I was started on Infliximab almost 12 months ago and I heard positive things about it so had fairly high hopes.
I've been having this every 8 weeks and the last 2 times have been useless. My latest infusion made me gain weight very quickly, I've had stomach cramps, urgency, pain and bleeding. I've made it clear that I don't feel that this is working, and given how expensive this is I thought the doctors would take me seriously but they don't.
I just don't know what I can do to make them listen to me. I feel frustrated and fed up that I've been left in this position. There doesn't seem to be anything left to try and its left me feeling quite hopeless. Has anyone else not had successful treatment with infliximab?
I've been having this every 8 weeks and the last 2 times have been useless. My latest infusion made me gain weight very quickly, I've had stomach cramps, urgency, pain and bleeding. I've made it clear that I don't feel that this is working, and given how expensive this is I thought the doctors would take me seriously but they don't.
I just don't know what I can do to make them listen to me. I feel frustrated and fed up that I've been left in this position. There doesn't seem to be anything left to try and its left me feeling quite hopeless. Has anyone else not had successful treatment with infliximab?