my story with you.
As I remember when I was a young teen I would sometimes get stomach cramps so strong that I could pass out. I never went to the doctor with it, because my parents told that it was probably because I worried too much. The cramps stopped to be so severe and I stopped thinking about it.
Last August I suddenly got severe stomach pains that would come and go. I was admitted to the hospital, doctors thinking that I had appendicitis. I was admitted for 3 days, they did a colonoscopi and and found nothing. I was then sent back home. My pain continued and I was then sent to af CT Scan which also was normal. Then I was sent to another colonoscopy which also was normal. It has to be said that both times they did not succeed to enter the terminal illeum.
They then sent me back home, told me that nothing had to be operated, I was admitted to the surgical department. They said I had to go home and see how it all went.
After another month of pains coming and going I went to my GP and she sent me to the GI. They sent me to an MR scan, which was also normal and did yet another colonoskopy. They succeeded to enter the Terminal Illeum and found a small red irritated patch of which they took a biopsy. This was also normal. Now I underwent af Capsule Endoskopy last wednesday and awaiting the results.
While this has gone on I have gotten worse pains. Using pain killers to take the top of the pain. I have had black stool. I go to the toilet 3-4 times a day. Daily pains. My joints are acting up. The middle joint of my third index finger. Second joint on my left thumb and the right hand wrist.
I have sent them god knows how many stool samples and blod samples all of which af been normal exept one, where the calprotectin was slightly elevated.
I am going insane, not knowing what is going on in my body. I am tired all the time and really frustrated that the doctors seem to dont really care about me. Or at least they don't think that there is anything wrong. I fear that they are going to tell me I have to learn to live with the pain. The doctor told me that the Capsule endoskopi was the last thing. And they don't know how to go on if it is not positive for crohns.
I got laringytis this spring, where my uvula swelled up. And the GP gave me prednisolon for the swelling. It helped. I had three days without any pain and got back my energy. But the doctors wont give me prednisolon again for an undiagnosed condition.
Have any of you tried something similar and do you have any suggestions. I myself believe that I have Crohns but it is hard to convince the doctors of the same.
Hope that someone will answer
Just joined and wanted to share my story with you.
As I remember when I was a young teen I would sometimes get stomach cramps so strong that I could pass out. I never went to the doctor with it, because my parents told that it was probably because I worried too much. The cramps stopped to be so severe and I stopped thinking about it.
Last August I suddenly got severe stomach pains that would come and go. I was admitted to the hospital, doctors thinking that I had appendicitis. I was admitted for 3 days, they did a colonoscopi and and found nothing. I was then sent back home. My pain continued and I was then sent to af CT Scan which also was normal. Then I was sent to another colonoscopy which also was normal. It has to be said that both times they did not succeed to enter the terminal illeum.
They then sent me back home, told me that nothing had to be operated, I was admitted to the surgical department. They said I had to go home and see how it all went.
After another month of pains coming and going I went to my GP and she sent me to the GI. They sent me to an MR scan, which was also normal and did yet another colonoskopy. They succeeded to enter the Terminal Illeum and found a small red irritated patch of which they took a biopsy. This was also normal. Now I underwent af Capsule Endoskopy last wednesday and awaiting the results.
While this has gone on I have gotten worse pains. Using pain killers to take the top of the pain. I have had black stool. I go to the toilet 3-4 times a day. Daily pains. My joints are acting up. The middle joint of my third index finger. Second joint on my left thumb and the right hand wrist.
I have sent them god knows how many stool samples and blod samples all of which af been normal exept one, where the calprotectin was slightly elevated.
I am going insane, not knowing what is going on in my body. I am tired all the time and really frustrated that the doctors seem to dont really care about me. Or at least they don't think that there is anything wrong. I fear that they are going to tell me I have to learn to live with the pain. The doctor told me that the Capsule endoskopi was the last thing. And they don't know how to go on if it is not positive for crohns.
I got laringytis this spring, where my uvula swelled up. And the GP gave me prednisolon for the swelling. It helped. I had three days without any pain and got back my energy. But the doctors wont give me prednisolon again for an undiagnosed condition.
Have any of you tried something similar and do you have any suggestions. I myself believe that I have Crohns but it is hard to convince the doctors of the same.
Hope that someone will answer