After much debate with doctors (I'm sure they hate me now) and wanting what's best for my little farm girl
we've decided to remove all foods and leave her on full EEN.
She will still be on LDN and once her weight gets stable we will up her dose to 2.0mg.
This current flare up brings-
Abdominal cramp
constipation with fissures
vomiting
loss of appetite (she's back to using her pump full time)
Asthma
Eczema
Bladder inflammation
Blood sugar problems
Joint weakness and pain
Low vit D, low zinc and magnesium
Now if you can't tell what's being caused from her IBD or EGID's, don't worry...neither can her doctors. :yfaint:
So we all felt full EEN would be the best for both diseases at this point in time.
New medications
Phenergan for nausea
Tramadol- if I want it for her.
I started the first steps today of seeking an urgent second opinion from Mayo Clinic in Minnesota USA,
It's not just for a GI reasons but for an overall approach.
She has so many area's that are going haywire.
My mommy gut is telling me it's all linked.
On a good note:
We bought our first snow cone machine and I found artificial flavoring and we made some and she LOVED it.
I mean I have to be the COOLEST MOM EVER, who else lets their kids eat sugary snow cones for dinner.:rof:
we've decided to remove all foods and leave her on full EEN.
She will still be on LDN and once her weight gets stable we will up her dose to 2.0mg.
This current flare up brings-
Abdominal cramp
constipation with fissures
vomiting
loss of appetite (she's back to using her pump full time)
Asthma
Eczema
Bladder inflammation
Blood sugar problems
Joint weakness and pain
Low vit D, low zinc and magnesium
Now if you can't tell what's being caused from her IBD or EGID's, don't worry...neither can her doctors. :yfaint:
So we all felt full EEN would be the best for both diseases at this point in time.
New medications
Phenergan for nausea
Tramadol- if I want it for her.
I started the first steps today of seeking an urgent second opinion from Mayo Clinic in Minnesota USA,
It's not just for a GI reasons but for an overall approach.
She has so many area's that are going haywire.
My mommy gut is telling me it's all linked.
On a good note:
We bought our first snow cone machine and I found artificial flavoring and we made some and she LOVED it.
I mean I have to be the COOLEST MOM EVER, who else lets their kids eat sugary snow cones for dinner.:rof: