Nyx
Moderator
Hi everyone!
I haven't been on much as I've been having some major medical problems. It started off with an infection in my vagina and it's turned into a major Crohn's flare. The weird part is that it's not in my digestive system at all. I had a colonoscopy last month and all is clear! The problem is in my stump. My body has taken to eating itself it seems. The doctors are stumped at what to do for me as my skin just keeps eroding. This might be TMI, but the skin of my inner labia is gone, my urethra is basically hanging out, and the skin around my anus is eroded. I've been on antibotics for over 3 months, and the infection is almost gone (yay!), but they're not sure what caused the problem in the first place. Normally Crohn's is irritated by fecal activity. I don't have that in my stump. So, after many appointments with my GI, dermatologists, surgeons, urologists, and gynecologists, I'm starting Remicade tomorrow. I'm a bit scared, because if it doesn't work, then what do I do?? I'm hopeful, but terrified at the same time.
I'll try and keep you all posted, and let you know if I wind up in a medical journal somewhere - my GI said she's never seen anything like it in her 20 years. She's taken pictures and is documenting every step of my treatment and progress.
Crohn's is fantastic, isn't it?? Sigh.
I haven't been on much as I've been having some major medical problems. It started off with an infection in my vagina and it's turned into a major Crohn's flare. The weird part is that it's not in my digestive system at all. I had a colonoscopy last month and all is clear! The problem is in my stump. My body has taken to eating itself it seems. The doctors are stumped at what to do for me as my skin just keeps eroding. This might be TMI, but the skin of my inner labia is gone, my urethra is basically hanging out, and the skin around my anus is eroded. I've been on antibotics for over 3 months, and the infection is almost gone (yay!), but they're not sure what caused the problem in the first place. Normally Crohn's is irritated by fecal activity. I don't have that in my stump. So, after many appointments with my GI, dermatologists, surgeons, urologists, and gynecologists, I'm starting Remicade tomorrow. I'm a bit scared, because if it doesn't work, then what do I do?? I'm hopeful, but terrified at the same time.
I'll try and keep you all posted, and let you know if I wind up in a medical journal somewhere - my GI said she's never seen anything like it in her 20 years. She's taken pictures and is documenting every step of my treatment and progress.
Crohn's is fantastic, isn't it?? Sigh.