Hello!
I am the Mom of a 14 year old diagnosed with Crohn's in 2008. Her name is Catalina (Cata) We've been through all the protocol except Remicade, Humira and other biologicals. Thanks to a book I picked from the public library I learnt about enteral nutrition.
In 2009 during a bad flare, on 6MP, PREDNISONE And Asacol, nothing was working. Thanks to the book and a flexible GI, we tried Exclusive Enteral Nutrition orally (no tube) for 6 weeks. It only took a few days to show results. To think my daughter could have avoided the meds if only someone had mentioned it to me.:hallo3:
We enjoyed remission for almost three years. Thanks to routine lab work we realized this month that Crohn's was active again. Cata is on Exclusive enteral nutrition once more, and only 7 days after starting her labs show positive results in every parameter we are following. she still has about a month to go.
Enteral Nutrition has become the safe place where we can turn. It is the first line of treatment for pediatric IBD in countries such as Italy, Japan and Great Britain.
http://bspghan.org.uk/working_groups/documents/IBDGuidelines_000.pdf
This treatment works for a great percentage of adults too.
It was explianed to me that it is not suggested in the US becuase it is hard to do.
If you would like more info, just let me know. The book That started us on the path is Beat Crohn's! Getting to Remission with Enteral Nutrition by Margaret Oppenheimer.
:thumright::thumleft::thumright::thumleft::thumright::ytongue::ytongue:
I am the Mom of a 14 year old diagnosed with Crohn's in 2008. Her name is Catalina (Cata) We've been through all the protocol except Remicade, Humira and other biologicals. Thanks to a book I picked from the public library I learnt about enteral nutrition.
In 2009 during a bad flare, on 6MP, PREDNISONE And Asacol, nothing was working. Thanks to the book and a flexible GI, we tried Exclusive Enteral Nutrition orally (no tube) for 6 weeks. It only took a few days to show results. To think my daughter could have avoided the meds if only someone had mentioned it to me.:hallo3:
We enjoyed remission for almost three years. Thanks to routine lab work we realized this month that Crohn's was active again. Cata is on Exclusive enteral nutrition once more, and only 7 days after starting her labs show positive results in every parameter we are following. she still has about a month to go.
Enteral Nutrition has become the safe place where we can turn. It is the first line of treatment for pediatric IBD in countries such as Italy, Japan and Great Britain.
http://bspghan.org.uk/working_groups/documents/IBDGuidelines_000.pdf
This treatment works for a great percentage of adults too.
It was explianed to me that it is not suggested in the US becuase it is hard to do.
If you would like more info, just let me know. The book That started us on the path is Beat Crohn's! Getting to Remission with Enteral Nutrition by Margaret Oppenheimer.
:thumright::thumleft::thumright::thumleft::thumright::ytongue::ytongue: