Crohn's Disease Forum » Parents of Kids with IBD » Swelling under tongue?


06-05-2014, 03:58 PM   #1
Mugzilla
 
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Swelling under tongue?

Hi All!
Posted a few weeks back re: 16 yo daughter and confusing Crohn's diagnosis/infection questions. She has now developed a sore (for lack of a better word) under her tongue, right side only that is quite swollen and uncomfortable. Anyone experience this as a side effect of budesonide or mesalamine? I've bumped up the B12 as I know nutritionally she's out of whack from the 2 weeks in the hospital but don't know if that could cause something like this. Anyone have experience with this? I'd appreciate any info you might have. Thanks for your help.
06-05-2014, 04:20 PM   #2
Hunt
 
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I'm on Budesonide but haven't experienced any sores in my mouth. I've read that some people have though so it's quite common I presume.
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Diagnosed with crohn's, same old story..

Current Meds:
Budesonide - Stopped working for me
Azathioprine - Allergic reaction
Prednisolene - Finished
Calcium Tablets - Finished
Polymeric ensure drinks - Finished

Remicade (15) Infusions.

28th November - Bowel Resection
29th November - Major Internal Hematoma

Currently recovering from the above and life is getting better!
06-05-2014, 04:25 PM   #3
Farmwife
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Does it look like a canker sore or an open ulcer that's more the color of the mouth?
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I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
Azathioprine
06-05-2014, 04:37 PM   #4
Mugzilla
 
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More like open ulcer the color of her mouth. Less like a canker sore
06-05-2014, 04:47 PM   #5
Farmwife
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Grace get's them. There painful and hers also swells.
We don't now for sure what causes it.
It's either the disease or her inhalers if she doesn't swish water after taking it.
My mommy gut says disease.


We use a medicine called Magic mouthwash. Prescription only but works great for Grace.
06-05-2014, 05:06 PM   #6
my little penguin
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Same here - mouth sores - no swelling - GI gave us prescription mouthwash for DS to use.
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06-05-2014, 06:08 PM   #7
Mugzilla
 
Join Date: May 2014
I'll ask about the mouthwash - thanks for the good advice. I guess when the drs. say "what she has will eventually reveal itself" that includes each new symptom that appears ... or doesn't. The "not knowing" is wearing me out.
06-08-2014, 09:32 AM   #8
Brian'sMom
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I'll ask about the mouthwash - thanks for the good advice. I guess when the drs. say "what she has will eventually reveal itself" that includes each new symptom that appears ... or doesn't. The "not knowing" is wearing me out.
I have come to find out that whenever we think we've outsmarted the crohns... it rears its head to say, "I'm still here!" Some kids get into long remission, so far we haven't experienced that yet either. We also recently have noticed little ulcers in the mouth...for the first time. (He's recently had an ileostomy too, so that could be the reason) So far they aren't too painful. They just aren't going away. We go on Wed.... didn't know about the mouth wash. I'm also going to have his vitamin levels checked (because of the ileostomy)

Keep us posted what you find out too
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
06-08-2014, 08:46 PM   #9
AZMOM
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Bless your heart. Like Brian's Mom, I find that everytime I think we are "smooth sailing" something rears it's head. And the symptoms don't always correlate. When Claire's stools are fine, sometimes there are mouth sores. Sometimes her joints are bad when nothing else is bad.

I tell my family that I feel like her crazy immune system has an evil laugh and somewhat like Plankton, on SpongeBob, is always plotting his way around whatever the current regimen is!

Hugs,

J.

PS We too, have done the mouthwash, and it does help with the pain.
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Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
06-08-2014, 08:58 PM   #10
Farmwife
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Just to let you know there's different varieties of magic mouthwash.
Our GI had never heard of it and called the pharmacy to ask how it was made.
We have a big bottle that's kept in the fridge and her kind can keep good for a year.
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