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02-19-2015, 06:15 PM   #1
24601
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CCFA Nutrition Survey - 1 in 5 wins Amazon gift certificate

The CCFA are asking IBD patients to complete this survey on nutrition. It's quick and easy and they say every 5th person to complete it gets a $15 Amazon voucher. Some of us could actually get something good from having this disease

Here's the link:
https://sri.cornell.edu/ccfa/patient/
02-20-2015, 11:05 PM   #2
Jennifer
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This survey has been approved. Working link has been added.
__________________
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
02-21-2015, 09:11 AM   #3
nogutsnoglory
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Not a winner but hope the info helps CCFA.
02-21-2015, 02:43 PM   #4
Cross-stitch gal
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Location: Vancouver, Washington

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Me neither. But, I did it too.
__________________
Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
02-21-2015, 06:13 PM   #5
xeridea
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Did survey but not selected for gift card either!

Anyone else think the survey structure and questions were a little weak?
02-21-2015, 07:52 PM   #6
nogutsnoglory
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I agree it was weak. Also seems nobody wins.
02-21-2015, 08:07 PM   #7
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Yeah, I was never impressed with the survey - though I do think nutrition is too often overlooked in treating Crohn's so I suppose raising any awareness could be good. But it doesn't seem all that inspiring of confidence that nobody is winning
02-21-2015, 09:39 PM   #8
FrozenGirl
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Not a winner. Oh well. Questions weren't great, slightly vague.
__________________
Dx: Ulcerative Colitis, Nov 2013
Currently on:
Mezavant 4.8g
Vitamin D 1000iu
Calcium
Tecta 40mg
Remicade: 600mg, every 4 weeks
Methotrexate: 15 mg (injection)
02-21-2015, 10:31 PM   #9
Layla
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Also not a winner.
02-22-2015, 08:15 AM   #10
SarahD
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Location: Cambridge, United Kingdom
I got a message saying I was a winner after I submitted the survey, but they will send me an email with the e-certificate in within a few days. Let's see if it materialises.
__________________
Symptoms from the age of 12. Mis-diagnosed with UC at the age of 13, and later diagnosed with Crohn's in January 2012 at 24 years old. Disease mainly in terminal ileum.


Current meds:
Azathioprine, Allopurinol, Calcichew D3-Forte, Fortijuice, Alendronic acid, Ranitidine

Previous meds:
Augmentin, Doxycycline, Lansoprazole, Asacol, Pentasa, Prednisolone, Entocort, Cipro, Flagyl, Elemental Extra 028
02-22-2015, 09:16 AM   #11
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Good to hear there are some potential winners out there! Hope the e-certificate does indeed materialise!
02-23-2015, 02:13 PM   #12
AmyIsHere
 
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Location: Blue Springs, Missouri

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I was also deemed a winner! Waiting for the email.
__________________
Resection - June 10, 2014
Crohn's diagnosis - October 21, 2014

Pentasa: 4 grams/day (since 10/23/14)
Iron: 10 grams/day
B-12 injection: monthly
02-23-2015, 02:20 PM   #13
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Yay!
02-23-2015, 02:25 PM   #14
SarahD
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I still haven't received my email with the gift certificate..have you Amy?
02-23-2015, 02:30 PM   #15
AmyIsHere
 
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Nope, I'm patiently waiting.
03-02-2015, 03:56 AM   #16
SarahD
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I still haven't received an email from them. Beginning to think it's a con.
04-23-2015, 04:23 PM   #17
AmyIsHere
 
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I JUST got my gift card via email!
04-23-2015, 07:02 PM   #18
nogutsnoglory
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Cool, so it's the real deal. Sadly I didn't win though.
04-24-2015, 07:34 AM   #19
SarahD
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I received mine this morning. I'd actually given up hope that it was going to arrive.
04-24-2015, 04:02 PM   #20
Jmrogers4
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Just got my gift card yesterday, Yeah!
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
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