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12-06-2015, 03:02 PM   #31
DanaBanana
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Love this thread!!! I get constipation too. I rarely have a normal bm. It's either constipation or diarrheah, but the constipation was perplexing to me as I never thought one could suffer from crohns and be constipated. Make sure you're drinking lots of H2o. I find upping my water intake helps.
12-06-2015, 04:08 PM   #32
Gail Jothen
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Miralax is for constipation so yes, it fights what colestpo does....opposite each other for usage!
12-07-2015, 06:52 PM   #33
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Hi!

Been on here a few times. Bit of history, diagnosed early last year (am mid 20s). Treated with short course of steroids. That was that. Hospital admission last year for 9 days, throwing up, D, weight loss. Was to a different hosp than where my consultant was, they wanted to start me on aza, I went back to my normal GI who disagreed. Since then been pretty ok, I have bad days, weeks where I don't want to eat but learnt that that's 'normal'.

I take mebeverine, Senna (i have constipation more than D) nortriptyline, b12 injections and folic acid.

Last Saturday I woke up as I rolled over in my sleep, it felt like a very sharp pain from the middle of my stomach (under diaphragm) to under my right rib cage, which is where a lot of my pain comes from usually. The past week has been a bit rubbish up until thurs/ Friday where pain under right ribs has become quite severe, not slept over the weekend, exhausted, not really wanting to eat, hot (I'm always cold) and general stomach pain. The pain forced me home from work today. So I rang my GP, a dr rang me back (not usual gp) who asked me 'are you sure?' When I said I had Chohns with constipation. He prescribed me
Co codamol, which isn't really touching the pain and didn't say much else really. Waiting for crohns nurse to ring me back but that could be anytime really.

Has anyone got any advice? What can you do when you're in so much pain? I don't feel it really warrants a trip to a&e, I'm quite good with pain and have been much much worse before I've gone there. Do the medications I'm on sound normal?

Thanks for any help! I know it's a bit of a rant....
12-07-2015, 07:01 PM   #34
ronroush7
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For pain, the only medicine my doctor will allow is Tylenol.

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12-07-2015, 07:28 PM   #35
my little penguin
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Miralax is an osmotic
Which means it draws water into the stool to soften it .
It needs to be taken at least three days to see a difference and drinking fluids is a must.
Ds has been constipated since birth
And everyone didn't think he had crohns due to constipation
Now his Gi educates the fellows with DS case
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12-07-2015, 09:10 PM   #36
Gail Jothen
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ronroush 7, I too have had severe pain for 6 years. About 2 months ago I went to the emergency and received an infusion of pain medicine which made me feel wonderful for 24 hours. But my doctor will not give me any narcotics as he says they mask the symptoms. He did put me on Tramadol, but it did nothing, a pharmacist friend called it " a kiss on the cheek." So I take tylenol and also Peptobismo, which together do help. But most of all we need our ulcers to heal so the pain will go away. Diet is important. See a nutritionist for help with that. Foods that cause gas and bloating can hurt ulcers more than other foods.
12-07-2015, 09:32 PM   #37
ronroush7
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Thanks. I just had a doctor in the store tell me about b12 patches to get rid of toxicity in our bodies?

12-07-2015, 09:37 PM   #38
Gail Jothen
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Oh, my dr started me on B12 injections at my last visit, also told me to take vitamins which I've never done as they upset my gut. I found a vitamin that is mixed with water, and has no iron as iron is hard on the stomach. B12 is important for general health; I've never heard anything about toxicity in our bodies. What does that mean? Sounds like an alternative medicine concept. Actually, sugar is toxic...a chronic poison but the FDA only outlaws acute poisons. So quit eating sugar to be less toxic!

