My GI wants me on pentasa.He feels it will help me stay in remission.I was diagnosed 11-13 and had a resection.I read stories of crohnies going med free and doing well.I read stories of pentasa working wonders.I recently found a source that makes pentasa affordable for me.I initially was floored to find it would cost me $97 a week.This would be my co-pay!This new source is $23 a week,from Canada.My GI is fine with this source.
I want to do what will keep me in remission.I'm not sure what stage of remission I am in.I'm just happy to be told I am currently in remission and I want to stay here.It's going on four months since my resection.I seem to have a handle on my food,what I can and can't eat(so far). I'm using diet and exercise as tools to fight CD.I read crohnies have been in remission for years on pentasa and than have a flare or it stops working.Would remission have been shorter if not for the 5-asa? Would it have been the same? I know we are all different with individual needs. I'm unsure of what to do.
I pretty much gave up on fighting this with meds because there was no way I could scrape together $97 a week.I would do it with diet and exercise alone because it was my only option. Now I have a more affordable source,the med option is open to me again.What if that closes up too? Can you start pentasa and abruptly stop it? What would that do to my body?
I would appreciate any input.I need to make a decision and follow it.S**t or get off the pot,so to speak.A good IBD metaphor for my situation.
Thanks :confused2:
I want to do what will keep me in remission.I'm not sure what stage of remission I am in.I'm just happy to be told I am currently in remission and I want to stay here.It's going on four months since my resection.I seem to have a handle on my food,what I can and can't eat(so far). I'm using diet and exercise as tools to fight CD.I read crohnies have been in remission for years on pentasa and than have a flare or it stops working.Would remission have been shorter if not for the 5-asa? Would it have been the same? I know we are all different with individual needs. I'm unsure of what to do.
I pretty much gave up on fighting this with meds because there was no way I could scrape together $97 a week.I would do it with diet and exercise alone because it was my only option. Now I have a more affordable source,the med option is open to me again.What if that closes up too? Can you start pentasa and abruptly stop it? What would that do to my body?
I would appreciate any input.I need to make a decision and follow it.S**t or get off the pot,so to speak.A good IBD metaphor for my situation.
Thanks :confused2: