Like the subject line says - I can't find any information about what this drug actually does. All I find are horror stories about its side effects.
The FAQ on this website says it "reduces symptoms in a matter of days". I have no overt symptoms. I have occult bleeding from small bowel ulcers but there are no symptoms from that. My anemia is completely resolved. The hematologist says my ferritin level is better than his!
NOTHING says pred heals the ulcers.
I have two strictures. NOTHING says pred heals the strictures.
The FAQ also says "While Prednisone is excellent for inducing clinical remission, it has been shown to be poor when it comes to the healing of the mucosa". That's my problem - I have ulcerated mucosa. Why are they forcing me to take pred? (40mg tapered over 11 weeks to 5mg)
The FAQ also says it "induces clinical remission". But nothing explains to me what that means. I have *NONE* of the symptoms of Crohn's, yet after more tests, all of which were completely normal except a repeat capsule, I'm told I have to take this drug.
No one is telling me why it will help me. I know it won't help me. It will make me feel like crap and I feel perfectly fine right now. Without going into all the history, this whole odyssey started because I lost 75 pounds. Now I'm to take this terrible drug so that I can gain all that weight back. What was the point? I should have just stayed fat.
I already can't sleep and that's nothing new - can't fall asleep, can't stay asleep, can't go back to sleep when I awaken after 2 hours. If I get 5 hours a night its a really good night. With pred I won't sleep at all.
I haven't started it yet, but I'm running out of reasons to delay starting.
What does prednisone do?
PS - I wish I could use more than one post icon. Add Frustrated, Anxious, Crohn's, Advice, Vent, Scared to the one I used.
The FAQ on this website says it "reduces symptoms in a matter of days". I have no overt symptoms. I have occult bleeding from small bowel ulcers but there are no symptoms from that. My anemia is completely resolved. The hematologist says my ferritin level is better than his!
NOTHING says pred heals the ulcers.
I have two strictures. NOTHING says pred heals the strictures.
The FAQ also says "While Prednisone is excellent for inducing clinical remission, it has been shown to be poor when it comes to the healing of the mucosa". That's my problem - I have ulcerated mucosa. Why are they forcing me to take pred? (40mg tapered over 11 weeks to 5mg)
The FAQ also says it "induces clinical remission". But nothing explains to me what that means. I have *NONE* of the symptoms of Crohn's, yet after more tests, all of which were completely normal except a repeat capsule, I'm told I have to take this drug.
No one is telling me why it will help me. I know it won't help me. It will make me feel like crap and I feel perfectly fine right now. Without going into all the history, this whole odyssey started because I lost 75 pounds. Now I'm to take this terrible drug so that I can gain all that weight back. What was the point? I should have just stayed fat.
I already can't sleep and that's nothing new - can't fall asleep, can't stay asleep, can't go back to sleep when I awaken after 2 hours. If I get 5 hours a night its a really good night. With pred I won't sleep at all.
I haven't started it yet, but I'm running out of reasons to delay starting.
What does prednisone do?
PS - I wish I could use more than one post icon. Add Frustrated, Anxious, Crohn's, Advice, Vent, Scared to the one I used.