Last edited by Gail Jothen; 12-08-2015 at 08:55 AM.
12-07-2015, 09:40 PM   #39
my little penguin
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The amount of b12 in an injections is the size of a mountain compared to anything OTC ( think ant hill size )
Second follow your docs advice not someone trying to sell something
12-08-2015, 04:43 AM   #40
kellehbeans
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kellehbeans, have you been on the low FODMAP diet? It helps with fructose issues. Actually helps with digestive issues period although one must taylor it to one's own disease variety. That's what we have, a variety of problems and a common name. My symptoms may be different than yours. That is NORMAL. And my treatment different from yours. That is NORMAL. Nurses and doctors cannot, should not, put us each in the same box. We are too complicated. I have always had constipation problems, and now with Crohn's I never have diarrhea. But my treatments have helped/hindered C. I took tramadol which constipated me worse. I took carafate which constipated me worse. I'm off them, and am pretty normal now, but every medication has a side effect unfortunately. We have to try things and decide it they help or not.
Much to my hatred for this diet - yes. It didn't really help me, but I probably wasn't as strict as I should have been - for long enough. I did it was the 2 weeks, but I'm pretty sure it should be 6 weeks. Did find out that not eating really any fruit during my time on holiday that I did seem to be forming a little better, but still a stupid amount of frequency of 'rabbit pellets' but at least once proper formed a day. It is still quite rare for it to happen.
12-08-2015, 03:08 PM   #41
ronroush7
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Is there a difference between constipation and simply not being able to empty yourself?
12-08-2015, 03:37 PM   #42
Gail Jothen
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kellehbeans, low FODMAP is just a way to prevent gas and bloating; it will not necessarily stop constipation. Constipation is complicated: genetics, amount of water you drink, your total diet, exercise, medicine you take....I have always tended to be constipated. And then my dr. had me on carafate which constipates, then Tramadol, which also constipates. Our bodies are not simple. And medications always have side effects, or evil effects I call them.

































kellehbeans, low FODMAP is essentially for people who have bad response to certain carbs, which fructose is. It also helps prevent gas and bloating. But there are so many other issues in your body(genetics, medications, exercise, water intake etc.) besides your response to diet, that 2 weeks is a very short time. You sound frustrated. Have you seen a nutritionist?
12-08-2015, 05:24 PM   #43
ronroush7
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Is there a difference between constipation and just not being able to empty yourself?
12-08-2015, 05:26 PM   #44
ronroush7
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Forgive me. II repeated myself.
01-09-2016, 04:58 PM   #45
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Hey! I'm new on here so im still getting used to this layout! I've suffered with crohns for nearly 10 years now and I've had my in and out of hospital time as you do when you first get diagnosed! I've been very lucky and lived a normal life for over 5 years. However, I have recently been experiencing severe gas and discharge for just over a month. Sometimes stools are loose and sometimes solid. I have been bloated too. Sometimes I feel like I have to rush to the bathroom and all that comes out is discharge and gas! But this doesn't happen all the time although sometimes I feel I'm getting better, I have a normal bowel movement then it happens again! I am also experiencing rumbling in my gut and when this happens I have to run to the nearest bathroom! Has anyone experienced this? Any suggestions how to ease the situation? Perhaps a diet change? Please help!
01-09-2016, 05:17 PM   #46
DanaBanana
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Hey! I'm new on here so im still getting used to this layout! I've suffered with crohns for nearly 10 years now and I've had my in and out of hospital time as you do when you first get diagnosed! I've been very lucky and lived a normal life for over 5 years. However, I have recently been experiencing severe gas and discharge for just over a month. Sometimes stools are loose and sometimes solid. I have been bloated too. Sometimes I feel like I have to rush to the bathroom and all that comes out is discharge and gas! But this doesn't happen all the time although sometimes I feel I'm getting better, I have a normal bowel movement then it happens again! I am also experiencing rumbling in my gut and when this happens I have to run to the nearest bathroom! Has anyone experienced this? Any suggestions how to ease the situation? Perhaps a diet change? Please help!
Do you see a Gi dr? I'd make an appt with either your family Dr or gi dr if you have one. Sounds like a flare. That's how it starts for me. What's your treatment? Could meed some tweaking or a change. While it doesn't sound too alarming right now, albeit annoying and definitely disruptive... but if ignored could develop into much worse. I've just learned to not ignore any symptoms as those symptoms are all that we have to "see" what's internally not going right.
It's wonderful to know you had a great 5 yrs of remission...I'm so hoping for remission. :-)
01-09-2016, 06:21 PM   #47
ronroush7
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First of all, welcome to the group. Besides what is mentioned above, I would maybe suggest keeping a food diary and seeing if there are any foods that might set this off. I wish you the best. Let us know.

01-09-2016, 06:28 PM   #48
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Thank you! I've been lucky! I'm actually not on any medication at the moment, I haven't been for may years! I've been perfectly fine, I can have off days hear and there but really nothing to feel alarmed about. All my other flair ups in the past have have started off very different to this, I guess every one may differ from the other. I will make an appointment though, as I'm living in another country now I have to find out how to find a GI specialist ASAP! I'm not in severe pain, just discomfort. Thanks for your advice!
01-09-2016, 06:30 PM   #49
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Thank you very much! I will keep updated! Fingers crossed!
01-16-2016, 08:22 PM   #50
DanaBanana
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How are you doing, tash?
01-17-2016, 08:24 AM   #51
Eridon2002
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Is there a difference between constipation and just not being able to empty yourself?
For me I have strictures in my spenic flexure and descending colon which can cause what I call "constarrhea" It's like a constipated diarrhea, where I am backed up but can only "do" a little unsatisfying diarrhea at a time. I have that constipated feeling but it is D that comes out. I had a surgery consult a few weeks ago and they said it's bad and i need a resection
01-17-2016, 09:15 AM   #52
ronroush7
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For me I have strictures in my spenic flexure and descending colon which can cause what I call "constarrhea" It's like a constipated diarrhea, where I am backed up but can only "do" a little unsatisfying diarrhea at a time. I have that constipated feeling but it is D that comes out. I had a surgery consult a few weeks ago and they said it's bad and i need a resection
I am so sorry.

01-17-2016, 04:19 PM   #53
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Aw Eridon...so sorry. Big hugs!
01-20-2016, 11:37 AM   #54
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How are you doing, tash?
Hi I'm good thank you! The problem I had, seems to be subsiding, the amount of discharge has subsided and I've been very strict with my diet mainly liquids and a low residue diet for now, it hasn't gotten worse which is the main thing. It's getting better still a little bloated but not as bad as before. Keeping a close eye on it!
01-20-2016, 11:39 AM   #55
kellehbeans
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Has anybody here got food intolerances, and as a result, had constipation? What sorts of diets have you tried? I've been told to try the LOW-FODMAP again (which is generally used with IBS), and I'm being impatient as to getting results, as I'm still passing extremely dry stools, but pretty frequently. With LOTS of orange mucus. Does everybody else get mucus?
01-20-2016, 01:06 PM   #56
ronroush7
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I get mucus sometimes.

01-20-2016, 08:47 PM   #57
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Ditto! That's what freaked me out when I was first sick.
01-21-2016, 04:35 AM   #58
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Sorry for the other post about LOW-FODMAP. I just looked up further on the thread and some of you had replied. I have started it again, hoping it will end my troubles, but to no avail. There's a lot of research that it can help both C and D, but so far, nothing. In fact, I feel worse than ever. Pain while I'm eating and just general feeling of rubbish. I've started taking multivitamins now to try and see if I'm low on something. I guess I've only done this for 4 days and I'm probably trying to see if I'll recover, but we'll see.

As somebody said about the genetics, you're right. But I guess I'm just trying to see if this will fit me this time. I am being very militant about it this time. However, I do believe I need to cut the caffeine right back.
01-22-2016, 07:22 PM   #59
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Hi, I am new to this and feeling desperate .. I had colon cancer surgery last year and than my stoma bag reversed in May 2015 and I am still constipation and also have diarrhea(go figure) I am bloated and I mean bloated and every time I put a piece of food in my mouth I have to run to the potty.. I am depressed by all this and my quality of life has been on hold.. I have taken every OTC meds for this and seen many doctors, no help.. Has this happened to anyone? And any cures? Thank you
01-22-2016, 09:47 PM   #60
ronroush7
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Hi, I am new to this and feeling desperate .. I had colon cancer surgery last year and than my stoma bag reversed in May 2015 and I am still constipation and also have diarrhea(go figure) I am bloated and I mean bloated and every time I put a piece of food in my mouth I have to run to the potty.. I am depressed by all this and my quality of life has been on hold.. I have taken every OTC meds for this and seen many doctors, no help.. Has this happened to anyone? And any cures? Thank you
I am sorry for what you are going through.

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