Hey, I am 28 years old male from India who was diagnosed with crohn's back in 2011. Initially there was sudden weight loss and doctors couldn't figure out the reason I was around 95kgs(209 lbs) and dropped down to 50kg(110 lbs) in a month. Somehow I found a good doctor and he asked me to go for my first colonoscopy and diagnosed me with crohn's.
It took me almost a year to come out of that pain and start leading a normal life, I was on omnacortil(prednisolone) for more than a year and later was on mesacol od(mesalamine).
I improved my lifestyle and joined gym quit smoking and life was going on pretty normal until recently, few months back I noticed I was again losing weight and quite uneasiness in my stomach, so I went fro check up again and in my second colonoscopy I found out that I had two strictures in my large intestine, luckily I never had any problem in my small intestine, so I was on meds again for most of this year again and also started methotrexate injections weekly once but I guess the meds stopped working and the pain kept increasing so I had to go under CT scan and post that my doctor told me that I have to go for surgery since the infection has damaged my complete colon and I have to take a call soon before I come in ER.
So after gathering lots of courage I decided to go for the surgery, I was initially given 3 options
1- removal of complete colon and rectum and permanent stoma
2-removal of complete colon and rectum and make a pouch using small intestine and have stoma for 3-4 months and then go for second surgery
3- removal of only colon and infected rectum and have stoma for 3-4 months and then closing of stoma.
So I had opted for the third option, though having a stoma at this age even for few month was something hard to digest for me as I was more worried about my day to day life but then going through this forum I realized I could do it too since so many have done, I had even taken few sessions with stoma therapist before my operation.
I was admitted in hospital on October 23rd, 2017 and was to be operated on 25th, on 24th I was again asked to go for another colonoscopy, Post surgery which went for about 5 hours I asked about the stoma bag as soon as I gained consciousness and I was given the good news that it was not required and the doctor just removed my infected colon which was complete large intestine but somehow managed to save me from getting a stoma, I was so relieved. The next thing I remember is waking up next morning with lots of pain in the stitches and I could see two bags one for the passing of urine and other was the drain bag.
The first week was with a lot of pain as the third day I had passed motion and my intestine was trying to adjust so there was lot of anxiety and also pain in my sutures, They make you walk the second day itself which is again a very tough thing to do as you won't have energy and the pain is too much.
eventually, they removed my urine pipe after a week and discharged me on 3rd of November but I was still having my drain pipe and they stuck a bag for that since the drain was still coming.
The removed my drain pipe after a week of me getting discharged, I still have my stitches on and would most probably get it removed this weekend.
I am right now concentrating on my recovery process and trying to find out how I can gain back all the muscle loss I had so concentrating on my diet and also I want to get back to the gym asap but I guess that's not possible until 6-8 weeks post surgery.
So this is my story so far.
Cheers.
It took me almost a year to come out of that pain and start leading a normal life, I was on omnacortil(prednisolone) for more than a year and later was on mesacol od(mesalamine).
I improved my lifestyle and joined gym quit smoking and life was going on pretty normal until recently, few months back I noticed I was again losing weight and quite uneasiness in my stomach, so I went fro check up again and in my second colonoscopy I found out that I had two strictures in my large intestine, luckily I never had any problem in my small intestine, so I was on meds again for most of this year again and also started methotrexate injections weekly once but I guess the meds stopped working and the pain kept increasing so I had to go under CT scan and post that my doctor told me that I have to go for surgery since the infection has damaged my complete colon and I have to take a call soon before I come in ER.
So after gathering lots of courage I decided to go for the surgery, I was initially given 3 options
1- removal of complete colon and rectum and permanent stoma
2-removal of complete colon and rectum and make a pouch using small intestine and have stoma for 3-4 months and then go for second surgery
3- removal of only colon and infected rectum and have stoma for 3-4 months and then closing of stoma.
So I had opted for the third option, though having a stoma at this age even for few month was something hard to digest for me as I was more worried about my day to day life but then going through this forum I realized I could do it too since so many have done, I had even taken few sessions with stoma therapist before my operation.
I was admitted in hospital on October 23rd, 2017 and was to be operated on 25th, on 24th I was again asked to go for another colonoscopy, Post surgery which went for about 5 hours I asked about the stoma bag as soon as I gained consciousness and I was given the good news that it was not required and the doctor just removed my infected colon which was complete large intestine but somehow managed to save me from getting a stoma, I was so relieved. The next thing I remember is waking up next morning with lots of pain in the stitches and I could see two bags one for the passing of urine and other was the drain bag.
The first week was with a lot of pain as the third day I had passed motion and my intestine was trying to adjust so there was lot of anxiety and also pain in my sutures, They make you walk the second day itself which is again a very tough thing to do as you won't have energy and the pain is too much.
eventually, they removed my urine pipe after a week and discharged me on 3rd of November but I was still having my drain pipe and they stuck a bag for that since the drain was still coming.
The removed my drain pipe after a week of me getting discharged, I still have my stitches on and would most probably get it removed this weekend.
I am right now concentrating on my recovery process and trying to find out how I can gain back all the muscle loss I had so concentrating on my diet and also I want to get back to the gym asap but I guess that's not possible until 6-8 weeks post surgery.
So this is my story so far.
Cheers.
